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28-YEAR-OLD Justice lives with narcolepsy type 1, a rare neurological condition that causes her to fall asleep "without warning" several times per day. The condition means Justice is unable to regulate her sleep-wake cycles, so she experiences fragmented sleep during the night and "sleep episodes" can happen at any time during her waking day. Whilst Justice does her best to schedule naps in an attempt to prevent episodes, she regularly falls asleep in public - something that she admits comes with "some level of embarrassment." She has been mistaken for being "passed out drunk" after falling asleep in nightclubs and even experienced an episode during her grandmother's funeral. Justice is not oblivious to how that might look to people who don't know she has narcolepsy - something that does make her feel "extremely vulnerable." Fortunately, Justice is surrounded by supportive friends and family, including her sister Ava. Having grown up with Justice, Ava is used to protecting her sister when she does have an episode in public: "I just make sure to keep her safe, making sure people respect her and that her episode is not a spectacle." With this support to fall back on Justice is adamant that whilst her condition can be frustrating "life is all about perspective" - and now, by advocating online, she is determined to show other young people living with narcolepsy that "you aren't chained in by your disorder. You still can live a functional life, you still can achieve the things that you want to achieve."
Follow Justice:
/ justicecollins11
/ pray_4_justicee
/ pray_4_justicee
Videographer: Nathan Johnson
Producers: Kim Nguyen, Tom Buckman, Georgia Embling, Courtney Buabeng
Editor: Vanessa Nascimento
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00:00 Intro
0:31 Meet Justice & Learn About Narcolepsy
4:50 Justice Has An 'Pass out Episode'
7:28 Outro
If you enjoyed this story, we have more great Born Different episodes here: kzhead.info/channel/PLUkdT9ljJ1cbFTk10utsTb-RGsujT5bG4.html
Narcolepsy is not something to be scared of. I love that she is sharing because it does need more attention. Also, on a side note...her hair is awesome!
True.
Yikes, that scared me seeing her asleep at a club.. terrible things could happen. So glad she has support.
Me too ey.
Exactly, some MAN could try to get her a pillow WITHOUT HER CONSENT!
What could possibly happen? I’m interested to hear
Spiking her drink
My brother has Narcolepsy. He use to fall asleep in class and still heard everything the teachers said. The school called my mom and said he was on drugs, and he is cheating on test 😢. I use to feel so bad for him . She had to bring medical records and they still didn’t get it
😢
That's sad 😢
Show them this video
My mom has had it all my life and she is 80 and one of the most creative, and brilliant person 8know..she also was a teacher for 30 years and has masters in biological science.. it’s hard to describe growing up..that would take a book..lol. But she is thriving and active when she’s not sleeping 😊..she is an artist and loves jigsaw puzzles , she made over 100 afghans over the pandemic..she manages her narcolepsy with ridlin
I don’t have narcolepsy but I will fall asleep and also hear everything someone is saying to me. Lol, I repeat word for word.
Oohh At Granny s funeral😂😂😂😂 oh my heartttt when they both laughed❤
Honestly this sounds like it sucks to have to deal with
I deff have my challenging days not going to lie but in the big scheme of things I'm pretty lucky. The way i see it somr people have like cancer or invasive disorders. If the worse thing is i have to take a few extra naps in the day... ill take it lol. It could be so much worse.
@@justicecollins I suppose it could be but that doesn't make it any less sucky for you or people who have this condition
@@jadaharris7655 oh for sure not invalidating the seriousness or anybody else's truth. Just always trying to have perspective with a challenging situation.
@@justicecollins oh no sorry I didn't mean it like that I just meant that you shouldn't let anyone tell you that your illness isn't hard just because it's not something like cancer or something invasive
@@justicecollinsthank you for educating us. Q: Are you able to hit REM sleep day to day?
she should get a service dog, they can smell when you’re about to fall asleep and they make indications to tell you
It’s clear she does have one.
@@MissTJ516 haha zuko isn't a service dog. But he is my right hand tho! 🫶🏾 just a regular pup who enjoys a good nap too
@@justicecollins bless you 😌
Those of some good looking genes in that family 💅
Or a male boyfriend--dog 🤪
My grandmother is Narcoleptic as well. She used to have to pull over if she was driving (she stopped driving years ago) but it definitely is somewhat of an inconvenience for her. However, I did laugh when she said she can hear what's going on around her. My grandmother heard my mom talking to me about a disagreement they had. She woke up looked at me and asked, "WHAT DO YOU HAVE TO SAY?"😂😂😂
😂😂😂
When I was a child I had a sleeping disorder, I was around 10 years old. It went on and off for over a year. And then it stopped. I'm now 64, and I have insomnia now and then. I fell asleep at a baseball game and woke up and everyone was gone. We loved right across the street from baseball fields so it wasn't unusual for me to go watch the games. My parents took me to many specialists, ran many tests and they came back fine. Then one day it just stopped. I'm glad they were able to diagnose your sleep disorder.
Yeah medical advancement definitely helps these days it's crazy how they test for sleep apnea 😂 I had a hundred wires all over me and I told the guy I'll stop breathing around 1 am and he was blown away I stopped at 103 am lol its cause that's when I'd wake up every night out of it and I stopped breathing every few secs 😢 but now I have a cpap machine so I'm ok
I love her support system. She’s beautiful and seems happy. ❤
True.
I wish I had Ava as a sister her spirit is so calming!!!
True ey.
I battle with narcolepsy. It’s hard can be annoying. She is doing all the right things
Does taking stimulants help?
@@vanesal3435 Yes, but not as much as you would hope
Love her & her sister. They seem so cool
My sister is a whole vibe! Thanks!
Beautiful sisters. Thanks for taking care and protecting her
Thank you for educating folks on narcolepsy. My sister has this condition as well. She also has cataplexy, which causes her to have seizures when she has strong surges of emotion, like when she finds something really funny. It really profoundly impacts her life, but she really does her best with the situation. She is the sweetest, most loving and upbeat person I’ve ever met. I will support her and make sure she is safe and taken care of til the end of my days. ❤
Such an understanding and supportive sister.
She is the best 🫶🏾
🙏🏾 amen
She has an incredible outlook on life
Yay! I have narcolepsy and nobody understands it! I'm glad you did this episode!
Me too, but now I get enough sleep, they used to abuse me because I grown-up with stepmother , I thought she bewitched me, i struggled so much with that disease 😢😢 but God is good God is great, am fine now 🙏🙏🙏
Don't Drive🚗
I had a lady tell me she fell off a highway ramp before she found out she had narcolepsy.
I was just thinking that
Or cook either. 🍳
I agree.
I doint drive
I can't imagine the stigma people with Narcolepsy experience. Others must just always assume you're drunk. Also if you're alone or somewhere new - it could protentially be really dangerous if you fall asleep and wake up somewhere you don't know around people you don't know
I would assume sleep deprived not necessarily drunk as her behavior and movements don’t indicate such
@@Zee-ob1pe she literally said in the video that people often assume she's drunk
Bless this sistas soul, she still seems to enjoy her life ❤
I have a sleeping disorder too because of my bipolar disorder. Meaning, when I’m more depressed I fall asleep all the time in inappropriate places. The fatigue is completely overwhelming and overpowering and there is absolutely nothing I can do
OH. EM. GEE! I do this and am so self-conscious about it. I might have the same thing!
My fiancé is like this too
@@KD1MEbipolar had to do with much more than just sleep lmao
@palestar828 just because I didn't mention it, doesn't mean I don't have bipolar disorder. I was commenting on the sleep portion of the op's comment. This is the importance of minding your business when you don't have all the information. There is no need to speak on something you don't know. Have a blessed day.
@@KD1MEim sorry stinka butt ☹️i hope your ok 🙏
My dad has Narcolepsy, I remember as a kid he would always fall asleep out of nowhere. I remember one day I asked him when he was going to get a car and said to me " I'll Never be able to drive, I have Narcolepsy". After that moment I just let him sleep until he would get up because it is not a big deal its something normal to me. I always try to understand because it was also passed down to my little brother and from my perspective and theirs it's normal but others may laugh. Others should be more open to learning about these things because it's not normalized that we talk about these things.
I work in a sleep clinic and this is the first time I have seen anyone talk about Narcolepsy ever! This is great that you are sharing your experience so that others can see! The patients at my clinic take medications for this condition and they are very FDA controlled medications-no joke. She’s a beautiful young lady and I wish her the best! Thank you for sharing!! ❤
Love how respectful and comprehensive her sister is! Two smart and beautiful ladies putting out there that is ok to be different 💚
She is smart about the driving and she's beautiful
I love her personality. Such a beautiful person
Thank you for sharing this. ❤
My uncle probably had this and we just didn't know it back then. I don't have a sleeping disorder but I fell asleep one time while driving and would have crashed into the wall had someone not blown their horn. I didn't even realize I went to sleep. After that I don't play when it comes to sleep and driving and keep a car music playlist to help me sing to stay awake. If I'm going out and will be far from home, I won't eat because I know my body will get sleepy after an hour of eating. Once I yawn it's almost time to go. I will not jeopardize my life as well as others driving while sleepy. I've taken a 20 minute nap when i got off work because I was so sleepy and feared falling asleep at the wheel again.
Have you ever thought about possibly having sleep apnea? Falling asleep while driving is one of the symptoms of it
@@lkjhb1 No it's not sleep apnea, I was just tired. I was young when it happened and it was my first time driving far to check colleges. I didn't believe people could fall asleep at the wheel until it happened to me. I can sit down at my job all day and be perfectly fine, but I can't sit down for long driving. You're tired and fighting sleep and thinking I got this or that I'll close my eyes for 2 seconds, the car in front of me is way up there so I'm not going to hit them. You don't want to pull over to take a quick nap for fear of being robbed/or kidnapped, so you keep going. Next minute you know you're sleeping. When you get off work and think I'm good to drive but the sound of the road/vibration of the car makes you sleepy. I equate that to a fan in the bedroom. A lot of us go to sleep with a fan and in a way the sound puts us to sleep. So when I'm working or studying I don't turn on the fan. When we eat we want to lay down and got to sleep after an hour. So through trial/error I learned how my body works. I have about a 2-3 hour driving limit before I get sleepy, if I drive far to leave early in the morning right when I wake, but don't eat anything. I can snack but not that much. And if I know it may be late driving back home to either stay the night at their home/or get a hotel. Just know I hate staying at either place and prefer to sleep in my own bed. Not everyone's house is clean and roach free and I have a fear of camera/dirty carpet at hotels. Before being a mom I wasn't always perfect when it came to following my rules when driving, a few times I drove and had to fight falling asleep. But once I had my kid I started following them 100%. I couldn't imagine being careless behind the wheel and something happens to my kid or me/they have grow up without me or I take another person's life. I got hit a fear years ago 5 minutes after dropping off my kid at school. A diesel on the side and the car behind me, both hit me at the same time. The diesel caused the accident, because they turned in my lane/their trailer went over my car, I thought I was about to be decapitated. So I have anxiety driving because I swear every time I drove after that some careless person almost hit me by not paying attention. I've since moved from the city to more country area and my anxiety driving has tremendously improved. There's less cars on the road, people in a hurry and wider streets.
FINALLY! A story that I can relate to! 😂😴
A well rested queen 🎉
Bless Her Heart ❤️
I'm sorry you have narcolepsy😢 I hope it gets better one day❤ have a good one❤😊❤
Such a strong and beautiful woman.. an inspiration! This would be hard to live with. Instead of being depressed and down , shes living her life and helping educate others ❤
Yes 🙌 ❤
me when I watch tiktok ASMR lives
omg fr
😂😂😂😂
tv*😂
No fr 😂😂
Fr
As someone with Type 2 Narcolepsy, it is/can be a debilitating disease even with treatment. Thank you for this video❤
Justice,thank you so much for helping people understand more about this condition. I can only imagine how hard it is to manage a disorder like this, but it seems you're staying positive and doing all you can to get the most out of life. Animals are great for de-stressing as they actually lower bloodp pressure, and your doggo is unbelievably cute! Also, you're gorgeous ! Love your hair ❤ Ignore the ignorant/rude/stupid comments, there are always trolls who have nothing better to do with their lives than bully strangers. Take care xx
Thank you. You are incredibly kind 🫶🏾🫶🏾
What a beautiful girl, with great support. Thanks for bringing awareness to narcolepsy ! ❤
You are amazing person do not do not let narcolepsy hold you back 😊❤
God bless her amen 🙏🏾❤️
I love your energy, blessings from California. Girl you’re DOING GREAT ❤❤❤
Beautiful soul and learned from this thank for education on this God Bless you
I saw this and immediately my daughter said mom u have the same. I fall asleep at parties, movies 🎬 in the park on the bus in my car 🚗 if am park for long period of time and at work. But u are diagnosed. Thanks for sharing
You definitely need to get diagnosed and please try not to drive. For your safety and others
@pigeon1923 yes, I have an appt to speak to my Dr. In this regards thanks. And no I do not drive whenever I may feel this was I pull over if I have to bc I can feel it coming on.
@@outrayjust I wish you the best of luck speaking to your doctor and I hope you're keeping well ❤️
God bless her. I hope one day they can find a cure for this disorder 🙏🏽♥️
I feel for this girl, I have narcolepsy, but not like this, so my brain tries to dream while I’m still awake. It’ll try to go into REM and I see things breathing and moving. I’m so glad I don’t have it to the point where I fall asleep while I’m standing or something. ❤
Right on girl! I also have Narcolepsy.. was diagnosed in my early 20's. I used to catch the bus to work - I once slept standing up at the bus stop.. It was definitely a convo starter for all the other bus riders lol. Not enough is said about this one.. thanks for sharing your story ❤❤
Bless her heart
Sisters are the best🙏💜🩷
Such a beautiful soul. So happy to see she keeps being positive and has amazing people who support her
Beautiful soul ❤
Great to see someone spreading awareness but not fear of Narcolepsy. I have Narcolepsy and thankfully I can take medication that allows me to stay awake most of the day. Before medication, my days were very much like Justice’s. Glad to see she is persevering and thriving.
Me too. Vyvance was very effective for me for many years but most insurance won’t cover it because narcolepsy is an off label use. Modafinil has been pretty effective as well. Glad you are doing well 😀
So glad that there’s medication for this medical condition!
Literally a curse that can be broken 🙏🏾
Grannys funeral 😂😂😂😂
I learned a lot about this!
Me too.
These two are seriously so cool looking
My older brother has narcolepsy too and I have epilepsy lmao
Very inspiring woman✨. It’s great to see that she’s open about her disorder without shame because no one is born perfectly healthy. I believe we all got a little something unique to us.
Exactly! It's all about embracing what makes you different. I just take it as an opportunity to educate
i have type 2! just diagnosed after 27 years of horrible sleep. ive fallen asleep leaning over barricades at concerts, on the floor at halloween parties, and worst at a meeting while i was shadowing a nurse manager for school 😅
I love the band KISS. I fell asleep during one of there concerts.
I have narcolepsy type 2. I sleep A LOT!! I can totally relate
She is so beautiful
So strong and amazing women and inspiring and inspiring unique and amazing and remarkable person thanks for sharing ur story 🫶🏻🌺🫶🏻🙌🏻💙🩵🫶🏻🌺🌺
That is crazy! Can she have a job in such conditions?
I worked in the same place as somebody with that condition, I think the managers just accepted it really.
Just thinking, this young woman could be a Detective.
@@Isobel201 cool!
@@blackamericanlesbianprofes4357 she can pass out during an investigation, which is not what you want to happen as a detective. Lol
I have it too, and I was diagnosed at 24, I'm 28 now. I have to take naps, or I cannot function!!!!
Me too girl, Me too.
Yeah... That's my life. To bad NOBODY CARES! There is no real compassion for me. People have always been like this family..."you just need to get some sleep at night!". Everything she said is accurate
I can relate to this. I had a sleeping disorder throughout my young adult life, but for me I thought I was doing it to escape my everyday circumstances. No one ever knew or inquired why I slept so much. I just thought it was because of deep depression.
Crazy part Ik somebody with this disorder
She's gorgeous😍😍😍! My brother used to fall asleep anywhere. I'm glad he didn't become a trucker driver with me...
Bro I have Narcolepsy as well but I have been trying to get diagnosed for years 🙄 so I absolutely get it as well! I can fall asleep standing up.
I know exactly how she feels cause i can't stay up either n my husband always say you sleep too much but i can't help it, i need to go get checked out n see why i get so sleepy all day.
Strong woman
As a child I remember that she had to get her lesson plans together for the week but she always had hers done for the year by the end of summer break..no matter how often she may have fallen asleep during the day..She was always up at 5 am..she's 80 and still gets up..the other thing is she can hear what your saying because she has catoplexy also..I could write a book..
Never knew about this condition 😮 serious situation..is there any meds to assist your moment's thanks for sharing.
Lots of “power naps”.
We Jamaicans call that dropsy
The only thing I will have to disagree on is the driving. Because you have narcolepsy, you are putting yourself and others at a higher risk of danger. As long as someone is in the car with you while you are driving to take over if you do have an episode. Then by all means. But over all, I'm so glad to see so much positivity from you over this, never let it get you down. And thanks for the funny moment while at the funeral. Nice share!
I think my nephew has this. He'll be in the backseat talking and talking and then just silence. Sleep. I love it😅
Gorgeous young woman. God bless her...I'm concerned about her driving tho. Love her hair!
Damn this is low key dangerous. When u brake it Down simply cooking could lead to devastation. Can u be woke up after u drift off.
It really can be. I'm lucky enough my episodes typically are in controlled environments usually meaning I can feel them coming on. Then if I plan my day with structure naps etc. I have prevent episodes from occurring. But for somebody with a more severe case I can only imagine the difficulty managing the unexpected side of the disorder.
I have Narcolepsy and I take medication. Although I cannot work a corporate position anymore, I can still live a somewhat “normal” life with medication.
Hello, would you mind sharing which medication is currently working for you? Thanks 😊
I HAD THIS CONDITION WHEN I WAS AROUND 38 OR 39 YEARS OF AGE AND I KNEW I COULD NOT LIVE LIKE THIS FOR THE REST OF MY LIFE. I DIDN'T KNOW WHAT TO DO. I WAS GOING TO GO TO THE DOCTOR BUT I PRAYED AND IT HEALED. AND COME TO FIND OUT, I WAS CONSUMING LARGE AMOUNT OF ARTIFICIAL SWEETENERS WHICH CAUSED THE PROBLEM OF SLEEPING A LOT😮😮
Have they tried Ampyra? Because I know that it was made for people with narcolepsy... But it also helps people like me that has multiple sclerosis, gives you the most unbelievable energy.
In our society, there isn't a lot of accommodation for narcolepsy in things like education and employment. Justice found a way to make it work, but I'm sure it hasn't been easy, especially pre-diagnosis. I love that she has friends and family members who not only "accept" her condition and its symptoms but also normalize it. The whole rest of the world expects her to be awake consistently. In the presence of her close friends and family, she's got a safer space.
This is my first time seeing someone with narcolepsy we can relate similar because i have epilepsy were i cant do flashing lights or things that can trigger me in general
My friend has this and is prescribed stimulants and they help but can be addactive so they are very tightly monitored.
I guess narcolepsy is more of a bother than anything else. You have to plan out and try to keep things under control at all times. You have to make sure that you are safe constantly or else you could end up hurt by accident while sleeping
Yes exactly!!!! I use the word inconvenient. Not being able to do certain things or just having to calculate your days so you are productive and can do the things you want.
I was diagnosed in 2021, and let me tell you it can be a nightmare! Can’t stay awake during the day, and can’t stay asleep during the night. So you take meds to keep you up and take them to sleep. It can be quite depressing at times.
Girl, same
Omg I knew a kid I went to school with this! I remember I was talking to him and he fell asleep on me, flat out snoring!!!
That's the issue that I have the doctor thinks it might be narcolepsy? He wants to admit me into a sleep clinic.
100% recommend getting a sleep study if you can! Helps just knowing and having some answers to help you live your best life.
Have it done. I was diagnosed in my early 20s, after the sleep study. The medication has changed my life, the symptoms never go but it gave me back my life. I can even drive now🙂
I don't have narcolepsy, but I do have mild sleep apnea. So I understand a little bit about what it feels like to not be able to stay awake.. especially if I had a bad night with pain as was the case last night.
Finally a somewhat relatable addiction id say this is very much real and appreciated from the channel respecting people that suffer from this it’s hard out here
I keep falling asleep 😴 on this video. 😳
Same .. same
She as nice hair and I like her piercings too
There are medications for this! They can be life-changing
I had a roommate with this . We were literally at a ride at Disney and she passed out lol .
More music.Invest in headphones and a playlist of music that keeps your attention .And its important to get to know your melanin.Its just how her body relaxes.Just so happens its at random moments.sleep is so important especially if you dont get enough of it