Into the Fog: Living with Early-Onset Alzheimer's | WebMD
2019 ж. 5 Мау.
81 482 Рет қаралды
What's it like to live with early-onset Alzheimer's? Brian was diagnosed with the disease, which took many of his close relatives, at age 54. Hoping to help find a cure for the next generation, he now travels the country as an advocate to raise awareness about what it is like living with the disease. Brian explains the mental fog that now takes over his mind.
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I am only 34 and I've been feeling dramatic changes in my brain for several years now. I'm reluctant to go to a neurologist because I know I'll be met with dismissal and told that what I'm experiencing is normal aging or imaginary, but it's not. Fog is a fine way to describe it, sometimes I have brain fog and it's not dissimilar, but sometimes it's not quite fuzzy, it's more... remote. The best way I can think to describe it is the moment after a bomb goes off. Silence. Everything floating in the air. Eerily calm. Faraway glimpses of disparate fragments you know should be connected to something, but they aren't; it's all just distant pieces in the air and that deafening silence. Imagine your brain trapped in that moment, trapped in that moment where time stopped and nothing is connected to each other- it's all just space. Or maybe "faraway" like a moment was happening and you got pulled all the way back into another plane of existence where you can only see blurry shapes and muffled voices, and when you try to run forward to get closer, it's like gravity is 10 times heavier and it's so hard to move forward that you just sit down and passively watch the shapes move. We have a strong family history of Alzheimer's, and I know I am getting it, but I'm actually not afraid, not yet. I don't believe it has to be inevitable. I believe we can fight if we start early enough by strengthening our brains and bodies. Please don't give up if you are reading this and you are recognizing symptoms. If you choose to hide in fear, it will bury you. Face it head on and fight. Active learning is our greatest defense mechanism against cognitive decline. The learning must not be passive or fleeting (harder and harder in the Smartphone era), and you shouldn't just be re-enforcing existing knowledge, but engaging in consistent and effortful learning of new skills, information, and concepts. And in those many moments where you think, "Oh, this is too hard for my brain, I don't want to think so hard right now. I don't want to make sense of this problem; I don't want to interpret that sentence; I don't want to summarize that information, or recall that event." You must do it. Or one day you truly won't be able to. I've always felt there was a connection between inattentive type ADHD and cognitive decline. Prior understanding posited no connection because of unrelated causes (dopamine regulation and amyloid plaques, respectively). New studies have indeed found a statistically significant correlation between ADHD and Alzheimer's. Whether this is because a key symptom of ADHD is the avoidance of the strenuous mental effort we so need, or if the accepted causes of each beg questioning. New research is constantly emerging. It is now being considered that amyloid plaques are reactive rather than causative, i.e., a result of our brains trying to stop what's happening, not the thing that's causing it. Improved understanding will open the doorway for earlier detection and better treatment methods. I take Atomoxetine for my ADHD and it helps me retain and retrieve information better, it's also been studied for dementia and shows positive reduction of biomarkers. Don't give up!
I direct a choir for those suffering from Alzheimer's disease. It's the highlight of my week.
I wish there was a cure. it's heartbreaking to see people lose themselves and they're completely powerless to do about it but ride it out until complete nothingness. it's not fair to them, or their families. it's cruel. I can't completely express how bad I feel for these people.
Brian, my dear friend, my words are meaningless, your words are priceless. In your travels on this journey you have been given the strength, the vision to share, to help others even though you know the ending for yourself. God has blessed you with the strength to tell others how you are traveling your own road. For what it is worth, I am praying that your road becomes so much smoother, may you not feel pain, may the fog you describe, just happen and that you will be at peace. I will pray for that for you, my friend.
*I am 74-years, I was diagnosed with Alzheimer’s disease some years ago, I always like to use my experience in a positive way to educate others.. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. I support the Walk to End Alzheimer’s using several western medications but all to no avail. Homeocure Worldwide natural cure medicine did wonders. I have a wonderful family who also supported and guided me through the process. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, check: **homeocureworldwide.blogspot.com*
That’s exactly how I feel.. I fight ever day to stay cognitively aware Your so right it’s exhausting
Have you been diagnose? How old are you
Rebecca, please Google Dr Joel Wallach dementia, maybe his supplements might help
Quite frankly, that sucks
*I am 74-years, I was diagnosed with Alzheimer’s disease some years ago, I always like to use my experience in a positive way to educate others.. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. I support the Walk to End Alzheimer’s using several western medications but all to no avail. Homeocure Worldwide natural cure medicine did wonders. I have a wonderful family who also supported and guided me through the process. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, check: **homeocureworldwide.blogspot.com*
@@g9nnar I’m 52 and no I haven’t been diagnosed. My father passed of Dementia 2 yrs this Thanksgiving day of dementia (Alzheimer’s)
Blessings my dad was diagnosed last year with early onset Alzheimer and to watch his mind slowly slip away it is too much to bear😢❤️
God bless you and your dad sorry to hear that
My father is in the last stage. Be tough it will be hard it will be painful but unfortunately there is no cure and you need to love each second with him
Sweetie I'm having signs myself. I noticed a slow decline over the last year or so. I'm in a stage where my temper is out of control. I cannot seem to stop myself. Then I get depressed. I'm sleeping a lot too. I cared for many Alzheimers and dementia patients as a nurse. But never an early onset.
@@sharonbender880 I have been worried about it for years , I think if better go and see someone incase it’s something else . But this video is just like me. Even little jobs in the house get me so frustrated organising things seems harder . I get frustrated then angry and like you I find myself feeling depressed. My memory is shocking my kids used to joke but now they are worrying and saying are you sure your ok? I know it but it makes me angry. I’m also menopausal so I’m kinda hoping it’s that 🤞🏻 . I my grandparents both (one either side ) had dementia .
Weez L I saw the neurologist last week. She took a lot of bloodwork as well as setting up an mri and a sleep study . I'm also scheduled for intensive cognitive testing. I hope that you can do the same.
Brian, I hope you still have some time outside the fog when you can read this comment and know your video touched me. I hope you're getting lots of hugs from friends and family.
Oh what a painfully amazing story Brian just shared. My husband was just diagnosed with early onset at 57. I have watched him progress for the last several years to where he is today but never knew what it was, I just knew it was something. I even thought my husband might be suddenly doing things to intentionally drive me insane, only to learn he never knew he was doing these things & believed he was just fine. This breaks my heart bcz I too know what the outcome will be. It saddens me so many suffering are all alone. I couldn’t imagine leaving my husband after his diagnosis so I wonder why Brains wife left him. How heartbreaking. Ty for sharing this story.
my husband was diagnosed 4 years ago and he is still hanging in there and can still converse ok, but stumbles more with his words and I have to help him get dressed now. It is so hard to watch, and I have to take over everything. His vision was affected first, and he had his license taken away and now he cant read or write. I will stay with him until the end as I know he would do it for me. It is very heart breaking.
Brian I was extremely moved but extremely grateful for your video, I'm 47 and been suffering what I feel are severe memory problems since my early 20s 😪 its so difficult for me to explain my experience to doctors and family without them saying " you're worrying about nothing it's your age" no one listens, it's no longer as simple as memory it's cognitive thought, and certain moments I've taken as second nature all my life, the fog is a very good analogy, I started with a condition that affects my pituitary gland at around 21, all those years ago they pointed out a connection between what I have and alzhimers, alzhimers can cause what I have and what I have causes alzhimers, I been in morning for a long time I feel like I've had come to terms of the death of a loved one, but the person is me, I am exhausted from trying to keep hold of my things, I have the things I fear losing the most around me and still I am exhausted every day losing things which leads to forgetting what I'm doing, it's so bad I feared my family were hiding or steeling my things, I even believed that it must be paranormal, everything is exhausting, I miss hospital appointments all the time because of this no matter how I try my best to plan, they're very unforgiving takin me off lists after 2 or 3 failures to attend, I try to explain but there's no empathy which leaves tired of trying, guilty and feeling hopeless, my father started with similar problems at around 45, no doctor ever listened to a single word years of trying, when he passed at 73 the post mortem show that a huge amount of his brain had been taken by dementia/alzhimers, I would love if you ever have a little time to spare to be able to email you, I'm desperate, I can't recall my loved dear pets names, call my daughters by the wrong names, mid sentence I can become lost at sea, not just forgetting a word but an utter feeling confusion, not sure where I am what's going on, in the moment I don't know how to act and when I try to ground myself and see the confusion on others faces I feel embarrassed and feel I need to walk away 😪 I was a single parent to my daughter from the age of 2, now 27 we have a bond beyond words but because she is so upset she gets angry with me, doesn't accept what I say in terms of memory she acts angry but I know she just longs for the connection we had, I'm just so so tired now, hoping you can reach out to me, I completely understand if you can't respond I don't want to be an additional burden to you, bless you, I am so grateful for your contribution it's so important 🌟🌟🌟🌟🌟🌟🌟🙏
Overtime it gets easier. Keep your hopes up, technology and medicine are working fast to solve this!
i am not brian but i am going through this as well. it is scary. it is literally my worst nightmare to lose myself and you are right to use the term mourning in regards to that. i have no answers for your questions and have many more of my own but you aren't alone. i hope you are doing well.
@@zandrokos since I found this video my partner said she didn't love me and never had, financially destroyed me, domestic abuse team helped me escape as a vulnerable person, but I am now homeless and have no one to help me, I'm petrified and contemplating taking my ****, domestic abuse team did everything they could I've had to get a new GP, new memory clinic which will mean taking another few years, I can't see any future everything is black, I don't know how to get a home I've registered as homeless but hardly any contact, I've reached out to as many people as I can, I can't rent as people don't trust the insurance that provides my income from my previous job and because my ex partner forced bankruptcy, it's just a matter of time now never felt so alone, I find it impossible to learn new skills and can't understand what I need to do, there is no one to help, truth is no one wants me, it's an awful truth, suffered abuse from mum, well I've suffered for my 48 years, I don't believe those who say I'll be made to learn my lessons by living this again, people suffer and pass in obscurity all over the world, I wish it could be different, I will never know love and on top of this I am losing myself, started to fall now, hurt myself but really I just want to cry, I feel like a lost child 😭
I am 66 and was diagnosed about 6 years ago… initially MCI .. now progressed to Alzheimer’s … when you talk about what your end looks like.. it’s frightening as heck. I didn’t want to believe it. But I have done tons of research and found ways to slow the progression with natural resources. But it truly scares me. I have a wife and 3 kids. It’s truly a living HELL.. no one truly understands what we go through each and every single day. We never get a break.. never. I still do the grocery shopping.. just about 5 minutes from the house . You are right.. IT SUCKS!!!
May you please share the natural resources ?
I'm 40 and just had a baby 5 months ago. .. this is my life now. I think about suicide all day long.
@@manifestlove888I know this won’t help much, but there’s just been a new drug approved called docanemab that can slow progression by 40% by killing the exact proteins that build up in the brain. Now we have this, there will be an 100% cure in no time. I say this because my mother is at risk for early onset alzheimer’s and I’m 15 and have spent years of my life worrying myself sick about it. But there’s hope.
I wish videos and articles about cognitive decline were seen by more people.
Omg I remember watching you when I was little. Now I’m studying mental illnesses.
*I am 74-years, I was diagnosed with Alzheimer’s disease some years ago, I always like to use my experience in a positive way to educate others.. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. I support the Walk to End Alzheimer’s using several western medications but all to no avail. Homeocure Worldwide natural cure medicine did wonders. I have a wonderful family who also supported and guided me through the process. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, check: **homeocureworldwide.blogspot.com*
@@johnsonjack4611 please stop spamming. It's not okay to exploit people's vulnarability in order to make money out of them.
@@johnsonjack4611 Megkerestem a Márkus dr., és 2000 $ kér a gyógyításért ! Borzasztó, hogy kihasználják a beteg emberek helyzetét, ettől rondább dolog nem létezik, szégyelljék magukat !Még ilyenen is pénzt akarnak keresni !
@@johnsonjack4611 I have an aunt who'll be living with us for 3 years New Year's Eve with Dementia. She wakes up in a new world every day. I know she can't remember, but it gets frustrating. I want to be more empathetic. I wish this disease, like every disease in the world, didn't exist.
Thank you for this! My mother had dementia, vascular and Lewy body. I have been struggling myself now, and I'm very scared. In so many ways I don't feel like myself anymore. And I remember my mother saying that often. It's scary, and I feel so much for you. It's a very misunderstood brain disease. There are people would watch your video and not believe that you have dementia, because you sound too "normal." Of course, until you start explaining what is happening to you, which I think you've done an excellent job of that. They don't understand dementia does not happen overnight, rarely very quickly, and you have ups and downs from day to day week to week. They don't understand that you may seem or sound normal, but yet you're not at your own personal normal. But they would not have any way to know that unless they talk to you on a regular basis, or they live with you. A lot of people think of dementia as they have seen people in the last stages. It's amazing how many people are clueless about dementia. Also, it can show up differently in different people. I'm very happy you decided to use your illness as a platform to make awareness for other people! Your mother would be proud!
Can U tell me,if this affect arms
This needs more views.
I've watched many videos on this subject. This is the best frickin one I have ever seen. In the last 2 weeks when I started watching vids, I didn't have anyone say what it was like. I'm healthy at this point in time. But, I am always checking myself as the day goes by. Multi tasking, always doing things. Thank you so much for making this and putting it on KZhead. You made my day. Unlike your mother I have destroyed myself when younger. For what ever reason, I came out of a divorce, helped my friends mom pass with dignity in her home per her wishes. I'm helping people through the church, the list goes on. You amaze me in how you did this segment on alzheimers. Very well done. Much love Mark C.
Hey Mark, how are you doing?
@@sean3636 I'm doing real good. I'm going to care give my neighbor who is going to have a hip replacement. Was supposed to go to the Joint Class this morning 7-5-22 but low and behold a fire broke out at 3pm yesterday heading this way. Started in the same place as in 2015 which was called the Butte fire. This time it's called the Electra fire. Glad I can still help people. This world needs help. I have so many ideas flowing in my brain. Thanks for asking Sean. Life goes on. 😉
It is now almost 2023 and I wonder how he is doing.
Please keep posting if you can...so many of us need this for reference , perspective and a sense of feeling that someone else knows and allows us to see it. ❤️
How are things?
What a great man with a beautiful character. I feel so bad for him. It hit someone who clearly doesn't deserve it. This video was very hard for me to watch. Because as being a male "nurse" in a retirement home for years I exactly know, what this people are going through. And believe me - forgetting is just one small aspect. You will lose the person. What do I mean by that? Well, this guy who just talked to us, will soon no longer exist. It will be like him being long dead, even though he is still with us. And still this isn't the full picture. It's tragic
No one deserves it
This was profoundly moving to watch yet it inspired a sense of hope. This man shows a tremendous amount of strength and determination, despite being afflicted with something as grave Alzheimer’s. All the very best to him.
Brian I wish there was more we could do to lift the fog for all who are suffering dementia. For your mum and mine and everyone else's, I will continue to act and continue to raise awareness alongside you. Keep those fog lights on and continue to tell it as it is. So valuable to us all.
Thank you Brian for so bravely sharing with us what it's like to live in a fog. The anxiousness, the devastation of living in such a dark place is unimaginable and in your words 'there is no better way to know Alzheimer's than to hear from someone who has it'. I think this is the case with many things in life that unless you've been down that person's track you can't be expected to understand. I wish too that more people could see this road which you are sharing.
Very well said Joan.
Brian god bless you and I will be praying for you and anyone that has early onset Dementia.My wife of 14; years of marriage at the age of 49 was just diagnosed 3 weeks ago .Its been so hard for me because my wife keeps telling me she doesn’t want me to be alone..I keep telling her I know but I will be ok because I have so much love and support from my family and friends
Sorry to hear that.
I pray all is well with you all
Brian, thank you for sharing your experience. My dad has early onset AD and what you are saying has made me understand a lot better how he is feeling. Thank your for your courage.
This is sad and beautiful at the same time. Thank you for this
Thank you for making this video 🥸
Beautifully done Brian!
Thanks for sharing...I feel you.
Brian thank you so much for sharing your story. It really helped me understand what Alzheimer’s disease is all about. I hope you are doing well 😌
Thank you for sharing, God Bless
Brian, how are you today? Have any treatments you’ve used helped you? I wish I could talk with you. I’m worried about myself. Dementia runs strong in my family. I’m losing my mother to it now. But she’s 84. I’m 59 and having weird slips. I’m too afraid to go to my doctor.
Thank you for your courage and being the voice.
Thank you for sharing this, you are so brave and inspiring. I feel so touched watching this as a 40 year old who is terrified I have early onset. God bless you 🙏
So how are you kerry?
@@johns9779 Hi John I am ok...still on a decline though I think! It's scary. How are you?
@@kerryoconnor7489 im hanging in there. What makes you think you are on a decline?
Thank you for your story. Much love to you♥️
Thank you for sharing, truly inspirational. I showed Yr video to my husband Rodney who is living with YOD Alzeimhers. To know and to hear Yr story reminds him that he is not alone and he can still continue to live his life one day at a time the way he is able to. So long he enjoys doing it. God Bless You.
love this , thanks for making this video
Keep on, keepin' on...and thank you for sharing your thoughts and experiences to help us understand.
Bless this kind hearted soul. Brian you’re stronger than you know.
Our prayers are with you Brian. Godspeed.
you are an inspiration!!!!! thank you for being so positive and brave!!!!!!
Thanks for Sharing because iam Learning alot.Hugs from Germany
Also you’re so strong Brian ❤️
you just told my story including our mothers. My mom died of Alzheimer's... I am so so scared coz I have to work to be able to survive
A very powerful and moving video. Made me stop, listen hard, and focus on first person details of what many my age dread so much.
Sending love to you Brian . . . . from Australia.
My eyes were full of tears as I was asked to watch the video and report for my course credit. If there is a preventative way, we should because most of my research teaches me so many lessons like this. Brian, I wish I was close to you to help you out with the things you could not do by yourself. But I am far, am in Ghana.
Such a sad and horrible disease I worked in aged care for 30 years hope there is a cure or some way to slow it down 😢
wow, this is so . hit home for me . thank you
God bless u ❤️
I’m going to be 40 this year and I’m really worried about my brain function. I forget what I’m saying, forget what I’m doing, forget what word I’m trying to say. My doctor thinks it could be adhd. But I haven’t always had this problem.
I get that
Thank you Brian.
My love is with you brother 💙
My husband has alzheimers but has absolutely no idea that there is a problem this makes it so much more difficult for me
Thank you for sharing your thoughts Brian. I am living with a husband who has Dementia, which is difficult for me, who tries so hard to have more patience with him, but more for him I assume. I often wonder what he thinks how he sees his situation from inside. Your video gives me a much better understanding, of the word "Blur" he often uses. I need to do much better trying to understand him. Caregivers need more help. It needs to be more out there. It seems to be hidden for us.
This might be a bit personal. But I noticed you said you are living with A husband. To me it sounds like he already lost so much of his personality that you couldn't view him as the man you love, but that at this stage your husband is long gone
Thank you how brave you are I hope you find the strength and courage to fight. They say there’s a cure I wish it comes soon far too many seem to be struck with sad situation. God bless and keep you safe
*I am 74-years, I was diagnosed with Alzheimer’s disease some years ago, I always like to use my experience in a positive way to educate others.. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. I support the Walk to End Alzheimer’s using several western medications but all to no avail. Homeocure Worldwide natural cure medicine did wonders. I have a wonderful family who also supported and guided me through the process. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, check: **homeocureworldwide.blogspot.com*
@@johnsonjack4611 Thank you so much for your encouraging reply you are indeed lucky to have a supportive family that, makes all the difference. You are right sharing experiences is a problem halved. I wish you all the best for the future
I lost my Mum to EOA 3 months ago. It's a horrific disease.
A lot of us have been through this with somebody we love. I went through with my grandmother I went through with my dad and I'm fearing I'm about to go through with my mother it's a thief it's the long goodbye but Brian's right you got to look for the good you got to look for the humor and you just got to love and understand and never ask them hey do you remember? Just look forward love them and lower the bar lower your expectations and just love them sit with them hold their hand just be there.
if i ever get diagnosed with alzheimers, I move to a state with assisted suicide. Not gonna make my long horrible decline which won't actually bother me a bit, but be oh so horrible for everybody else
I was looking into it and as far as I know assisted suicide is very strict, apparently they only do it if it is terminal within 6 months, and nonvoluntary euthanasia isnt legal anywhere in the world (so you can't even make it known earlier in your life that you want to be killed when you start to decline). I'm honestly just gonna buy a gun and shoot myself after I consistently start forgetting small shit. Hopefully at that point I still have most of my memories and my sense of identity, that way I can die with some dignity.
@@blueyosh43 That is something you can't take back. In my early to mid 40s when I had some major cognitive decline. Thought it was early onset dementia. Things as simple as the alphabet and basic words and the fear and confusion when you have no idea where you are while driving down a road you have gone down your entire life ------ these things are terrifying. If I had killed myself I would have cheated myself and my family out of years of life and living. I would have cheated my granddaughter out of knowing her Nanny. It turned out I had a tumor that was easily removed. But had I given in, my kids wouldn't have a mother, my g-baby wouldn't have a grandmother. They would have nothing but a void where I belong. Nothing can take my place. My dad has Parkinson's and is suffering cognitive decline. He is only 71. It is especially hard for men I think, I have a heart for people who suffer from Alzheimer's or dementia, they will not get better. I had a cure. And I am unbelievably grateful that I did. So intake extra time with those who need it, and I try not to do it grudgingly. I understand what it feels like to be utterly dazed and confused. I also know that in those not so foggy moments there can be great joy. Then again, I also believe in a Creator Who chose when it was my time to appear on this earth and will choose when it is my time to disappear from it. Life is never guaranteed to be easy. In fact, the very essence of life is far from easy. But it is worth it. So worth it. No matter how rough your beginning, or your end. Some might say that's selfish....so be it.
i already wanna blow my head off from chronic pain
@@roofieandraggy16 how are you? I pray that a cure for your pain is found
This is a great analogy... I see "this fog" in my husband.
Brian, You did a wonderful job with this video. Very informative. So honest and so authentic. At the end it says, early diagnosis can help. I am not sure I believe that. How does it help? Right now there are no answers to this disease. No way to stop it. No way to prevent it. No way to slow it down.
It will slow down Alzheimer if you eat healthy, exercise, make your brain to study/learn new things, sleep well, and socialize. These activities will slow down Alzheimer. It will not stop, but it will slow down and will make you live independent longer. That’s why it said there is help if detect it early as you can prevent it from speeding up. When a person knew that they have early Alzheimer, they will worry less about making money and focus more on their health by quitting their stressful job and get a more relax job so they could sleep better. More money will not help if you loose your independent too early in life.
Ardra, I’ll admit, I just watched this video for the first time. Sorry. I’m a skeptic and a bit of a snob. As I write this, I’m lounging in white jeans and a vintage Gap Rodarte white shirt. I don’t call it a cane, it’s a walking stick. When I started using a walking stick, during my swan song creative role at the legendary Knickerbocker Hotel, in 2014. The walking stick you held, reminded me of one I used to navigate those hallowed halls. I enjoyed your video and love the shoot you planned. Bravo
*I am 74-years, I was diagnosed with Alzheimer’s disease some years ago, I always like to use my experience in a positive way to educate others.. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. I support the Walk to End Alzheimer’s using several western medications but all to no avail. Homeocure Worldwide natural cure medicine did wonders. I have a wonderful family who also supported and guided me through the process. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, check: **homeocureworldwide.blogspot.com*
Well made.. very sad for this mad. No one wants to go into a fog and not come out of it..
My alexa went off 3 times in this video
But still I wonder how people can forget everyday things, yet remember the diagnosis.
Yeah it’s strange... but it’s because it’s not necessarily in order... you forget the simple thing and you remember the more important moments at first... sorta like how sometimes I forget to brush my teeth if I’m really tired. But I still remember I SHOULD brush my teeth regularly. It’s similar... you forget the things most people just do out of habit. And you remember the major things... until eventually you forget those... it’s a real messed up cycle of confusion and aimless thought from what I’ve seen
*I am 74-years, I was diagnosed with Alzheimer’s disease some years ago, I always like to use my experience in a positive way to educate others.. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. I support the Walk to End Alzheimer’s using several western medications but all to no avail. Homeocure Worldwide natural cure medicine did wonders. I have a wonderful family who also supported and guided me through the process. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, check: **homeocureworldwide.blogspot.com*
@@sekirosepuku840 thank you for the answer.
I’m only 28 and I’ve been going through this since high school. I’m not sure if it’s trauma, early onset of Alzheimer’s, my ADHD, anxiety, or my abuse of alcohol at a really young age to deal with my trauma and abuse. (I’m over 3 years sober but I’m scared). My family has a history of alcohol abuse and dementia/Alzheimer’s disease and i remember since i was 9 I truly believe that this is my fate.
💐🙏
The last couple of decades they have quadrupled the vaccines for babies up to old age. These vaccines have aluminium in them which was found in the brains of people with Alzhiemers. Aluminium also found in underarm deodorants and perfumes etc. Once Aluminium enters the body it can not be excreted so it builds up in the body. Please be careful what you put in your body. Look at labels and read what they contain. All the best
👍👍🙏🙏😘❤️
Nothing is written.please don't think that
I just finished listening to Everywhere at the End of Time... has anyone heard it? Alzheimers has got to be the most terrifying thing a person can experience.
I’ve just finished listening to it
that album messed me up 3 years ago and I never recovered
I’m 3 months from turning 44. I’m experiencing the fog too. I’m running into “ your too young” from doctors. My mother and her mother both died from the effects of Alzheimer’s disease. Hmm where to turn..
Very best wishes that's it's only a variant of covid.
I'm going through the same thing at 40 .. doctors won't hear me. Only gas lighting.
@@sidstovell2177 mine started with covid ..
I finally figured out it's mold exposure.. go look up the symptoms.. its crazy.
@@manifestlove888 how are you now
My god........🤦🏼♂️..........😣😢
I'm so sorry . My Grandmother had the best memory of any person I've ever known. She was diagnosed alzheimers at 86 but I knew for a few years that something was wrong because she told me she wasn't going to be able to send out Birthday and Christmas cards anymore because she couldn't remember everyone's names anymore. Oh how I wish I had been a CNA long before her diagnosis. Instead I knew nothing but I called her across country once a week. She would repeat my name when I told her who I was but in her physical body she did not know me, my Grandmother and I were the closest of all grandkids and great grandkids. Now I'm in cognitive decline at 55, it started over a year and half ago when I thought I might gave Lyme disease but it has significantly worsened the past 6 months . My anger is put of control I cannot calm myself down anymore and I can't understand it. I had a fast appt with the neurologist but she cancelled the day before now I have to wait until January 1st. I'm calling my GP back to ask for help.
im so glad i watched this. long covid broke me. i was already on this path but last few times i got covid my brain broke. or my mind or whatever. the fog for me is lasting longer and longer sadly.
It starts off very insidiously. You put a pot of soup on the range and go into the backyard to rake leaves. 30 or 40 mins later you go back in to use the restroom. When you open the door you are overwhelmed with smoke and the smoke alarm is on. I was in my early 40's. No incidences until the last 2 years or do. Am 64.5. Writing code does not help. The woman who birthed me (she was a bit of a witch) died from it at 87. Now I am getting her final gift. I had an impeccable memory all my life...time to write lists. Then ya lose the lists - at least for a day or 2. But in the interim you had to create a new one....and it has half the items your original list had. So now I have pads of paper planted about. I use my phone for lists to. And I have lots of reminders! Our phones are our life!
John Mann, lead singer of the Canadian band Spirit of the West died of early onset dementia and he described his worsening symptoms exactly the same way, as descending into a white fog. RIP John 😢
I wish I didn't identify with this video 100%, but I wish even more than my providers over the past couple of years haven't done anything except give me that four-hour neuropsychological evaluation as a starting place. In the first 85 seconds of this video, the guy completely sums up what I sound like, so I've forwarded it to my medical team. Maybe they'll finally get it. What really sucks is that my grandmother had it; I hope my sons don't get it.
Funny, that’s exactly how my mom described it to me when she first noticed her descent into Alzheimer’s. She was a school teacher for 35ys.
that was so compelling my husband will not admit he has it....I wish he would and somehow it would make me feel better
How are you doing today Brian?
There was a wonderful movie called “My Father” Everyone should see it. Anthony Hopkins. About Dementia.
I want to know what his experience is now? Has medication slowed it down? Hope? Or just decline?
How can it help to know, doesn't make sense😢
Lord help us.
Great video, I can relate to all the symptoms here. I'm a 35year old who's had cancer twice with strong chemo regime that finished in November 2014, since then my memory has been on a downhill decline suffering with terrible short term memory loss, its just blank not even fuzzy.. BLANK. like what the hell. recently went to a memory clinic for an MRI on my head - waiting on results from that, if its clear I'm going to chase for a PET or SPECT scan as I need to know what is causing my symptoms, I want to go back to university and study but there is no point currently as can't spell properly anymore, or remember, and recently I have a stuttering and also when I say stuff its muddled up. strange. I had a MoCa exam and they said I scored 16 and have moderate cognitive impairment, then I was sent for an MRI. Not sure what the results will say, but I don't care what the outcome is, what will be will be, I just need to know so I can adapt, get support. Thanks Jenny
results?
Early-onset Alzheimer's can be improved by good sleep. Because Alzheimer's is caused by oxidative damages in the brain. Good sleep can repair brain damages.
I haven't slept through a night in 3 years. I'm having cognitive decline for about a year and half. Getting worse. I have sleep meds but they dont always help. Wake at least 4 xs a night, some are no sleep at all
@@sharonbender880how are you now?
I had no idea how many people it kills. And we don't talk about it nearly enough. I think most people have an unsatisfactory understanding of just what Alzheimer's Disease even is.
I carry the gene for alzhiemers. I'm 48y.o. and the women in my bloodline go til they're in their late 90s usually. I either have some time bfor it kicks in or, I'm really gonna suffer for a long, long time. Idw this. It's bad.
Dionne Lewis so you are the only one in your Family?
It's not 100 percent. there are other factors. Live your life.
Who is helping this man?
MY STORY: My mother has early onset Alzheimer's that turns out is genetic, last year at only 28 I found out, I have a 50% chance of getting it too 😕 it has been devastating but I'm doing my best to cope. *Started a KZhead channel about my journey to cope, and to connect with others who are going through hard times and to use the platform to potentially help or inspire others. *Would love genuine support for my channel! Trying my best to build it up. Please subscribe, you don't have to have your notifications on if you don't want. 🙏 Would appreciate the help in these hard times. ❤️ Being able to eventually monetize my channel would help make life a little better as well.
Hi, early onset Alzheimer’s runs in my family too. My mother has a 50% chance of developing it in a few years. I’ve been worrying myself sick about it since I was 13 and I’m almost 16 now. But I don’t think there’s any point in worrying any more because it won’t help anything. There’s also a new drug being produced called docanemab that slows progression by 40% by directly killing the proteins that form plaques in the brain. If scientists can do this, there should be a 100% cure in no time. I wish you all the best.
I can relate exactly , what you mean, / weird thing is I get good days & bad,. I gave up reading books dozens of years ago , because ide read 3 or 4 paragraphs of it (. In evening, ), next day couldn’t remember name of book Or very vague story line,. Ground hog day,.”… I’d work in an area for 2ta 3 years , private customers ,. Building work etc , learn names of people/rds , buildings etc ,.. if I was away for say 6 months to a year ,, an returned to area , it was like I’d. Ever been there ,. … I’d be in town , an people would say , nice fence job last year grant , & lounge is looking great 😊, I’d say yea thanks , ( but think who are they … fogs a good way ,. But I find a lot of mornings ,. Are like having a bad hang over , but wig out the head. Ache,., 🤷♀️, & be confused all day ., I was diagnosed with Nero degenerative dementia in 2017,. …. I had a test recently, ish. & came back normal,. I feel my memory is getting worse ,. & have a lot of zombie days .. but people say ,,, ahh your ok I forget things too .. 🤷♀️ I’ve learnt to live with it now , and write as much as poss, down , etc etc ..
Ps: I’m 61 now .
thank you for sharing. the theatrical editing seemed unnecessary.
Let's Go Flying.... Seriously???
@@kayehughes6112 yes, i'm over instagram age. highly unnecessary.
@@coffeeNTrees I agree with you.
@@kayehughes6112 yes, seriously. thank you for adding so much to the discussion.
How are you doing today?
I am 54 years old autistic woman,I have early Alzheimer’s,since I was 14 years old I develop mild cognitive impairment disabilities ,it put me in a cage of fog worse than my learning disabilities from autism,for 11 years i fought with healthcare professionals and after in detail research done by me day and night (I have insomnia for 4 decades,it is a horrible feeling to not be able to sleep )I found out ,I am autistic,and have multiple chronic rare diseases ,The 🧬 DNA proved what I was told to the so called “medical professionals “ my symptoms which they dismissed,like what the hell are you in my body to know what is going on with me !!!!! No , Patient is the expert and the witness to her/his symptoms not the so called large pockets of $$$$$ 💵 doctors 🥼,my Alzheimer’s symptoms are 9/ 10 with mild start ,I am in the fog ,I forgot my past ,I do remember very few events ,I remember in the fog or I don’t remember at all ,the words are hardly coming out of my mouth 👄 if I am stressed out 😰,the only therapy for me is serenity, gratitude, empathy, compassion,I feel the energy coming out of your body like is mine ,I have so many weird feeling .I am trying to beat this disease with talking,researching,to make my neurons in the brain 🧠 to have time to heal ,education,information is beneficial to Alzheimer’s,one thing that is bothering me is I cannot multitasking,if you interrupt me I forget what I want to say,,is so much to talk about Alzheimer’s,I am going to write a book about my autism that is a correlation with my Alzheimer’s,on Amazon my new book ever ,I couldn’t even put few words together,I Wrote A Book,I am so proud of myself 📚 The Children of the Universe ,Ellen Luca
I feel I have to fight just to keep going everyday have brain fog, fatigue from lupus, RA, Arthritis skin for now so unable to do gardening or sit in the garden sunlight holidays make me 10 times worse flare up have to try and keep going looking after the kids missing out on everyday life now i have to look after grandma with this i know how it feels already saying goodbye to yourself i have had no empathy from her or my husband over the last 15 plus years life is so hard can someone tell me if she can drive still only just found out she only goes 10 minutes to local supermarket ??husband phoning her up every single day for the last 3 years on zoom has bot helped im aware of it in the background never have any peace for myself
❤❤❤
He said “my ex wife”😢. How can you divorce your spouse while they’re down like this. Some people can be do heartless and disloyal. Those bows don’t mean nothing to some people.
U do have a sense of humor .keep on trucking.with gods help do u still have a wife to help u through this ?
🙏❤️🙏❤️🙏
about the only thing i feel lucky about at 75 is that this has not happened to me....yet anyway
He’s in his child progress at Disney.
I love how descriptive he his. I suffer too in having a mom and uncle and great uncle. Your never fighting alone ❤
I love marbles.
Brian are you still there . I was just got diagnosed with Alzheimer’s and it feels like a bomb exploded in my brain. I’m 68 but a young 68 , still working , I am a physical therapist working with Alzheimer’s patient and their family for last 20 some years , now I don’t know what to do I can teach my family but don’t know what am I supposed to do. Please be there and tell me what to do.
Funny, me too. During WWII, when I was a kid, marbles became gold. An aggie, a diamond, as none were being manufactured. In retirement, I saw a little sack of marbles in a store and bought them. Treasure!!
I can't help but pre-judge his "ex" wife.
💙💚💜
I think I’m starting to not enjoy this anymore!
I’m sorry and I’m sorry your wife left.
Dear Brian, I am experiencing memory loss these days. It could be for various reasons. God Only Knows.. Thank you for sharing your experience.
Pls go see your primary care doc. It could be something that can be corrected - infection, vitamin deficiency, lack of sleep, etc.
*I am 74-years, I was diagnosed with Alzheimer’s disease some years ago, I always like to use my experience in a positive way to educate others.. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. I support the Walk to End Alzheimer’s using several western medications but all to no avail. Homeocure Worldwide natural cure medicine did wonders. I have a wonderful family who also supported and guided me through the process. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, check: **homeocureworldwide.blogspot.com*