I'm 18 & Only 4ft 1" - But Dwarfism Doesn't Define Me | BORN DIFFERENT

2024 ж. 19 Сәу.
28 847 Рет қаралды

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LAST TIME "one in a million" Levi featured on Born Different, he was 11 years old. Now, having just turned 18, truly returned to catch up with Levi and his parents, Dona and Joseph. Born with an ultra-rare form of dwarfism called Jansen's metaphyseal chondrodysplasia (JMC), Levi's bones throughout his body are affected - as mom Dona describes it: "The bones grow what we call 'wonky'." As a result, in the years since we last saw Levi, he has had major surgeries to his spine and legs that were "painful and hard." One of the surgeries even involved breaking his femurs to fit metal rods and fuse his legs straight. Levi has faced many months of gruelling post-surgery rehabilitation and even had to learn to walk again "3 or 4 times." But Levi has overcome all these challenges and an upcoming drug trial offers renewed hope for his future and the future of other people living with JMC. While he waits, he is busy enjoying the outdoors - and, being a keen fisherman, a GoFundMe has been set up to help him achieve his dream of catching a fish in each of the 50 US states. Despite the "degenerative" nature of Levi's condition, his dad, Joseph, points to the fact that "he never complains, he just ploughs on through... And usually with a smile on his face." And you would not bet against Levi's defiant promise to "keep on pushing" - as Dona states: "He's a fighter. This condition probably picked the strongest kid to head up on."
Donate to Levi's GoFundMe: gofund.me/b9bed96a
Follow Levi:
/ littlelevi
/ golittlelevi
/ golittlelevi
/ littlelevi
Videographer: Rajah Samaroo
Producers: Tom Buckman, Kim Nguyen, Courtney Buabeng, Emika Berry 
Editor: Alex Saunders
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Пікірлер
  • If you enjoyed this film, you might like to watch the first film we made about Levi when he was 11: kzhead.info/sun/ma1tdc-sr3iGa6c/bejne.html

    @truly-channel@truly-channel23 күн бұрын
  • Little guy with huge bravery You go Levi!

    @sproutsrevil6508@sproutsrevil650825 күн бұрын
  • This family is truly amazing. These are the kind of videos Im sure many of us miss seeing on this channel

    @Kondohgirl@Kondohgirl24 күн бұрын
  • I can’t believe there is so little research being done on this form of dwarfism. There just isn’t enough research money to go around. I was happy to see an update on this young man and observe his great attitude.

    @debbietroop5764@debbietroop576424 күн бұрын
    • Maybe its hard to do research on this form because there is so few people having it..i dont know!

      @ginparadise@ginparadise23 күн бұрын
    • At this point there is only money to support wars, what a world 😢

      @shineright5818@shineright581822 күн бұрын
  • Brave MAN ❤❤... Keep it up Brother!!! BLESSINGS ❤ ❤👍❤❤

    @patriayvida4209@patriayvida420925 күн бұрын
  • stay strong young man

    @I_Of_Providence@I_Of_Providence25 күн бұрын
  • I don't know what caused me to be small but I found out that I have a rare genetic disorder called Williams syndrome in my early thirty's and I'm still alive at the age of56 and yes it definitely doesn't define us whatsoever and I'm so happy to see that you are doing well with it 😊

    @Ana-ju3mt@Ana-ju3mt24 күн бұрын
  • God bless him & his family! He has a great joyful attitude. What a wonderful family facing adversity together!

    @kimfm2713@kimfm271325 күн бұрын
  • So great to see you again Levi! Good luck on your fishing expeditions 💪

    @JackieDW@JackieDW24 күн бұрын
  • Wow it's been a while since he appeared.He looks much better.I hope the best for his life.I hope he lives a happy healthy life

    @sweetafr7820@sweetafr782024 күн бұрын
  • When he say,”morning already.”that hit home!😢😊

    @jennlealor1524@jennlealor152425 күн бұрын
  • Thank you being so strong

    @cherryvanessacollins3178@cherryvanessacollins317825 күн бұрын
  • You are wery Brave! Those kind of surgeries are horrible😕

    @annika2272@annika227225 күн бұрын
  • Dona and Levi - you have grown into a terrific young man - just as you were a terrific young boy when I first met you both. As always my heart is with you. You are both one of a kind - undefinable for sure. Ann McGee

    @user-xw6oh6jc2q@user-xw6oh6jc2q22 күн бұрын
  • he’s 18 and already got that old dad vibes 🤣 champ got that phone hooked on his side

    @coffinb3d@coffinb3d18 күн бұрын
  • What an inspirational young man. I was born with Muscular Dystrophy and wasn't diagnosed till age 30.

    @CarolynLong-ko6de@CarolynLong-ko6de22 күн бұрын
  • Amazing truly amazing 😊

    @thadmachia9873@thadmachia987325 күн бұрын
  • What a courageous man blessed with supportive parents. I wish this family the most beautiful life. ❤

    @Kristinnnnnnlaughs@Kristinnnnnnlaughs18 күн бұрын
  • Levi is an absolute champion!

    @sbug2705@sbug270519 күн бұрын
  • What a beautiful & courageous young man with wonderful loving parents. I wish him a bright sparkling future and great happiness! He deserves the best!

    @taramatheis1451@taramatheis145124 күн бұрын
  • Hi Levi, I love your sense of humor and your brave spirit! So sorry you have to go through all this, and wish all of life's blessing for you and your family.. Greetings from Australia. ☀🌻🙏

    @forestcottage7321@forestcottage732110 күн бұрын
  • Levi, you are amazing. I love your attitude; and I love your sense of adventure.

    @michaelsadams524@michaelsadams52424 күн бұрын
  • "We are all just people" 🖤 (side note, I loved seeing you play Uno as a family, that's one of my (mentally disabled) children's favourite games to play as a family)

    @charlottegrace6656@charlottegrace665625 күн бұрын
  • Be strong 💪

    @phototheka@phototheka25 күн бұрын
  • He is so amazing and brave and so proud of him and so special remarkable and strong strength and unbelievable person ❤❤😊😊

    @laurenschenck5355@laurenschenck535525 күн бұрын
  • Bless him 💙💙💙💙✨✨✨✨

    @MissTJ516@MissTJ51617 күн бұрын
  • What wonderful people. Wow.

    @kreeves122@kreeves12223 күн бұрын
  • We all are God's children no matter it was right or wrong sick or well tall or short fat or thin God bless you❤

    @debrawronker4932@debrawronker493224 күн бұрын
    • I wish everyone thought like this 😢

      @coolchannelize15@coolchannelize1515 күн бұрын
  • His dad looks like Tom Arnold 😂

    @TheSkeletor612@TheSkeletor61224 күн бұрын
    • And he likes to go fishin’ not fishing 😆

      @andreamaria85@andreamaria8524 күн бұрын
  • Go Catch Them Fish!!

    @dan-othemando7958@dan-othemando795825 күн бұрын
  • I remember his first video bless 🙏😇🙏

    @EllsworthJohnson-se6he@EllsworthJohnson-se6he22 күн бұрын
  • Levi is a big, brave guy dealing with a small body. If I were young, Levi's age, I would ask him to take me fishing. Very cool guy!

    @karyannfontaine8757@karyannfontaine87579 күн бұрын
  • Nice Video 💕❤️💕❤️❤️❤️❤️❤️

    @nicholashayes8373@nicholashayes837324 күн бұрын
  • he is adorable and he can cook!!

    @Wisdom8485@Wisdom848523 күн бұрын
  • He’s adorable!!

    @timdaugherty5921@timdaugherty592125 күн бұрын
    • Maybe say something that doesn't sound d erogatory

      @Diamondr11Blue@Diamondr11Blue25 күн бұрын
    • I don't think it's bad it's better than being called ugly 😢

      @coolchannelize15@coolchannelize1515 күн бұрын
  • God bless him and his family ❤ Wish you the best

    @andreinaplata5176@andreinaplata517625 күн бұрын
  • Levi has the best attitude, he's welcome in Illinois. I'll show him where the fish are. 😊

    @jonathancairy8300@jonathancairy830024 күн бұрын
  • ❤❤❤❤❤

    @tyreesetjjoyner1995@tyreesetjjoyner199525 күн бұрын
  • I have knock knees which makes my knees bend in idk if that’s bad

    @JunaidWolf3@JunaidWolf324 күн бұрын
  • Nicole shavoniane Rainsford born Different

    @oneisharanford@oneisharanford25 күн бұрын
  • levi ackerman

    @ukcutuzen5054@ukcutuzen505425 күн бұрын
  • If you’re ever in California I’ve got the best fishing spots right lines brother

    @devaughnrichardson6576@devaughnrichardson65765 күн бұрын
  • Oompaloompa oopadeedo I got a bad feeling about you

    @user-ym5hz5wf4v@user-ym5hz5wf4vКүн бұрын
  • 👍

    @Neil-ru7kw@Neil-ru7kw23 күн бұрын
  • Levi you are AMAZING 😻 OMG i'm so ready to be friends with you in real lifeeeeee!!!

    @stephanies.2156@stephanies.215624 күн бұрын
  • why doesn't blud have a pillow like what the sigma

    @ZubekVR@ZubekVR7 күн бұрын
  • Levi, wake up to midnight Sonata, please 🙏 😅

    @winros@winros22 күн бұрын
  • I'm all for helping Levi to see the more of the world but funding the whole family's vacays is asking for allot with what's going on right now in the world.

    @taraleemoore5199@taraleemoore519923 күн бұрын
  • 911 we got an emergency

    @Diamondr11Blue@Diamondr11Blue25 күн бұрын
  • Better show like this than promote lagibete

    @Kane_2001@Kane_200125 күн бұрын
    • Can I ask what is lagibete?

      @NyxyNoo@NyxyNoo4 күн бұрын
  • Nicole brave little man womanizer this Nicole shavoniane Thomas Rainford thigpen 🎉

    @oneisharanford@oneisharanford25 күн бұрын
    • What

      @Diamondr11Blue@Diamondr11Blue25 күн бұрын
    • the

      @thefastcommenter7774@thefastcommenter77746 күн бұрын
  • Please post more Lesbians On please please 💕❤️❤️❤️❤️❤️❤️

    @nicholashayes8373@nicholashayes837324 күн бұрын
  • Doesn't define you... and here you are doing a video talking about it. Guess it defines you a little bit unless why care to do this?

    @jbdmb@jbdmb25 күн бұрын
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