Chronic Illness Meme Review!! Do you have a chronic illness? If so, let's have a laugh together.
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The views expressed in this video are my own and do not reflect the views of Mount Sinai Hospital.
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WHAT’S EHLERS-DANLOS SYNDROME?
The Ehlers-Danlos Syndromes (EDS) are a group of more than 13 genetic connective tissue disorders that affect the joints and ligaments, blood vessels, gastrointestinal tract, and autonomic nervous system, among others. The most common type of EDS is hypermobile EDS (hEDS), which used to be known at type III. Some of the most common symptoms and co-morbidities of hEDS include chronic joint pain, joint instability and dislocations, dysautonomia, and GI tract dysmotility.
MORE INFO ABOUT EDS:
🧬 www.ehlers-danlos.com/eds-types/
🧬 bit.ly/2N95xTE
MORE INFO ABOUT POTS:
💓 www.potsuk.org/what_is_pots2
❤️ cle.clinic/2p1lByR
MORE INFO ABOUT GASTROPARESIS:
💚 mayocl.in/2BRQTuR
MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
🤍 bit.ly/2MLUYXI
FTC Disclaimer: This is not a sponsored video.
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"I have chronic pain." "I hope you get better!" "Well I can't, cause EDS can't be cured." "Have hope!" WHAT PART OF CHRONIC DO PEOPLE NOT UNDERSTAND??!?
Cocianicat I say- blessed but I need a little help today.
I have mast cell. My aunt who's a nurse is like God will heal you. And literally invalidates everything. And then she's like I was thinking about taking you and a bunch of cousins to Mexico. And I'm like I'm dying. I haven't been able to eat in a week because every time I eat my body is like DIE! But yeah let's go to Mexico. Also I'm 14 my mom would not be cool with that. She's always like Jesus will heal you.
@@Katherine-mj8sw hhfhrhrhdhf oh my god and she's a nurse?? 😭
@@caterinaaaaaa Yeah, it's really weird when not even hospital staff understand the meaning of chronic... I was at a day ward in a psychiatric hospital (I have bipolar, ADHD and other chronic things for 20+ years), and I talked about how happy I was that my doctor that's so good is still young, because then I can have her for a long time of my life. I was planning my future and feeling secure with her by my side. The stupid nurse at the day ward was instead saying: "Oh, don't think you're gonna need someone for the rest of your life. Let's not hope that, let's be positive." I didn't even know what to say, so I was just quiet and got anxiety and eventually walked away. It was 3 years ago, but I still remember it. Like... What part about chronic, incurable illnesses didn't he understand? Just because I LOOK okay when I'm around people, because I make a tremendous EFFORT, it doesn't mean my problems go away. Eventually I had to stop going to the day ward, because I got too tired from it, being there 3 times a week. Didn't have enough spoons to endure my treatment, which is ironic. And still I don't have anything physically wrong with me, it's the fatigue from my mental disorders. I hate being too ill to access treatment, it's absolutely not the first nor the last time... 🙁
My Mom tells me all the time..."Okay you've been "SICK" long enough!!! Don't you think you should get back to work stop looking on WebMD and you wont "FEEL" bad anymore!!!" I don't talk to my Mom anymore about my health concerns for this reason!! It's sad but it's my reality!!!
Having an autoimmune disease is like having eyelashes in your eye. The thing that's supposed to protect you is the thing giving you most grief
Wow....this is so deep and profound....I am writing a song about my chronic illness. Do you mind if I use a variation of this in my lyrics?
I was thinking "the very thing that was there to protect me hurt me, it gives the greatest grief when it was supposed to give me peace"
"You are to young for pain!" "Really? Do you think it will stop if I show my joints my birth certificate?"
Me going to the doctor to discuss 10 issues Doctor: "So how are things going?" Me: "Ok." Doctor: "Alright, test results and vitals look good. Let's get you scheduled for a follow up in 4 to 6 weeks." Me: 😥
William Lesco same
I always feel so stressed out, so unless I write down everything I need to talk about, I just leave unsatisfied because social pressure makes me feel like I should respond with "good, thanks" and not "I mean my joints are on fire, but I've been worse" 😅😂🤣
This happens every time I go to the doctor honestly
Same
ME: *Hobbles in barely able to walk, covered in bruises, wearing bandages and splints* DOCTOR: Your scans and blood test came back, you’re perfectly healthy. Being a Zebra sucks. Having negative test results does not mean that we are happy and healthy, it’s a limitation of the testing. One day they will have tests for us 🥲.
A tip for the how are you greeting: “I’ve been better” is my go to answer at the doctors haha
Savannah Bickell great advice! I’ve also been known to reply with “I’ve definitely had better days”
Yeah, I like to say, “I have seen better days”
I tend to pause , then say “umm,, not so good . Or meh 😅 I Always pause ; because the questions and answers seem based on weekly repeat formality . I tell em , “I understand chronic pain doesn’t let up , so I get it “
"Solid meh, life is life, school is school, yknow" seems to get the point across fairly well for me tbh
I go by "Well, if I was good, I wouldn't be here today." You can throw that in after the accidental "good" as well.
My binder of medical info saved me from being dropped by new pain management. They came in with a chip on their shoulder acting like I am an addict! I have a chronic disease, not an addiction!
Nurse: What is your pain level at Me: 12 Nurse: It’s only a choice of 1-10 Me: I won’t be here if it is was only a phucken 10 MCAD/vEDS/VWD/POTS
The nightstand meme really got me. I have like 1,000 things in there its like half full of empty containers and whatnot its wild
My nightstand's drawers: pills & potions, then salves & lotions. A poetic friend of mine suggested the third should be filled with dreams & notions.
FINALLY!! Why I say “HUH” all the time. You explained to my husband in 1 minute what I’ve been trying to explain for months.
Oh I feel u! I have a warning for my hubby now if I cant process or having a bad time on any given day. "I cant human today." So He knows I might not get stuff or struggle with things.
Julie Brown my mom was convinced that I said ‘huh’ out of habit. She got to the point that she would not repeat what said and I HAD to start focusing and hearing her. It worked with her. I ended up working for her n the medical field for 12 yrs. I still fog out but I can make myself focus for short periods when I absolutely have to.
I think the hardest thing is just having your partner trust you on what you need or are able to do even when it’s hard to explain, I have maaany conditions, I can manage them all but I can’t explain it all to my partner it’s impossible, so over a year ago I had a talk with him that sometimes I can’t explain sometimes it won’t make sense but it’s what I need so I need you to trust me, I have to remind him sometimes, I still explain things when I can, but in those moments when I can’t explain why I need something quickly, I can just say I need it and he’ll help and I’ll explain later, it’s great to have that support
Rose Hill me too! My warning is “words hard”
I was told by my rheumatologist not to do yoga anymore, yet people still suggest me doing yoga. Lol ( I have EDS)
My brain fog made me have trouble understanding The "huh" meme
Could u do a video on stuff for eds and comorbidities that you bring everywhere with you?
"When you don’t eat you get nauseous and then I do eat and I get nauseous" I felt that 😂😂 Doctors think I’m a hypochondriac for having complex and completed charts 🤦🏼♀️ Also! Quick question; is your wheelchair for your knee surgery or did you get it for something else?
I got the wheelchair for my knee surgery!
Izzy Kornblau Good! I thought it might have been for POTS
Izzy Kornblau So glad you knee is doing so much better btw!! I’m so excited for you!
Doctors treat me like a hypochondriac alllll the time even when I tell them call my doctors who’ve been with me a while and can prove I’m not a hypochondriac or look at my MRI or various other objective proofs of my illnesses, or when I tell them I have a regular therapist for my ptsd and adhd call them they’re that type of professional they can absolutely confirm I’m not a hypochondriac, I try my best to put it in my past and just go to the next doc ASAP, can’t let them slow me down, but it sucks immensely Also yeah me too with eating! The weirdest one for me was when I was extremely full like I was gonna vomit I was so full, but at the same time the most severe hunger pains I’ve ever had, then on top of that I still can’t eat so it goes on long enough that the hunger pains become a nausea that makes it even harder to eat, the awkward moment of the whole thing was that this wasnt delayed gastric emptying cause I didn’t have that yet (I do now) at the time it was from undiagnosed gluten intolerance
To have something seriously wrong happening to your body and know that doctors just look at you as a hysteric was the most traumatizing thing to happen in my life not kidding.
That must have been so traumatic and invalidating. I'm sorry you went through that
“Are you getting enough sleep?” I get ten to twelve hours a night “Well you just need to drink more water” Yes. Because I haven’t tried drinking more water “You’re just a lazy teenager. Just get up.” Please. Tell my fatigue from POTS to leave and then maybe I’ll have enough energy to get up
Don’t forget- eat healthier. Everyone thinks they know what’s wrong 😅
And to “just get up and do it you will feel ‘refreshed’” like lol what
The health advice that I find the most useless and toxic is any variation on suggesting seeing a shrink. More than anything else, that invalidates everything you say about being in pain and needing help, and reduces it to the idea that you just lack the wisdom to think about your problems the right way, or that there is a drug you can take to turn you into a happy zombie that doesn't care about being disabled any more.
Yes!!!! Or that you are crazy and imagining the pain. I feel you 💗
Yup, we always get written off as mentally ill. It’s so frustrating, hypochondria is very very rare in psychology, yet many doctors seem to think every other patient suffers from it 😂. The amount of damage doctors have done to my mental health has been devastating, medical gaslighting is horrible.
In some cases the recommendation is for helping someone manage and cope with the stress caused by having a chronic illness and not because the patient is crazy.
@@madaraisbetteethannarutohe8136 Again, why assume that someone who is chronically ill is coping badly with it? We are some of the most resilient people.
My go to response for when people ask the classic "How are you?" lately is "I'm here." I smile, normally, but I'm not going to claim "good," and people don't wanna hear about all the various fires that are going off at various moments.
My go to is "Alive and not on fire"
lol yeah I usually say "I'm alive"
Love these as I have so many chronic illness that I get the yogi one just about every time I go out. My husband’s family just says everyone has aches and pains maybe I should exercise or eat better
Bomb the shit outta them with articles and studies every single time they say something stupid, until they either understand or give up. 😂 Ignorant people are the worst, I'm so sorry you have to deal with that. Exercise and healthy food are great but they *can't change your genetics*! If you had a congenital heart defect, would they tell you to just do yoga? Ugh. Mad for you. 💜
I'm a bunch of chronic conditions too but I'm really lucky that my in laws are really understanding, however they sometimes simply forget my limitations as I hide them so well or push myself too much to do things when we visit them and they don't see the aftermath when I'm out of action for a week or more 😞 I do get the whole "have you tried this? " stuff sometimes but i know it comes from a place of love thankfully. I'm lucky ❤
My osteopath said over stretching is a really bad idea. To strengthen when you feel like stretching. It’s the best advice I’ve had from a health professional so far.
I hate that people such as your in- laws are being rude and disrespectful to you, ignorance is blooming worse than flowers 🌸! I agree with everyone else: Exercise is not going to change our genetics! But it is good for people who can do it, I am a part of a water aerobics class but it’s gentle and in the water.
The problem with "how are you today?" Is most people have a learned reflexive response just out of politeness.
LOL I like the explaining chronic illness one. Fortunately, I've never had someone suggest yoga to "cure" my IBS (I can't imagine lol), but I have gotten two v passionate people separately telling me I needed to go plant-based and the other was carnivore. It was a strange day. 🤷🏻♀️
i've also had different people tell me to be a vegetarian and a carnivore
@@IzzyKDNA I will have to say though, going plant-based definitely made a difference with my joint inflammation due to EDS, but it's most certainly not a cure all!
plant-based food + meat sounds like a decent idea though
@@smievil Agreed! 🤣
My parents had chronic pain related to HSD and apparently carnivore helped them a lot, but I guess I just didn't get so lucky 😂
I’d love to see a video on how you store your braces and supports.
Re the Drs office, I have once at the start of an exam, where they are seeing HOW bendy I am, and then yelped at the pain, said to them; 'If you hurt me I will bite you' (giving them innocent eyes) (again not that I would) but it did help! They took a moment, a step back n then said 'I need to see your pain...but I'll be as gentle as I can'. :) That'll do me. COz I feel like a science experiment n they don't have to deal with the fall out of their curiosity!
Yes! A science experiment i say this all the time
It’s like we are circus freaks, I bring a rheumatologist letter saying I have it and I bring a print out of images of myself demonstrating the beighton score, and every new doctor still makes me do it anyway, I don’t know if they don’t believe me or they just have to see it with their own eyes, but it hurts and I’m over putting on the bendy circus every time I see a new doctor or specialist. I might try the biting tip 😂.
I have hEDS I relate to your videos so much! I'm having to re-do my diagnostics because the doctor I originally saw when I was little kid left like 0 notes. He wrote HSD- should wear supports. Ugh.
I love these videos!!! Nightstand as a pharmacy - oh yeah! I’m literally chocking on a capsule that is stuck in my esophagus as I’m watching this. Just took my nighttime pharmacy LOL! I take so many that I try to take them mostly all at once or at most in 2 tries, but they often get stuck. You’d think I’d learn my lesson, but I will be doing the same thing tomorrow night. lol!
I joke that not only my mind has ADHD, but my immune system is hyperactive too. 😅 😂 🤣 😭
i love that 😅
3:00 I’m trying to figure out if I need surgery on my ankle . This is the most relatable meme I’ve seen in a while 😂
I told my friend I have a chronic illness he said this to me : just exercise. My response was : exercise wont cure my genetics.
I felt those GI memes. I have GERD, chronic gastritis, and IBS, but something isn't right because I'm bleeding in my upper GI tract. It's like when one organ in your tract doesn't want to work properly, the others follow suit.
I’m looking at my nightstand right now. And I feel called out by that meme. 😅
When my chronic illness kicks and I call in sick, everytime at least one person tells me to get healthy. If they know I am chronic sick, why? I get better but never completely healthy. Sometimes it sucks hearing this
The Huh meme is so relatable 😂 I zone out all the time or just feel like we aren't even speaking the same language 🙈
For doctors asking "How are you?" when they walk in I've settled on the answer "I've been better" sometimes followed up with "but I've definitely been worse" if I'm feeling cheeky. Seems to work well
4:35 I have an ICE form (1-2sides of A4) which is ALWAYS on me - with all my current diagnoses, medications, contact details, next of kin, recent operations, blood type etc on it that I give a copy to every new Dr. Then I have a summary sheet of the issues I'm seeing them about. So symptoms, simple timeline, things tried & reactions, and where i think any of my other illnesses may intersect. This is usually 2-3 sides of A4. This is gratefully received by 90% of my doctors (but not my current neurologist whom I'm in the process of replacing). This is my top tip whenever you see a doctor. It makes their life easier, means you don't have to worry about forgetting something, and definitely eases some of the anxiety too. ❤💛💚💜💙
I stopped greeting others with “ how are you “ to “ it’s lovely to see you”… I’ve found this non assuming but welcoming greeting to be a great way to say hello and the receiver often replies with the same. It’s not loaded and it can be opening for intimate or general conversation. ☺️
love this! mind if i copy?
I love this! My therapist greets me that way and you're right, I don't feel compelled to lie in order to be accepted, I get to respond with how lovely it is to see her as well!
i down play my symptoms alot..
That last one, oof. Watching this sat in bed and when I saw that, my eyes immediately went to my open drawer beside me, full of pills. 🙃😂 Also the downplaying symptoms one, I have an extra layer to that as I'm autistic and because I was late diagnosed, I learnt to mask over the years and so I learnt that people don't really wanna know how you are when they ask that. It baffles me but I try to oblige but then that causes problems with medical professionals because I don't wanna be seen as rude but I also don't want them to think I am actually fine. Because I'm really not. 😣 Ugh.
i have adhd and pots so brain frog and constantly zoning out together are a great mix ✨✨
oh god yeah, i have adhd, scoliosis, hsd, and some weird autoimmune shit. adhd+chronic illness isn't a good combo
When I have the hearing thing, I find it surprisingly easy to say "Sorry, my brain refused to process that. Could you try again?" For some reason that changes the way the person repeats it exactly the way my brain needs to get it, and the person is happy to help. The "how are you" thing for me always seems to be the nurses who ask. My most common response is "I made it in!" or "Hanging in there, you?" I used to hate that question with a passion, but over time I've come up with a lot of humorous but honest responses. Oh gosh, the nightstand being a pharmacy is so true. I can't always physically get to the bathroom when I need my pills, so putting them in the bathroom is just not an option. Yes, I know what you're thinking, and I just have to say I'm glad I have a strong bladder some days.
These are so funny, I have seen them on Pinterest! That pretty much sums it up for everyone! The one about rolling a joint is hilarious , we’re notorious for rolling a joint ( in my case my knee) !
1:20, frankly the bottom panel looks very POTS-friendly if you ask me.
These are funny, especially the doctors one, because my Neurologist is finally realizing that I have EDS and they’re realizing that something is wrong with my Autonomic Nervous System and they are trying to figure out what it is.
The powerpuff girls one had me cackling! Hello constant stomach pain lol! Also: I refer to my body as "Regina" from the movie mean girls. She is such a bully! *Raise your hand if you have been victimized by your own body*
I love this, I can really relate to most of them. I have as needed meds on my nightstand, we won't talk about the many drawers of medical storage elsewhere lol. I have never kept medicines in the bathroom either. It is the most damp room in the house and humidity is actually bad for medications anyways so I guess it is a good thing. Besides my bathroom isn't big enough lol.
Went to the doctor today to get a referral to an EDS specialist. The experience was bad, just like everyone before. They all looked at me like some kind of circus freak because I'm pigeon towed, look like a child at the age to 21 and have severe scoliosis making me shorter. only for the doctor to come in and just look shocked at the fact, I have to literally relocate my shoulders, elbows, and wrists, every couple of minuets. I refuse to take pain pills because my parents, as a result of EDS are both pill addicts. NOT TO MENTION! they could not get my blood pressure at all. I explained, I had the same problem when I was hospitalized at 16, maybe if they used a child blood pressure machine or the automatic reader they might be able to get it, to no success. my fiance and I spent thirty minuets in the examination room with me about to vomit, waiting to hear about a placed referral, to find out the hospital they thought had an EDS wing, didn't in fact have one. Still waiting for that but let's just cross our fingers and hope. I'm just struggling because the pains been so tremendous my whole life and its only getting worse. I'm so very tired.
Could you do a video on how you decide if you should cancel plans because of symptoms/flare ups?
Love the new filming spot Izzy!!!
Thank you so much laura!
the spotty spot
6:50 50/50 genetic treatment doesn't work since you're stuck with the collagen that's already there. Not to mention, that's IF a company shells out the money for a disorder that's probably hard to monetize.
That story of you in the Walgreens type shop is so funny, I’ve had so many moments like that ahaha 😂
& I think separating your body from your inner self is so common in chronically ill people!
That same reflex to lauch at us with the whole 'you should, you must, why don't u' in others in me manifests as response where I try not to want to beat them with something solid. wouldn't do that obvs coz I d do more damage to me than them
15 yrs ago I was in a clinical study. I'm still seen by those doctors. My chart at that hospital is literally eight, 4" ring binders. I had a Dr once ask me to have a copy sent to his office. I was like, "alllll of it???? Are you sure???" When I saw him at my next appointment he said, "we got your chart...." and I laughed and laughed. Lol
That's what my psychiatric records look like. Hopefully my medical records won't catch up...
i had someone tell me “i hope you feel better soon!” then remember my condition is chronic and correct themself with “oh! or not!” they were so embarrassed but it honestly made me laugh so hard
As a hEDS/POTS suffering trans-person who studied a lot of mind-body duality issues while getting a degree in philosophy, the speaking terms mean was 12/10.
Yes, I purposely "disassociate" mind and body too. It's a coping mechanis.
You look really nice with your hair framing your face .
When someone comes up and is buying a bunch of otc meds for stomach or something that is clearly related (I work at a pharmacy) and I ask them how they are and they say “good” I almost always ask “are you sure?” And gesture lmao. I read the person first, and hope for the best. Usually they laugh.
The "I have a chronic illness" and people shouting "health" advice at you is so accurate. It's one of my favourite memes, it makes me both laugh and grind my teeth every time I see it (which is not a good combo for my jaw , lol). I do yoga and it helps though , I just need to be careful and I don't go to group classes anymore because it's too tedious to explain to the teacher that no, I can't sit like that because my labrum will tear and I can't twist this way because then my meniscus will tear and I can't stay in inversions because my neck, my stomach, my blood pressure... But I love yoga. Ahah. The worst was "Have you tried cold showers/ice baths or going swimming in ice-cold water? There are so many health benefits". I'm allergic to cold , I'd love to add anaphylactic shock to my list of issues, thank you.
Kale is inflammatory, causes cysts. I studied skin, worked in medical spas, worst skin very often were people eating loads of kale, because it’s ‘healthy’- off point, but not all organic green things are Good, iodine isn’t good in large amounts.
When I go to the doctor's office and they ask "How are you?" I always say, "Well, I'm here."
Wish I would of watched this week's ago. I started a self management program for hypermobility and now feel like I'm in so much pain because I have apparently been doing everything wrong my whole life. My standing is wrong, my posture is wrong and I'm fatigued because I don't exercise properly. Izzy, you make me realise that it's OK not to be OK, so thankyou. Oh, and if I have hypermobility, why can't I move today?? 🤔
That's exactly why you can't move!
Izzi, I really liked this one. I have a few autoimune issues and can relate to many of the memes you shared. Thank you.
I love this! Yes please do more memes!!
my nightstand is too small so i have a big box in my bedroom to store everything in the same place. But i am definitely not a bathroom-storing kinda girl, nope makes no sense to me hahaha
So need an omg it has a name meme!!
Omg, the nightstand.... mine holds not only all the meds, but the pressure cuffs, stethoscope, blood sugar monitor, pulse ox, thermometer, and note pads full of daily logs. :-P chronic illness sucks
"Have you considered getting tapeworms?" is one I've got for MS. Imagine my surprise when a doctor reccomended hookworms years down the line because that was the one person who had advice rooted in a muddled understanding of the science. Turns out the one thing my immune system and I are on the same page about is that gut parasites must die first 😂
Thank you so much for always doing these videos ♡
Love the new background set up, logo and everything!
Lol 😂 these made me day. Thank you Izzy. AMD also for explaining some. It was refreshing. You are right, we will always be genetically programmed with our DNA to recreate this faulty collagen protein (s). My guess is until the DNA can be reprogrammed to create the good protein collagen, then we will continue to reproduce faulty collagen. My understanding is that by reproducing faulty non-bonding collagen leads to surgery complications. That’s my story anyway. How can I email you privately. It’s difficult to text lol
I’ve has teachers literally bring me books on how to do yoga for chronic pain....
Show them articles about how people with EDS should NOT do it!
Well, I never thought I'd hear the words happy 2020...
Also loving the new background and logo!!
The nightstand!!! I have two! I wish I could send you a pic!
Hi Izzy! I've been really enjoying your videos recently, they are super informative & I hope you are well!! I am going to an appointment soon to try to diagnose my issues and there has been specific talk about it being EDS but they are still super unsure (even after nearly 9 years). Do you think it would beneficial to take a document with what I think is going on or linking some of my symptoms to certain criteria ect.. it's getting to the point where I am so frustrated with not getting help and feeling ill :( thank you for any help!!
😆the night stand felt personal!!! lol
These are great! Hi Izzy! xxxxxx
Ahh I love the new background! You look so professional!!
thank you so much!
LOVE this 😂❤️
10:07 was so relatable
I love your energy
thanks!
Hi Izzy, "Rest" has "Nuro" disease of their family background (mom of her's mom).
I love the background! :) I also love this series!
thank you!!
@@IzzyKDNA Thank you! I'm going through a lot to try and find what is the right diagnosis for me and your videos help me so much.
I used to have a box of meds on my desk, but recently cleared out a desk drawer and turned it into my pharmacy ^_^
Love this
The huh for a third time, I used to respond that way, but now I just say sorry-reason-what? If they give me crap I give them crap for not respecting me as much as I deserve regardless of ability f*ck ableism-to be clear I only give crap to the people who I’ve already explained these issues to
When someone asks me how I'm doing, now I saw "could be better, could be worse".
hyperacusis makes it difficult to hear voice tones when there is a lot of background noise. i cannot decipher when people mumble or talk too low but then feel like people are yelling when there isn't much background noise. cannot tolerate high pitched tones. it may be related to dysautonomia.
Still trying to figure out my chronic illness and get doctors to listen to me but I tend to not discuss it with people because of there recommendations I've learned that one a long time ago before I got sick my biggest problem was period cramps my friend told me to stop drinking caffeine... I dont even drink caffeine... so ya definitely wasnt the problem...
Ergonomics is matching the workstation to the individual person, it's for people with Eds too.
Totally!!!!!!!! I was gonna say which ones but so many YES!!!!
These are funny but also sad and true!! I get but you look so good!!! 😏😡Love you Izzy!!✝🙏🏻💜💯
Love this video! You are beautiful!!❤️❤️
Yep most of these memes pertain to me. 😂
my joints doesn't smoke but they frequently seem to boil
ngl, reading these comments makes me so glad my mom takes me seriously. without her, I'd be dead tbh.
Yoga, nutrition, and essential oils aren’t going to cure ED. But they’re not bad things for increasing quality of life if safe. Movement and exercise are good, nutrition gives your body the vitamins fats and amino acids it needs for repairing tissue, and easential oils smell good and can be relaxing if used right for stress management. They won’t cure a chronic condition, and they might make it a little less awful.
2:29 I remember watching that video.
I'm 44 in a week and a veteran at this ish 😁 1:35 I have Auditory Processing Disorder which is where my hearing is fine but many brain doesn't process things correctly so this is totally me - I have to lip read, have subs on tv and use context to make educated guesses as to what they're saying. I've had it all my life but was only diagnosed in my late 30s, as a kid I was told I just wasn't concentrating. Incurable, obviously, like all my shit but kinda manageable :/ Then in my late teens I got Fibromyalgia which compounded the problem then in my early 30s M.E as well - so yeah I'm a riot at parties 😂 and that's not even half of my medical issues lol! So please look into APD and see if any of the coping strategies help you 🙂 And if all else fails just tell people you have an issue - my friends know it's a brain thing but acquaintances or shop clerks just get told I have hearing issues if I have to explain my not understanding them, as everyone understands that and it makes life easier 🙂❤
Me too. But also have had ear surgery and use hearing aids. Life's a hoot at times.
I know it's not actually the reason, but I have POTS, and once caused a blood pressure machine (with the thighten-y thing) to get an error twice in a row.
Ive not got EDS but ive had chronic pain that got worse in 2013 and when people tell me its in my head or its growing pains even though im 21 is annoying and last year i got diagnosed with rumination syndrome which i just hate because i can have a good week and keep a basic meal down or sometimes a bad week where i can hardly keep anything down and i cant run because i sprain my ankle and i was walking for about 40 minutes cos i had no way to get home and ended up locking my hip
"I have a progressive chronic illness." "Will you ever get better?" "Progressive. Chronic." "I was trying to be optimistic." GOOD FOR YOU??? I'M DYING???