ALL THINGS FIBROMYALGIA | Symptoms | Diagnosis | Treatment | Living with Invisible Chronic Illness
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Hello my friends! Today I’d like to share with you all about Fibromyalgia! Today I am sharing a bit of my fibro story as well as answering a few common questions: What is it? How do you get diagnosed? How do you treat it?
I am a stay at home mama to a sweet baby girl, and wife to an amazing husband. I also have several chronic illnesses (see below). I am passionate about sharing my story to help those suffering like I do. I have a degree in health education and I am certified in nutrition, chronic disease, and health promotion.
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It took me 15 years to get diagnosed. I went through years of bone scans, blood work, fluid drawn from joints, cortisone injections in my spine, trigger point therapy, physically therapy etc. They literally exhausted every avenue (they really didn't want to diagnose me for some reason) I was told as a teenager I was too young and a male which was unheard of at the time. I have all the tradition symptoms with pain often running through my limbs which often hinders my dexterity and mobility. It also rotates, so one day it's my left arm, neck and back and the next day could be my legs, hips and shoulders or just my whole body. And oh boy the fatigue! I also have tactile Allodyna, so wearing clothing, bed coverings or even light touch can cause immense pain on top of it all. I'm a very stoic person and often hide my pain because I hate to burden others. As a result people often down play my pain. I've really been suffering mentally lately, I don't have pain free days and sometime I get stuck in that self pity mindset, where I would do anything to feel normal. But with a wife and kids that depend on me I keep powering on.
@R Wolfcastle Literally feel Your Pain. There's not a day that goes by that I'm NOT IN PAIN. Migraines and Depression have taken over my life. The Pain is REAL !
Wow! This looks like what I would write. I also am a male and have had to deal with Veterans Administration doctors. To make matters worse, I have a pre-existing Osteo Arthritis in both knees and was also younger than the standard onset age.
Great info ty
Took me also 15 years to get diagnosed. I was a primary school teacher for 31 years. Retired 14 years ago
God bless you. I know you are suffering. I too have no "good"days . All the talk about flare ups used to really confuse me, I thought maybe I had something other than Fibro and they missed it. But now I see I am not the only one. This is really hard. I admire you a great deal for your determination. God bless you and your family.
Omg you deserve a medal for having all these chronic illnesses and still making videos and being a Mum! I’m in the early days of fibro and no way I’d be able to do that, lucky my son doesn’t mind having toast for dinner sometimes 😂
I have had fibromyalgia for 30 years and soldiered through ,working the whole time, and raising a family. Now it has gotten much, much worse just in the past year. I can hardly walk some days and the pain is EVERYWHERE including behind my eyes. It is so depressing and hard to explain to others what I am going through. A specialist finally made the diagnosis on me but since there is nothing to be done besides dealing with it and using pain meds, I am happy to see that light is being shed on this illness. I truly hope that places like the Fibromyalgia Clinic at UCLA and also the Mayo Clinic who are working on fibro and monitoring people, a break through will be coming in the future.
I am also fibro warrior diagnosed at only 16 but suffering since I was 8💜 and have recently been in so much pain that I'm being sick 😭but I am still pushing through and I'm determined to go to uni and get my art degree! We just need people to be more open minded and kind! Stay strong my fellow warriors💜
Sending you prayers!
Aw I love this comment! I feel I’m in the same boat ❤️
Thinking back I was very young too,it stopped came back after a car accident 21 yrs ago
Thank you so much for sharing your story. As a Fibro sufferer, it so encouraging to hear others talk about what I’m going through and to know that I’m not alone and that is not “just in my head.” I am excited about following your KZhead channel to gain more knowledge and tips to help manage this disease. Thank you for being willing to share your story.
Green tea is something that has been helpful for me. Particularly matcha green tea. It is very healthy in many ways, but it is very anti inflammatory. It always helps take the edge off for me. Hopefully it could be helpful for some of you too. Stay strong, and remember God can teach you many great things through hard times!
This is my 7th year with fibro it started with chronic neck pain and as the stress increased my pain spread wider and it got worse. Now I’m 17 and I’m going through tertiary education and I love studying from home. I only got diagnosed at 15 and this past year I’ve finally figured out how to manage my pain and live like a normal teenager. But the journey has only really just began and I don’t expect this to ever go away... people like you give me hope and I just wanna say that I’m grateful for your sharing. Thank you for helping me not feel alone :)
Loved you’re video, it was really helpful I just recently got diagnosised myself and it took months for them to find out what was wrong with me I went to every doctor and took every test you can think of just like you did and its nice knowing people who have the same chronic illness so you can hear their story and talk to them.. Thank you so much♥️
Such a good vibe! Subscribed straight away 💜 It is so comforting to hear other people talk about chronic pain and not hear the words ' it's all in your head!'
Right!? I feel like everyone thinks and "invisible illness" means a made up illness. Your pain is real, my friend!
Its so difficult to know how bad your pain is, when you are always in pain. It really hit me, when one day a familymember was rushed to the hospital for pain in her chest. When I asked her to describe what was wrong, that made her worried enough to get hospitalised. She described a pain in her chest. that I have everyday, just worse.
Yep! When I am sick with a cold or flu, it is hard for me to identify it at all because I live everyday in sickness and pain :/
Thanks for sharing your story! Living with chronic illness definitely isn’t easy. Stay strong!! You are beautiful!❤️❤️
It is so hard! But we gotta stick together 😊
Was feeling down was officially diagnosed after literally seven years plus trying to get answers I felt like there has to be a good youtuber on line thank you 🙏 and today..... and the last two days .. migraines..
Ugh. Migraines!!! They are the wooooorst! I did just post a video about my natural migraine treatment. I'm also trying out a new medication my dr recommended (i usually get so sick on migraine meds....) BUT this one seems to be working! I am going to try it out a bit longer and if it works I'll share soon! Praying it does!!!
She barely scratched the surface of fibro symptoms, (probably so that the video is not too long), there are about 200 symptoms of fibro when you break them down. Knowing the symptoms can help you figure out if you have fibro or if you have something else, for example hypersensitivity to light and noise are symptoms of fibro but not (as far as I'm aware) common in the other conditions that the doctor has to rule out in order to reach a diagnosis. I have had fibro for 8 years and it is a horrific and debilitating disability. I really applaud the energy she brings to her videos.
Thanks, Aimee, I’m 70 and I will say, tho I’m happy to know I’m not imagining, the pain all over on some days coupled with arthritis, gets so bad I want to cry. My husband is great support. Be blest.☦️👩🏻🦳🇺🇸ohio
Loved the treatment part of this video, thank you for sharing! ❤️
❤❤
I'm 14 and I was diagnosed last year. I don't get it as bad as some people do but like when it hit..... It really really hits. A few nights ago I stayed up all night crying because I had horrible horrible stomach pain and like a month ago I stayed up all night because of my hand. Lately my dizzyness had been acting up. Basically I'm just really glad that I finally have someone I can watch on KZhead that understands. Thank you 😊❤️
Talk to your doctor about generic Lyrica.
This is really eye-opening! You are helping so many people!
Thanks girl! :)
Wow you’re such a strong person first video and I am gonna subscribe
HEY I LOVE YOUR VIDEO YOUR THE 100%BEST AT EXPLAINING EVERYTHING ON POINT I'M A DJ AND MUSIC PERFORMER SUFFER FROM THIS AND 4 RELATED CHRONIC CONDITION AND FIND EVEN DOING WHAT I DO WITH THESE CONDITIONS ,EVEN MAKING DJ VIDEOS THIS WOULD BE NICE TO GET OTHERS THAT HAVE IT TOGETHER .GODBLESS
Fellow fibro warrior. Was diagnosed a year ago and am determined to bring awarness. Loved this video and what you're doing with your channel!
You got this!
@@Aimee_Esther thank you!
You are SO inspiring! I’m getting married this next week while trying to get through a bad flare up (I was recently diagnosed with fibromyalgia & cfs-fatigue has been to the extreme as well as pain and brain fog) and really want to be able to become a mom in the future! I’m so glad I came across your video. Now following 🌷
You got this! Keep fighting my friend!
You’re probably the strongest person I’ve ever seen❤️❤️
Not even close but you are so sweet! :) Thank you!
Hi! I’m loving your videos. The reason is in recent years I’ve developed chronic, debilitating back pain from a few back conditions and it has been very hard for me to deal with it mentally. The amount of life change is downright shocking and I wasn’t prepared for such radical shifts in every area of my life. I have no relief as yet and do no take opioids. At times things seem pretty hopeless and I knew I needed to witness how others are dealing with such upheaval. You have so much going on that I feel you are a good role model and certainly you are motivational.
PS I would take opioids if they’d work for me:)
So sorry you are dealing with this. I want to do a whole series on my channel soon about chronic pain and mental health. It is just so hard to deal with mentally! You got this, my friend. We are in this together! :)
The dr I have seen 3 times in about 3 years, all he says is lose weight. No meds no treatment no nothing. I asked him about working his answer was “ you should keep working you need a purpose in your life”. Work has never been my purpose in life my family is my purpose. Thank you for sharing your story. I feel validated.
I think you need a new doctor my friend! You 100% can have purpose in life without work. I do! 😊
Thank you so much for sharing your story, I hope you get better soon. I also have fibromyalgia and I have been struggling for months with pain everywhere.
Hope you find relief soon!
Thank you!
Thank you!I thought I was the only one dealing with a multitude of different health problems!
This was such a good video so informative and you explained everything so well! I have fibromyalgia and share a lot on my channel about it because sharing our experiences helps others feel less alone xx
Ooh i need to go see your fibro videos!! It really helps to hear others experiences!
Beverly butterfly
New subbie here for you! I look forward to watching more of your videos! Wow you seem like you have been through a lot with your chronic illnesses! ❤❤❤
Welcome!! 😊😊
Hi very helpful...I have most of the symptoms and not getting answers is really frustrating!!!! Thank you I finally feel relieved
I am glad I found your channel!♥️ I’m not sure if you already said it, but fibromyalgia is essentially a dysfunction of your CNS. The pain is so bad because your nerves are overreacting to everything. It sucks because it’s all over the body. Also a functional doctor who will test EVERYTHING (from a cellular level) is so so important. Try searching for a dr who specializes in mitochondria function. Healing your cells and what’s going on in the body is #1 to feeling better. Hope that helps xoxo
Hi Brandi. I have been suffering from fibromyalgia pain for 4 years. I would really appreciate it if you could reply to me what has helped your pain in terms of the mitochondria function. Have you used any vitamins or anything else that has reduced the pain? Thanks so much!!💜🙏
@@sejalshah3954 my energy production was a mess and I have to take a lot of CoQ10 & B vitamins. Turmeric and probiotics helps with the pain and inflammation, but honestly what has been helping me lately has been cannabis and trauma work (sounds weird) but there is a great book called Healing Back Pain by Dr. sarno which focuses on TMS and gives insight into how that kind of work can help pain.
@@brandijade2910 HI Brandi. Thanks for responding to me so quickly. I have tried Cannabis about a year ago. I might try it again soon. I also have a license for medical marijuana. I have used a tiny bit sparingly if the pain becomes intolerable. I think I will try Cannabis again and see if that can control some of the pain. Otherwise, I am on Lyrica which helps a lot in general. I have also used the turmeric on and off. I think what I will do is try some of these things consistently and see what happens. Once again, thanks so much for your response.💕🙏
@@sejalshah3954 don’t bother with cannabis it’s merely masking the pain. Depending on your mindset you want to go psychedelics in particular DMT and Psilocybin Mushrooms. These two amazing medicines create new neuropathic pathways. They heal the brain. A good psychologist to work you through new pain processing. Exercise is a big one. TRT as what also causes more pain is low testosterone and high oestrogen. Vitamin infusions. Those alone work wonders.
@@Dionysus_Athena Thank you for your response.🙏
For me, exercise is really important. Not only does it help physically, it's essential for keeping me in an even mental keel. The key is, as you say, not to overdo it - not something I'm good at. The next thing is going to sound a little weird, but bear with me. I'm 63, and I spend as much time around young people as I possibly can. I like to know what they're thinking, about music, movies, etc, but also life in general. It challenges how I see the world, and keeps me from getting stuck in my own thought patterns. It would be so easy to sit back and think that "I'm old, and I'm in pain, and I'm going to be grumpy ." Uh, NO. As I exercise to remain as flexible physically as I can, so I have to keep my mind flexible. People my own age tend not to have the new ideas that keep me excited about life. That excitement keeps me going on the bad days.
Thank you for sharing your story. I haven't been diagnosed but I have MANY of the symptoms. Back over the winter I had a two week long episode of pain that just about took me down. It started with what I can only explain as..My SKIN hurt. My skin in many places was just SORE to the touch. Then I woke up one morning and my fingers were swollen and the joints hurt a lot. Over those two weeks the pain moved somewhat. I had a point where I couldn't raise either arm higher than my waist. I couldn't put on my own coat. Getting dressed was almost impossible. Over the two weeks it moved from hands to arms, shoulders, neck. Since then I find myself with no energy at all. My legs are rather weak and I just have an overall feeling of no energy. After looking up fibromyalgia I found that these symptoms and many I've had over the years, fit. Migraines, sleep troubles, stomach/digestion problems, brain fog, just an over all "fuzzyheaded" feeling. I'm 53.
God bless you! You are beautiful and strong I hope you feel better 🙌
Hiya! I just wanted to say i loved this - thankyou for sharing. I have CFS, and ive restarted my channel based on my recovery. Its so important to explain what these illnesses are! x
Excited to see your content and meet a fellow chronic illness warrior! We are in this together!!
Definitely! I can’t seem to find anyone with similar issues to myself so it always makes me happy when I can! I hope you’re well today? 💜
I use to share with my Dr. when he asks me how are your feeling? I say my hair hurts and he then understands it’s a bad day😢 I was diagnosed over 25 yrs ago when it was thought to be in your head. Had to find a Dr who specializes in Fibro. Thankfully now Dr.’s are educated about it and often I can get approval to get treatments from other specialist. The issue that has helped was a sleep study and I have sleep Apnea and it has brought some relief and I do have better days. Thanks for sharing
Brill, I'll keep an eye out for it!
YOU ARE TELLING MY STORY!!!
Hi I just wanted to add a couple things to your treatment list, that I have found that help me. A book called Fibromyalgia and Myofascial pain, it's a big book and good read, to help us understand this better. Yin and Restorative Yoga is AAAAMMMMAAAZING! for us! Even if it's only 10-20 minutes. I sleep so much better. These two types of Yoga practices have been mentioned in several books I have read. 😊 Loved your video! Thank you!
So I have been diagnosed with fibromyalgia and that was last year. I was going through a very bad patch mentally at the time and it didn't help that one of my doctors said "I think you are just making yourself sick". I feel that I have been suffering since I was a child (I am 38 now) and I don't want to be labelled as a hypochondriac. And this doctor just reminded me of how that felt. I also have an underactive thyroid. Thank you for you video
I really enjoyed this video,very forthright.
I have had fibro for a year and I still am trying to learn about it because doctors don't know anything. I struggle a lot and just found your channel! I hope I get some ideas from you 🥰.
Just watched your video. Thank you for sharing. I havent been diagnosed with fibromyalgia yet but have taken so many test that my dr says it looks like it. Previous to it, maybe a 2 and half year prior I was diagnosed with pvc issues in my heart. Had a ablation done for it too. But with this unofficial diagnosis of fibromyalgia I have lots of extreme pain even parts where I had to quick my cna job because there were so many issues. Had to go to a lighter job. Also to go back a bit, I have extreme fatigue, my sleeping patterns are chaotic, I have chronic migraines (cluster too), my hands, arms, feet fall asleep so much, lots of leg charlie horses and cramps. Idk if it deals to but I have stomach issues when it comes to eating, either over thirsty or not thirsty..just to name things. I go to my 1st sleep study consultation next week and idk what to think of it. What does it actually help prove? It's so frustrating because though I have dealt with my weight for years prior to heart issues I was running, last official run was at 9 miles, and exercising, biking, able to work extra hours as a cna without issues. Now I feel like whatever this is, to part of me away and I feel lost. I know it's in front of camera but u look calm for all your going through. Apologies for the amount of words [lol], God Bless and have a good day 😀!
I LOVE all the words ;) Thanks for sharing your story! I totally understand that frustration... It is so hard living with something like this but no one understanding and not knowing yourself what is really wrong. You are AMAZING! keep fighting and keep me updated on all things in your life! YOU GOT THIS!
I was just diagnosed the other day and I’m trying to learn all I came, thanks for posting
You got this!
Thank you for this excellent info
Thank you for your videos, Aimee! I resonate a lot with your story. I was diagnosed with FM/CFS by a regular MD and with mitochondrial dysfunction by an integrative medicine physician. I wonder if you've ever been tested for food sensitivities, toxic metals and/or mycotoxins (mold). In my case all three tests were positive. Unfortunately IV detox therapy (Myers' cocktail + glutathione) is quite expensive and not covered by insurance but it lowered 3 of the 6 toxic metals I have in my body. I also had a biological dentist replace the mercury fillings and remove the teeth that had root canals. I just started EMDR therapy for PTSD (trauma + stuffing my emotions + blaming myself for everything bad that happened in my life = a recipe for autoimmune disease) and hopefully I'll start treatment for leaky gut syndrome soon. Keep up the good work, Aimee! You are so brave to open up like this and for choosing to be a mom in spite of everything. I know it's not easy to keep that smile on your face. I wish you the best of luck in finding the root cause & treating your conditions!
What's confusing is me causes severe muscle pain so is fybromyalgia cfs and you mention autoimmune
Hey Aimee, I have had Fibro since age 18 sooooo like over 20 years. I also have super bad migraines for now 15 years. In hope to help maybe just alittle. After 15 years I found my own DX that then my PCP and neuro agreed. I have left side Occipital Neuralgia. The only way to get relief is an injection into the greater occipital nerve. It numbs the nerve for about 3 month at a time. I have to say I love that injection. Its given me part of my life back. Just a possible tip!
Somehow having fibromyalgia has also kept me in mild regression and I feel like an eternal child. It's honestly in a good way though. I feel like I am the youngest friend in my group even with younger friends.
Extremely helpful. Ive been ill for a long time and my doctor said it was in my head. Everything was normal. Im so tired and so ill. I had to quit working too. No doctor has helped me and no doctor will. Im so lost and confused
Hi! Thanks so much for this video. I am sooo grateful for it!! I got diagnosed with fibromyalgia back in December and boy, it has been an adventure! 😂 Thanks for sharing your experience and everything you know! I might have missed it--but I was wondering if you could share the Mayo Clinic video about fibromyalgia/CFS being tied together? Thanks again!
kzhead.info/sun/gK9tidOMeJ6oaqs/bejne.html
You are heaven sent !! 🙌❤❤❤
You are amazing to overcome these conditions.
Thank you for sharing ❤
Sweet girl you and others so very young is tough. But you seem to be on top of your health... It's very important you take good care of you... God Loves you...💜💚
I have alot more people coming to my classes regarding fibromyalgia, and CFS. Hence I decided to do something about it and work with them on first improving their sleep patten, then showing how to reduce pain around the body, including migraines/headaches, toothache .... It has helped them to reduce medication intake, and improve confidence.🙏☯️🙏
Hi I just wanted to say I'm new to watching your videos and they help me a lot I've got epilepsy, fibromyalgia, scoliosis and cancer I'm in a lot of pain all the time
Thank you for your video! My daughter, Sarah was finally diagnosed w/ it in 2019. She is 16 yrs old right now. She started getting pain right after starting her period in 7th grade. Everything you talk about she has experienced! Especially brain fog and that really interferes w/ school! So she is so stressed!!!!
I'm glad she was able to get a diagnosis and that so much more information is available now. I started having trouble with it as a teenager. Since tests looked fine and they couldn't find anything wrong with me, the doctor told me, right in front of my mother, that my only problem was that I hated school. He was basically telling her I was taking it. I was devastated. I knew how bad I was feeling and how sick I was. It was hard enough living with that and now I was being treated like a liar. This was approximately 25 years ago. So much has changed since then. I'm glad I finally got an official diagnosis and we're working on managing the pain as much as possible.
Thank you for sharing your story with us. I'm a mother of 2. I have been diagnosed with sjogrens which is an autoimmune disorder and I also have fibromyalgia and neuralgia, PCOS, depression and anxiety. I have been on meds and it has been helpful. But when I don't take meds or get enough rest for a few days I have the worst flairs. God bless everyone.
Hi I’ve been living with fibromyalgia 😢😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure
Thank you for making these videos. I just got diagnosed with fibromyalgia, and it is great to learn more about it and to know I'm not alone.
Your not alone 😉 watching these videos and reading the comments help. Good luck.
This is so reassuring to hear...this is the journey I'm going through right now, step for step. I started going to doctors about 7 years ago, all my scans looked fine, and finally I had to quit my job as an equine specialist because I just couldn't work anymore. I'm hopefully getting tested for pots soon as well, my neurologist and my cardiologist are competing.
Yes i totally understand that. I felt crazy when all my tests would come back "normal" but i was so sick. We are in this together my friend!! ❤❤
Ohhhhhhh you’re perfect! I’m not sure if you have heard of my blog and probably not lol I was just about to post about it, my sister suffers from it but I have Hosimoto’s but Im a cancer patients hence my website! God Id love to have your story on my sight ♥️
Hi my name is Bobbi.Thank you for sharing your story.I can relate with everything you have shared.I have all the semtoms you have decribed. And also was very confused about witch one was bothering me that day . I was just about to go crazy trying to make scenes of it all. I saw so many doctors. My doctors gave me some tools to work with. Therapy heat heating pads exercise eating right. So today I rest I get exercise. I try to do all the things that I was told for each individual pain. But sometimes all I need is to rest and listen to my inner self about feeling better. I'm so happy that I know what's wrong and how I can treat these awful diseases . They all seem to intertwine with each other and are so confusing.
My fibromyalgia gives me light and noise sensitivities and the background music is killing me. 😂Your videos are amazing. I am enjoying them so much.
Really? Im sensitive too and I didn't know that it was related with fibro
@@MoniixMoreiira It CAN be, it is "overly sensitive" in this case, so much that it affects you all the time, everyday ( if one has fibro that is ). This is not the "common" sensitivity, just to make sure you don't self diagnose too fast and think you might have this shit show of an illness :D
Same! 😂
Low dose naltrexone is best treatment for fybro. Thanks for sharing your story. I have had fybro since before they knew what it was. I’m sorry you have so much illness. Hang in there and keep smiling. You are a beautiful soul.
Savella worked best for me.
I noticed that you said that you have endometriosis. The endometriosis is what's causing you to have severe pain during your period. I had endometriosis for years and didn't know it until I tried to have a baby. The doctor informed me that I had endometriosis. Long story short I was not able to have children. Eventually I had to have a hysterectomy. Once I had the hysterectomy the endometriosis and the pain went away. I don't miss my period and I definitely don't miss the pain that went along with it. Best decision I ever made was to have a hysterectomy. Now, that I'm older I'm suffering from muscle spasms all over my body. I started watching your channel to see if possibly it could be fibromyalgia but it's not, it's just muscle spasms. I enjoyed watching your video, very informative.
So you basically are a superhero ^^ amazing!
Thank you for your video as now finally I know that my stomach aches are a symptom.
My doctor just told me I have fibro. This video made me feel better
Thank you! Your video makes me feel like I’m not crazy! I’m so frustrated with doctors and figuring out what’s wrong with me! Did you see a specialist to help figure all of this out?
You are telling my story in your video! I was diagnosed in 2007 but it was not as bad as now, I’m 72 now. In 2020 I was out of the blue diagnosed with heart failure. I think there’s a definite link between FM and cardio problems. I’ve been on Yelate for years and it did help with the pain, but it seems to not really help me anymore. I have two more symptoms that you didn’t mention, I am extremely sensitive to bright light and I suffer with sweating, always patting dry my face. It’s such a embarrassing symptom. Thinking of you all with FM.
I have Fibro/CFS and Hashimotos. Thanks for your video!!
Love meeting others who understand!
Over 30 years of fibro(car accident I never recovered from) and then diagnosis 2 years later with Lupus. 62 now and not doing well.
Thank you for sharing ❤ some things I find useful are yin yoga (fascial release in a mindful way) and cbd oil put topically when it’s just one area, it’s just temporary but it’s really the o ly thing that takes pain away from me
I have been diagnosed with this but finding it so hard to believe that’s what it is despite being told by 3 drs and a spinal surgeon, I know this sounds crazy but I can’t believe you can be in pain everywhere and there be no physical cause to each body part ! Hence why I’m watching your video as I don’t know anyone who has it and could really do with understanding the condition further. I too am pregnant and have found this to have made symptoms worse though I’m told I’ll be back to ‘normal’ after birth. Thankyou great vid x
Here's my biggest advice: if it doesn't feel right to you then keep looking to make sure something else isn't going on. My diagnosis never felt complete. Then, over a year after my fibro diagnosis I found out I also have POTS and it was contributing to a lot of my symptoms too. If you want more about pregnancy and postpartum with fibro and other chronic illnesses... I documented my entire pregnancy journey and currently doing weekly postpartum updates as well (pregnancy playlist on my channel page). My baby is currently one month old. Praying you do go back to "normal" after birth!! But if not I am here to go through this journey with you! :)
I noticed a stress and emotional situations I lost my grandson 1 month and 1/2 ago and ever since the burial I've been feeling so down my body and insomnia fatigue body pain headache neck upper body hips depression anxiety medication for depression next week I start physical therapy and the following mental health therapy I pray A lot too helps me out
I have the same...big knot in upper left trap muscle and extreme migraines. Lots of pains in neck, back, legs etc and severe fatigue always. Been going through this for many years and finally my doc is ruling things out to diagnose fibro. I also suffer from nausea...feel so sick a lot.
You sound exactly like me,,i just been diagnosed with fibro a few days ago,,
I have fibromyalgia and dipression so the doctor send me Cymbalta for both and my fibromyalgia stages has gone much less to the point I only have it like 2 to 3 times a year, but when happen it can last 2 weeks of constant pain from head to toe, but for me that is better than before, also in the past I had and accindent roll over and tha is when I stated with fibro, the dr. said that when you soffer a bad accident after a while you get fibromyalgia.So I am glad I am better for now. I hope you get better and also I when to a psychiatry session that also help. God bless you and your family. Happy holidays !!!
I feel like maybe 2 days out of each week I feel great compared to my flare up times everything still hurts but it is barable. Other days agony.
I was diagnosed 34 yrs ago with fibromyalgia , I learned men are in the minority of having it, I have had a lot of pain over the years, as I have gotten older it seems worse. If I don't get sleep I can't function, I have med to help me with that, stress makes it worse, good luck to all of us. ( I too have fatigue esp when stressed.
Dang, so sorry you have to deal with this too! Praying you find something to give you some relief!
well i am also coping with fibromyalgia and chronic migraine, what i can say exercises help a lot especially swimming. Besides the steam room and sauna are very useful. Sauna is very popular in our culture and easy to access. I am also taking L-carnitine for fatigue and it helps my chronic fatigue syndrome and provides better concentration cos I have to work.
So glad you have found some helpful things! Thanks for sharing!
I am 16. I have myofascial pain syndrome which goes hands and hand with fibromyalgia. I recommend trying dry needling. I have tried many different things and dry needling is the only thing help me at the time. I don't get it done anymore because my condition has worsened. As long you aren't scared of needle I would recommend giving it a tried. it is like acupuncture but the needle are place base on muscle unlike acupuncture which is based on energy.
Sounds awesome! Im pregnant right now, but maybe after my baby comes ill look into this! Thanks!!
Same as me. Going through menopause relieved my psod and endometriosis . Still have the rest. All are autoimmune.
I was diagnosed with Fibro in February 2020 after undetermined pain in my lower body. Blood work normal. It's in my hips, legs, calves, feet and sometimes buttocks. Nothing above the waist but they still think it's fibromyalgia. I feel like im in a steady state of muscle soreness like a ran a marathon or something. I don't have headaches but fatigue is a daily problem. I also have Crohn's Disease but it's been in remission for many years. My Naturopathic physician put me on Low Dose Naltrexone and it has worked great! Took the aches and pains down significantly. I feel more pain during my period which is definitely hormones. Every day is completely different pain wise.....is this common with others? I have been very healthy all my life then boom got sick and diagnosed with this within a year.
8:22 symptoms
I have endometriosis too. The pain that you were talking about with your guts and the heavy flow of your periods and how it had to it was in so so much pain with your back as well as your friends it's best to lay on a heating blanket laying on it when your stomach on it. I had endometriosis starting at the age of 12 they didn't discover mine until the age of 21 and by the age of 24 I had to get a hysterectomy done because I was dying from it so I didn't get a chance have any kids but it was either my life well or do the hysterectomy so so I did the hysterectomy. But you know only people that's gone through the end of metriosis understands the kind of pain and its really really really bad pain so if you start to get that pain get a heating blanket and lay your stomach on it it'll make a big difference you at least call me down I used to miss a whole week of school every year every month because of it so yeah I know I've had endometriosis before they even knew my endometriosis was they were slowly starting to figure out what it was and I just happened to be a death of guinea pig at that time since it wasn't really too popular to what's a really popular back then the doctors were still trying to figure it out what it was at that time. And now of course many years later they start doing the testing. And the stuff that they're using for the testing those three pieces the shot birth control pills and there's one more I can't remember remember off the top of my head of the injection shots of the anyways just three of them birth control the shots and something else that put you that temporary menopause and they don't work obviously because it's it's crazy they don't work but the pain that you're getting in that area but just in case your doctor didn't tell you that area there where your gut pain and specially during your menstrual cycle is when the pain is so much stronger definitely use the heating pad because it makes a big difference so that's all I can really say right now about the fibro or not the fiber about the endometriosis the fibro I have that too I hate it I truly hate it especially when it comes when you least expect it and then of course I have a few more health issues that are chronic but I wanted to let you know about the endometriosis and where the pain of the certain areas you were talking about how bad they are that actually from endometriosis if you ever need to get ahold of me questions on your KZhead on your not KZhead but on endometriosis I'll be glad to answer your questions just let me know later
Going gluten free , low to no sugar, same with dairy... Def pacing. Have been helpful for this survivor. Have severe fibro,spinal arthritis etc . 20+ years 🌹✨🙏
I’m glad you found out what triggers your pain, I believe your right. I’ve had fibromyalgia for the last 10 years, only diagnosed six months ago. I’m celiac so no gluten, if I accidentally get glutened when eating out, my pain is worse. I don’t do well with too much dairy, I now believe my pain escalates when eating sugar. I think my diet and the weather 🤷♀️ has a lot to do with the intensity of my fibromyalgia pain. So from today my diet needs to change, no sugar no diary.
I have this nightmare as well. I have every symptom you mention here. I have bad pain to hun. My entire back hurts. My belly is always sick and bloating and gas
My life was before severe /ME and after. Ambitious , sporty , perfectionist& driven. Was famous for juggling 100 balls at same time. On top of the world . After emergency c-section With a baby ended up in wheelchair! Yes it is all in your head, you have depression etc after 3 year of different diagnosis like MS etc told me you have FM/ME. I cried atleast knew am not crazy. I know now that I burnt myself & my body out. I lost my career as pharm D. Still no one understand & gets me. Still do too much for my family . This year became 50, and DT2 as well due to reduced mobility . My cortisol has been x20 normal levels and that makes it difficult to lose belly fat. If I could live in deserted island , with no responsibilities and no one to expect too much of me, I would feel better. I am never pain free even with fentanyl patches , SSRIs etc .
I feeeeel u
Chronic fatiuge part of FM has never been taken seriously here before I started to demand. But I can't have CFS label, because previous GAD label. It's like - impossible to get rid of that label. For 10 years undiagnosed FM caused my anxiety to be uncontrollable. Been 2 years soon since I had any major anxiety. The problem when living with that label and no control of the anxiety for so long is that u don't know what's normal and not. I have concluded that the little anxiety and depression I feel is now normal consequence of the FM. :). I could continue oversharing, but I don't feel like it right now. But my point is - docs many times don't have bad intentions hehe. They just fail to see things in front of them because of tunnel vision and lack of metrics. And with FM they get it the other way around (talking about anxiety) so many times.
Just started the video and want to say. Ppl RARELY only have Fibromyalgia!! We normally have many other chronic illnesses. Im a Fibromite and have too many other conditions. I have PCOS & endometriosis as well. Not to get into the rest unprompted 😄
So good to hear I'm not crazy when it comes to medication and side effects. I can't take ACE inhibitors, BETA blockers, Bactrim, certain pain medicine because I get all the side effects, even the uncommon side effects.
Hi Aimee, wow! You describe me. So many medications makes everything worse for me. So, I don't really take medications. I had symptoms of IBS. I went to a doctor got a blood test and I had h pylori. You believe the doctor told me that fibromyalgia is a mental illness. Was to take medications for 2 weeks. The first week was ok. But, they Second week the medications was making me worse. I even had some problems with my sight. So, I had to stop the medications. My stomach problems aren't as bad as before. Like the bloating and gas isnt as severe. But, I still have tenderness in my stomach its sorta bearable. I know certain foods make its worse. But, overall no matter what I do it doesn't seems to get any better. Now I'm 55 and when I'm stress its gets worse. The headache and the weird feeling in my head and neck is just unbearable. Oh, sugar and gluten is very bad. I just wish you and everyone else who are suffering from fibromyalgia. Good health and I hope they find a cure.
I've been in pain for more than a decade. Honestly, if both of my mother's parents hadn't been diagnosed I'm not sure I ever would have been. People don't usually think young people can get these "old people" diseases. I've had arthritis since I was a child (though I've had other doctors and my physiotherapist not believe me). I've even had shingles. I'm only 27 years old. It sucks. If I get cold I have pain, if I don't exercise I have pain, it's a constant battle.
You could be talking about me, so many chronic conditions that overlap and I’ve also wondered if I really have fibromyalgia. 🤗🤗
It's such a struggle. Glad you understand how I feel!
You are so pretty🌸🌸
The pressure points test was used in diagnosing me back in September, so it is definitely still being used, but probably not nearly as often
Hi I’ve been living with fibromyalgia 😢😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure
Have you seen a neurologist for the headaches? I've had Fibromyalgia for 13 years. Just found out last year I have Occipital Neuralgia (caused by extreme neck and shoulder tightness). Dry needling (not acupuncture) was done to me by a physical therapist in the neurology department and it was the best thing i ever did. Seriously neck and shoulders so tight you could hear them popping when I got a massage. My first time I got up from the table feeling nauseous and a little dizzy. An hour later, the neck and shoulder pain was gone. Now the Fibromyalgia wasn't gone.....but the dry needling helped so much with the neck and shoulder muscles. I don't know if that can be done everywhere because Covid-19 hit and i wasn't able to get back in to see them again yet. Was curious, I don't know if i missed it or not, but were you in a car accident or anything that triggered your Fibro?
Yes i hace had migranes since i was a teenager and saw many neurologist, got MRIs, and all the tests. Everything came back normal..
And no car accident or anything like that
Nice video
I had so much tests done ct scan blood work heart monitor and they found nothing but my periods are a breeze its just my legs arms then some days it goes aways...this gives me so much relive
Thanks for sharing your story. We are in this together!
I am having a really bad flare up right now. Over the past several months I have been in so much pain all over pain. I have to walk buildings at my job I don't think I can some days. I have been spending so much time in bed because I am exhausted and in so much pain. I too have issues with sensitivity to meds.. I haven't had a flare up this bad for a long time.
Hi I’ve been living with fibromyalgia 😢😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure