Another Bad Tonic Clonic Seizure (29/01/24)
2024 ж. 30 Қаң.
40 922 Рет қаралды
I suffer with temporal lobe epilepsy and I’m just putting them up as some support and awareness 💜💜
Any questions just leave them in the comments and I’ll get to them in the next update video. Can’t thank you all enough for the support it means the world 💜
Reading all the beautiful comments.. and so beautiful to see the wonderful support for this courageous young guy.. Just wanted to say how much we appreciate all the love for him we feel on this channel.. we have been here since we saw Alfie’s bad seizure around Christmas.. we subscribed about 10 seconds into the video.. Since then we have watched the videos .. and we have never been so overwhelmed with wanting to support him.. nor have we ever known anyone with such courage and the strength to battle these horrific seizures .. and so many on one day.. we believe he had 8 when he made these last 3 videos.. Impossible it is to watch Alfie struggle so hard getting through all these.. and when you see him on the update videos.. and really get a chance to know him a bit.. your hearts just ache for his agony., and how can you not love him? Alfie is doing this so we can learn what these seizures are like.. and so no one who suffers with this.. or loves someone who does.. will ever feel alone.. And our hearts break again for his awesome Mum and family who care for him.. and film these videos he shares.. Good Lord in Heaven.. his Mum is phenomenal.. 🌹 We know this is long..Alfie.. we wanted to thank you and your family for all that you do.. we pray every day for you.. we cry watching these because we pray this will be the last you have to endure.. that something will work for you.. Thank you for being the strong and courageous fighter you are.. most of all .. thank you for caring.. we love you, dear lad💜 Jen999💜💙
Hey man, I have seizures also. I know exactly what you're going through here, and how you feel when you finally wake back up. I'm always just exhausted and sore from contortions in weird ways. Not within our control but we have to stay positive man. No matter how defeted we may feel. Keep your head up my dude.
Praying for you Alfie 🛐✝️💜🙏🏼 The most grand mal seizures i had was 4 in 12 hours. I empathize with you my brother 😢
Did that affect your heart in any way? My husband had 4 and now he has to see a cardiologist. His were back to back.
I had tonic clonic seizures from about 28yo to 34yo, and the most i had in one day were 4. Luckly, medication helped. I'm 44 now and i haven't had one for 10 years. Also, i already went through the process of reducing and then completely abandoning the medication (since 14 February 2022 without any medication), and my neurologist already told me the magic words: "I hereby consider you 'cured', and let's hope we never see eachother again". He has the most sarcastic encouraging sense of humor, and I will never forget that man. 😊 Epilepsy has a thing: Each patient is a completely different case - there are millions and millions of different brain parts, and many possible causes for the "error" in one of those parts. Each patient is a different brain part, a different cause.. I was just one that was damn lucky enough of finding a medication that actualy worked for me. I really hope you manage to get the best out of this. I hope my story gives you courage and hope on the possibility that things can get better. Even if they don't, always try to live with this in the most possible positive way. You are still you, and epilepsy can't take that away.
My heart goes out to you Alfie. I can't imagine what you're going through, but I also see a strong and inspiring Soul. I pray you find some relief soon. My mum went through Parkinsons, peripheral neuroparhy and seizures at 88. Was difficult to watch, but she was one heck of a fighter. That's what I see in you.
All of this in one day? Dear Lord.. wish we could help you somehow.. For you to suffer so much.. for so long.. we know you are strong.. and you fight them.. we can see this.. Feel awful even saying this.. please .. please keep fighting Alfie.. we are praying hard as we can for help for you.. Your putting these out makes anyone watching realize what you go through.. you are brave and strong.. keep fighting Alfie.. We love you.. 💜💜 Jen999💜💙
Geez mate 😢 I'm sorry you have to go through this, we are all here for you, you got this 💪
Oh my god u poor boy putting up with your fits it can't be easy for you sending best wishes for u get well soon ❤️
Solidarity mate ⭐️ thanks for sharing
Praying for you Alfie I hope you recover well
Watching this again today.. we are thinking of you.. wanting so to help..These words make us think of you Alfie.. Hope they help a bit..💜💜 What does it mean to stay strong? It means … staying alive in the midst of chaos.. feeling beaten and battered emotionally.. to the point of wishing to die.. yet.. waking up next morning.. to try to go on with your life.. It means.. shedding tears like the ocean .. and praying to God.. because the wait for an answer.. is a way to hold on.. It means.. crying because of the pain.. and the fear.. yet rubbing away those tears.. to show your face again to the world.. for the 100th time.. It means.. to love yourself as you are.. to have patience with yourself.. to carry on because you want to give yourself a chance.. and the willingness to WANT to give yourself that chance.. is strength.. It means.. believing in yourself.. the hardest thing in life to do.. and yet.. that struggle to find yourself.. is ultimate strength.. Alfie.. you are doing this.. every hour of every day.. you are strong, dear lad.. We love you.. every hour.. of every day💜💜 Jen999💜💙
Hello you came up in my feed almost didn't click you have my heart filled prayers going out to you I pray that each day will be better for you God bless stay safe and the big hello from Idaho🙏🏻🙏🏻💕💕🤗🤗
💔 i wish there was Much more progress in the medical field to treat this condition. Hang in there Alfie 💛
my heart goes out to you
Keep your head up buddy! I'm not sure how long you've had it but I wish you the best🙏 I had grand mal seizures from 4-10 years old. Luckily medication helped and I havent had one since. Im 33 now. Seeing this sure brought me back to those terrible times. That feeling you get when you know its coming is the worst. You got this man💪👊
Bloody horrible feeling. They still scare me but I’m learning to cope better
@louiseandros9600 I don't think a person can feel more vulnerable than that. Sorry to hear you're going through that as well. I hope it gets better for you too!
Thank you so much for your support means the world and I hope the best for you 2 and it sure is the worst, scariest feeling ever 💜
@@investorlifestyle7009 thank you lovely
@@alfiesepilepsychannel best of love and solidarity
Hey, I so wish it were different for you. I hope you recover well from these eight seizures in one day. That's absurd. Have you ever experienced something so crazy? I sympathize with you. Know you are in my fervent prayers. Maybe you're sad, maybe you're anxious, probably both and that breaks my heart. Also for your mother. Really wish there was something i could do or say to comfort you. I just don't. But don't stay in the hospital too long, okay? I'd like to see some new tracks to listen to🤣🤣🤣 Box👊🏼, high ten🙌🏼, squeeze your shoulder🤜🏼 and a big grin😊for you. Take care, mate.
Praying they can go away
Seizure never show mercy 😢
I love you Alfie 😢
I feel bad for you. It has got to make you feel awful when you're having seizures. Hopefully there will be a remedy for you that will keep you seizure free.
my brother getting these attacks from past 48 hours in evrry 10 15 minutes he can't utter a single word or eat or drink anything
Are you taking medicine ?
U had clusters in one day? 😢 Wish i could help. Please rest and take care and feel better soon...
So sore and exhausted.. 😔 hope your doctor's can find the right medicine for you. It affects your brain and emotions. But keep fighting Alfie. You have a lot of prayer warriors. Be brave.. 💪🏼. 🥰
My tongeu is fkt after a seizure dont know why I need to bite it. Natriumvalproaat, levertacetam dont work either only the midazolam nose spray
Has he seen a Dr about changing his meds?😢
Take care man
I got a question, do you feel that seizure is coming?, cuz my brother saids he feels simething weird on his feet and arms idk im curious
I feel a ‘strange’ ‘numbing’ feeling and like an out of body feeling mixed with pure fear 💜
@@alfiesepilepsychannel yeah, he gets scared when his feet fall asleep
Why chicken cross road
do take medicine for those Man I have the bad ones
Love lots of boyanup
Meu nome é Thais moro no Brasil tenho 38 anos, e também tenho convulsões mais estou controlada nós remédios diários. Você toma remédio para convulsão. Desejo melhoras guerreiro Deus abençoe ♥️🙏🏽🙏🏽
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Brother, I understand you, I don't suffer from epilepsy but I have had 2 seizures due to withdrawal from xanax ,have you tried cannabis? I heard that it is good, look for an indica kush variety and add CBD ;), you are strong brother, I send you energy and hugs from Mexico, here you have a virtual friend, I will pray for you brother, peace
Thank you so much for your support means the world and I use cannabis on a regular basis it really helps with a lot of symptoms of epilepsy can’t thank you enough💜
@@alfiesepilepsychannel I don't know if cannabis is legal where you are, but I recommend getting some Afghan Kush or regular Mexican, it's good, blessings bro
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This is so terrible..😢
Why you don’t have special 🐶 the tell you when this happen
🥺😢
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