Celine Dion opens up about battle against Stiff-Person Syndrome
The Grammy award winner spoke with "Vogue France" about her struggle with a rare neurological disorder, Stiff-Person Syndrome, and how she is learning to keep going.
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Her discipline and perseverance is something a lot of us should take note of. Truly one of the most wonderful person in the business. A living legend.
Very well said.
Its easy to have the perseverance when you have the money to see all those doctors, specialists, lab tests, therapists, eat a special diet, try natural therapies, try new therapies, etc. What she has is an auto-Immune disease and doctors need to start being brutally honest and tell people; “There is NO cure!” You can do things that make you feel better and function better - but there is NO cure! Stop wasting your money, admit you are going to die one day, and then move forward and make your end days the best they can be.
Shirley from Alberta….the depth in our Celine moves my heart making me believe if doctors cannot help, alternative medicine can! Don’t give up…don’t make days less painful, find a way to increase your joy…we are all rooting for you!💕💜👩🏼🙏🙏🙏
True but she also has access to a lot of money which takes that pressure off of her. She’s able to pay for all the help she needs. The everyday person can’t do that.
@@ebriggs3498i agree it helps but its not a definite. Many “rich” people lack discipline and perseverance waiting day by day the passive incomes and then eat drink poop and go on…
I met her once at the mall, she was with her mom and sister. The sweetest person and humble, she give my daughter an autograph. What an inspiration this woman is
My PhD was all about gamma motoneurones, the nerve cells that are affected in Stiff Person Syndrome. In an academic job interview in early 2000 I was asked if there were any diseases of gamma motoneurones. I had to say, “Only possibly one…”Stiff Man Syndrome’’’ (as it was known back then), “But many people don’t think it exists”. Well it does and, unfortunately, we’re a long way from understanding it. Thank you for talking about it, Celine. That will encourage further research funding 🙏🏽
If you develop a cure to stiff person syndrome this would also assist to cure ALS,... keep working...n best of luck...!!
Yes, and trying to find information on Stiff Man Syndrome back in the 90’s was difficult, especially on the internet (getting very dodgy information coming up). 🙊🙈 Hopefully with time and more awareness of such diseases research will find a way to help those suffering.
Wow, this is amazing! There is always hope.
Spg302 may be valid? Spinogenix. Human trial of active molecule on ALS patient happening now.
Hi, I'm the human in the active molecule phase of Spinogenix spg302. This regrows the synapses. Early days but so far so good. Hopefully it could work on Celine..
1. I love her so much. Soulful people aren’t that easy to find. 2. “When the body says no”. Her case is exactly what that book was written about.
Now that's a woman! Gentle and caring but tough and courageous too!
mtf
@@deionsandals423 stick to what you know you MAGA cultist!
@@deionsandals423 MALE TO FEMALE, really? You have no idea what you are talking about you idiot. You are just a vile person. Of course we should expect this from you. That is all you do all day. Spread your bullshit. Everybody should know you follow the cultist DJT. Lying through your teeth and spreading hate as much as you can to gain votes. IDIOT THAT YOU ARE!!!!!!
@@deionsandals423 obsessed
@@MIXIECULEZZ Obsessed with truth, yes.
Celine Dion has always been a very graceful and a classy woman. Being in the entertainment business, she has had no scandals. She has family values, a strong faith and she is resilient. Her beautiful voice cannot be matched.
she doesnt even look like she is struggling or is any different. proud of her
Trust me, when someone is dealing with a life altering medical condition, that is what you try your very best to do. look as normal as possible from the outside. Because you don’t want the public to see you struggling. I know personally how that feels like and I wish Celine the best and that she is able to still live her best life.
she probably isnt
@@tessmith3351yes she is. she has good days but she also has bad days…
@@AlexeBriand2002Are you her PR or something? you seem to have an answer on her behalf in every post, does she confide in you?
Many you can’t tell. Think of people with lupus. Some cases of ms. Vasculitis. Etc.
90s baby here. You know you're getting old when your favorite icons are also dealing with age and health issues.
I'm a 50's baby. All my icons are dead except Carol Burnett.
@@jkingston5498Paul McCartney is still alive…
@@jkingston5498Carol Burnett is amazing!! Growing up in the 80’s and 90’s I loved watching reruns of her show and Mama’s Family. ❤
@@AlexeBriand2002 how could I forget Paul and Ringo? My bad!
@@torakfett3351 Mama's Family is the Best!!!
Celine, looking better with the ages! Shining through, the personification of resilience.
Plastic surgery is a hell of a thing lol
@@finalfantasy84I mean she has veneers but I'm pretty sure that's about it
@@finalfantasy84she looks the same since 15 years just with some wrinkles. I dont know where you see a change.
@@finalfantasy84she has never had plastic surgery. Besides having the teeth done
@@sds2954 sure jan 😂
Celine looks like a sweet and strong lady, she has been through a lot, but she is there standing strong. Seeing through her eyes I can see that she has so much love for her family.
what an inspiration....lots of prayers for this great singer and artist......your health is your true wealth
medical science and research will be way more valuable.
I have loved this woman since I was 8 years old. I am turning 40 this year, and she is the ONLY artist I have ever paid to see in concert. I hope I have at least one more chance to do so again. I wish her all of the best.
I've been a fan since I was 7 and I'm 33. I can't wait to see her in a concert. I'm sure I'll cry my eyes out.
She’s an inspiration! Hope she can continue to do what she loves.
She’s looking healthier than she has recently.
What a VOICE .!!! Her and Whitney are True Legends...
And Mariah
Barbara Streisand is in the group. Cher could be but doesn’t sing this big moving music. Maybe one day Cher and Christine Aguilera can be added.
Celine take your time and get strong and healthy. Be with your family and enjoy the life you've built. Your fans will be here waiting . ❤
Her music is timeless. She deserves this break. Her music has gotten me through a lot of dark times in my life ❤❤❤❤❤❤
Me too ! Xx
Me too
I love Celine Dion's voice. it's so beautiful and powerful. I listened to her music and watched her music DVDS while I was recovering from breast cancer treatment. She's a jewel. 💎
Celine is so full of love and humanity……..she really reaches into your heart❤❤
Love Celine Dion!! She has had a rough time, this disease, losing her husband and brother. Her strength and courage is beautiful heartbreaking all at the same time. Bless her and her family!!
So proud of our French Quebec Canadian Girl!!! She worked/works hard for what she achieved!!! Bravo Celine, nous t’aimons beaucoup ❣️
Indeed I have the fortune to have live among many wonderful Quebecois since I moved to Montreal 4yrs ago. 😊
American interview, they don’t mention foreign nationality. I was waiting for mention too.
2022 What happened then?
Celine you are lifted in continuous prayer. I believe you will be back on the stage performing.
Love you celine❤❤❤
Celine Dion is a treasure. A living, breathing, heart beating and heart warming treasure.
The courage she has going through this especially after losing her father and brother!!!! How incredibly strong. God Bless you Celine.
Glad to see her looking good!
There is no new footage within this KZhead clip... It's a statement wrapped with old interviews.. Open your eyes.
@@evangolding5520 the whole beginning of this video is her recent interview about an upcoming vogue magazine,,,,, maybe you should take your own advice?? lol
@@oyvey764 Yeah.. you're probably one of those people that think birds are real... grow up..
@@evangolding5520 LoL you are HILARIOUS birds are not real.... are they?
@@evangolding5520 you’re probably a flat earther and a dumbass at that
Pride is right, she's the bar in human resilience and I love and respect her ❤God be with you and the kids Celine.
Beautifully said! Shalom/salaam/peace to you, Aisha 🤍🙏🕊
Absolutely a beautiful voice. I truly hope her treatment and rehabilitations go smoothly. She’s such a strong woman ❤
She is such a class act. The voice is so complex and intricate, it is heartbreaking for a singer to go through anything that inhibits us from singing. I hope along with her we will hear her again live!
I have a daughter who loves Celine, I mean LOVES Celine. She played her cds when in high school all the time. Fortunately I found I love her voice and music too, so it worked out. My daughter is now 44 and still stays in touch with Celine's life and cares how she's doing. I think Celine gave my daughter a picture of genuine (gentle) strength and confidence she needed to see, so I thank her for that. It doesn't matter that she doesn't know she did that. She did. I pray the best for her. 🙏
I have always admired how genuine and sincere she is, and of course her voice is just sublime. 💕
Such a beautiful soul and woman with the most powerful voice ❤
Adam's apple in the neck
@@deionsandals423 what are you insinuating exactly. Are you suggesting that Céline is a man?
@@myopinion8761 Yes. Most HoIIywood stars are inverts, as the controllers worship the baphomet
@@myopinion8761 Yes. Most HoIIyw00d stars are !nverts. The controIIers worship the baph0met
@@deionsandals423 😂
Respect and love to her. For her great compassion, humanity and her highest goals that she reaches she is always an inspiration for many of us her fans.
Celine Dion"s whole life has been such an inspiration in so many ways. This chapter of her life is heartbreaking. I would love to see her perhaps spend this time writing, maybe more studio recordings that aren't as taxing as live performance and instructing younger entertainers to pass on her wealth of wisdom. She's an icon.
She’s a true legend! 🥹 She’s gotten me through some tough times… I love her! ❤
She is one heck of a woman my heart goes out to her and her family. God bless you, Celine.
What a great insight into one of the most beautiful singers in our century. Love her strength n courage to carry on. It shows whatever walk of life you belong in it’s so important to cherish what small achievements you’ve got
This really made me tear up. Such a strong woman like many out there. God bless women ❤
Blessed her heart and may you get well soon Celine ,the world needs your magnificent voice and presence on stage !
Even if she was not her old self on stage anymore, her fans will still flock to see & support her. All strength & health to you, Celine! 🙏🌞
May the force be with her.
Amen
She looks better, but it still saddens me what she must have to sustain with this disorder. She’s an amazing person with a heart of gold and the soul of a warrior. I’m so grateful I was raised with her music and incredible voice. Stay strong, Céline. ♥️
She looks well. She did go through a very skinny stage due to probably depression at losing her husband then getting this illness but she’s put some weight back on and looks incredible
I love her spirit!! You are loved and appreciated😊
Celine is truly a treasure!! I was overjoyed to see her at the Grammys and just in good health and spirits. Praying for her 🫶🏾🫶🏾
Prayers for you and anyone else going through difficult times.
Celine has always touched my heart the deepest with her love for her sons and husband! I love her so much and wish her all the best in this life and pray for her health to be restored! ❤😢😊
We cannot be prouder of her. Life has challenged her many times and she always rises up. We’ll be waiting for her, here inside our hearts ❤
Voice of an angel. Heal and come back please!
She is a beacon of hope, needless to say one of the most revered musical artists of our time. God bless her!!!
She was 🔥 with that voice
Her voice is like no other. So powerful.
This world is so much brighter with Celine in it living, singing, and sharing.
She is such a beautiful and graceful woman. Prayers for her and her family.
I have always liked Celine. She seems like one of those rare people who are genuinely kind and empathic. And treats everyone, regardless of their status, job, class, race, gender, the same, with respect.
I’m so glad I saw her in Vegas in 2019. I had tickets a few years before and travelled there anyways but the show was canceled due to Rene’s cancer returning. Beautiful talent. I wish her a miracle!
It's always good to see her ❤
She is INCREDIBLE. God Bless Her and her family. What a beautiful person inside out. I wish her well!!! Praying for her!!!
Medical science is way more useful and productive.
Aaw Celine...you are amazing. And loved by so many ❤ I'm praying for your full recovery 🙏🙏🙏
Even a non fan like myself is proud of her and hoping for the best. I'll never buy tickets to her shows but I'll be rooting for her to be able to do what she loves and go on.
such an inspirational woman. I absolutely love Celine! ❤
Keep fighting, Lady! ❤
Celine Dion is a fabulous singer all her songs are so beautiful!!! An amazing women that I respect and admire! My prayers are with you wishing you the best!
When I tell you I love this woman. ❤
She is such an amazing woman. Talented. And just seems like a genuinely nice person. No snobbery here. ♥️♥️♥️
I’m so glad to see her and I pray for her to make a full recovery!!! 🧡🙏🏽🙏🏽🙏🏽
Prayers to you, you are an incredible person not to mention an awesome singer. You hang in there!! If anyone can work through this it would be you. ❤❤
Such a natural talent!
Prayers for this gorgeous woman with the most beautiful voice. Living legend. ❤
Such a brave fantastic role model! ❤
She has such an outstanding personality. I truly wish her all the best ❤
Celine you touched my heart so greatly when my father died in 19 95 you were my inspiration your song got me through that pain the heartache for a long time I cried listening to your music and missing my father you are such an inspiration in my life at that time thank you Celine for your beautiful music and your inspiration I always have loved you and your music I'm a huge fan of yours you're beautiful your family's beautiful God gave you a beautiful soul to touch a lot of people's heart thank you Celine I thank God for you hope you and your family and kids are well they are all beautiful and Celine you're beautiful when God made that angel he made you thank you 💓
1:39 and 4:58. I was lucky enough to take my father to see her perform perhaps her last time at Barclays Center on March 5, 2020 just as the world was shutting down. My dad is a man of few words and she is one of his favorite singers, so for me to receive a long, beautiful txt message the next morning thanking me for taking him to an omakase dinner before the show and walking around his old stomping grounds that brought back many memories was more than I could have asked for. Stay strong Celine!
Such strength of will. ❤
Celine Dion is still one of the best singers ever and her music is just timeless and her voice is just angelic and fabulous and always will be.
her fans will wait for her, no matter how long
I think she needs to let go. We will never forget her. RIP
Love you Celin, so happy to see you, the best for you
Very touching piece. Thank you. What a powerhouse of a woman!!
Admirable and endearing! You are brave and strong! You will get through this. God bless you!!! ❤🙏❤
Celine, praying for you, God be with you🙏🙏
Much love to Celine. Our hearts and prayers are with you that you will overcome this and beat it Celine. We love you. Prayers up for sweet Celine Dion.
Best wishes of healing and peace from Uruguay ❤
Such nostalgia for me 🥰 my mother listed to her all the time. I love Celine Dion!
Sending love and well wishes. ❤️
An inspiring and beautiful human being. ❤ Keep fighting, Celine. ❤
A Truly amazing woman. I hope she gets well real soon and goes back to what she does best.
A True legend, my taughts are with her and hope she'll be back to her very best soon ❤
So glad to see her......she Truly is incredible......good prayers, thoughts......🙏🙏🙏🙏🙏🙏
Incredible strong woman, God Bless ❤
One would have wished her a life without this disease; she's worked so hard all her life and given so much enjoyment to so many. Courage Celine!
sending u miracle✨ and happinezs and healthy celine 💕 we are here patient waiting for you to go back to stage 💐
You are a wonderful legend. We love you and praying for you get better and get well soon.
No singer compares to Celine. She’s iconic. And humble too. She’s not a typical celebrity. She’s just the best !!!!! Xx
Celine Dion is a kind of hero ❤
I have SPS and have had it since 2004 when I was officially diagnosed and part of the work at Johns Hopkins. I have been through so much with this disease….ups and downs but it was hard to never be understood or believed even by Primary Care. Then you went public and I no longer have people looking at me like I am making it up. THANK YOU FROM MY ❤!
I got my diagnosis in part because of her going public with it.
Beautiful voice great heart and passion! We love you Céline ❤
Love her ❤
Oh man her early albums were amazing! It gives me chills listening to those 90s songs. 😊
Celine’s voice steals my heart, melts my heart. I recently found her cover of Chris Isaak’s Wicked Game. OMG. I’m praying for Celine to heal at the root and to feel better so soon. We love you! 🦋🌸🌲
Having an orphan disease is so frustrating for an average person. I hope she pages the way for new treatment for others. God has used her well so far, she can hopefully continue the journey of giving and heal herself in the process