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#raynaudsdisease #raynaud #raynauds #sickness
I'm not native to Japan, but I've lived here long enough to know something about the medical system. If you need that better medicine, here's my recommendation: don't go to the big hospitals - find a small, private clinic (like one of those places with just one, maybe two doctors) with a doctor who doesn't mind prescribing it. A lot of times, you can find one of these guys who has studied or even practiced in the U.S. and they're more open to giving you the medicine you need. I went to two big hospitals not far from you myself for my own thing and they did practically nothing for me. You know who ended up giving me the medicine that put me into remission? My freaking dentist. One old man who had seen the condition before and knew what was needed. It's all about those connections and the big hospitals just have too many people worried about losing their job by prescribing more than the bare minimum.
I had luck I Landed with a Young Doctor, Female that was more understading of my situation and gave me better medicines and even took my input into account, but yeah as you said Old Doctors arent too cooperative.
Thank you so much I have a friend who has raynauds and this really helped
Are you taking 'hormone replacement' drugs?
Hey Atomic, I'm interested in how a dentist could have possibly put a condition like this into remission?? And other hospitals are also incompetent still, have the means to help you, but not the knowledge or the will even .. some staff are clueless still
Like Takemi from Persona 5??
The worst part of having any kind of disease is not getting proper care and having to struggle to find the right doctor.
amen to this
Doctors aren't magicians and don't always know that much more than average people, and doesn't care as much about you as you would hope. You should always make your own decisions, try to be informed of course and listen to the doctor, but ultimately it's your life and your health that are at stake.
@@TheJadeFist Proper medical care is a human right. Doctors are professionals and if they don't know what to do to help you, they should recommend someone who can. And of course they know more than average people, I don't understand why anyone would say otherwise. It's not like anyone can practice medicine.
@@malenalucero6473 All I'm saying is don't place blind faith in some one who may not have your best interest in mind. You have to make your own choices sometimes because you'll be the one to suffer the consequences.
@@TheJadeFist Even if they don't care, it is not only their job, but their DUTY from a moral, social, economical and legal perspective. That some fail to care when they could and should, is not excusable or acceptable by any mean. No argument. It's something that needs to change regardless of what you have to say about the present. There's a difference between "Doctors aren't perfect", and "doctors are incompetent", and the ratio is not balanced in a way that is excusable. When i see 7 veteran cardiologists seing a patient back to back over the span of a couple months, all giving WILDLY different causes, exam results, diagnoses, dangerous treatments & surgeries, and prognosis, quite a few of each polar opposites and drastically counterindicating the other, there is an issue. Not to mention they are happy to get a couple hundred bucks off of you each time.
I'm a medical student. I'm so sorry your doctors have failed you like that! You don't just have Raynaud's syndrome but straight up Raynaud's Necrosis, and any form of Necrosis needs to be taken extremely seriously! Here is what insight I have as a medical student: Niacin is also vitamin B3, i don't see why you shouldn't be able to get it in Japan. Rather than using the word 'Cure' i recommend using the word 'treatment'. Cure implies that it will fix you completely, so it is recommended that it is used very carefully in medical context. Since modern medicine rarely works that way, it is most often associated with pseudomedicine and scams, I'm afraid. The benefits of going to the onsen can also be gained by taking a very hot bath at home. Also take great liberty with hand warmers. Oxygen room helps by providing oxygen to deoxygenated tissues in your hands which were otherwise not getting any due to the ischaemia caused by Reynolds. Ideally you should be prescribed a vasodilator
Feels as if a vasodialator should be the first "go to" for the doctors, wonders why this have not happend yet (or has it)?
@@daarco2 we didn't know his entire medical history, there might be a condition that didn't allow for vasodilator, i.e. hypotension.
While I have no experience with medicine, I have read that chicken breast contains a lot of niacin/vitamin b3, twice as much as chicken thigh I believe. Salmon and tuna also have a lot of it, so eating more of those foods could be helpful.
Also if he has snoring problems (by tissue softening) he may buy pressured breather to gain better amounts of oxygen at nights. It also relief heart a little bit and increase pumping power.
@@carlfromaccounting1112 Please don't respond unless you have actual medical experience. This isn't Facebook. 🤦♀️
Shogo getting shafted by not getting the right medicine is genuinely heartbreaking.
Yep. As heartbreaking as the fact that it's a worldwide common occurence. I'm sorry some doctors get overworked, but they need to do better, as do the patients, governments, managers, administrative workers, medical schools, and other people/places responsible for their budget, training, staffing, "capital goods" and efficient workflow. They are doctors, not stand up comedians, it's people's livelihood, happiness and ability to function that are at stake. Dead people and sick people don't keep a country prosperous, and eugenics don't work.
@@Dice-Z I always tell doctors/nurses/admin people I appreciate them and thank you. I hope it helps them know their hard work is part of a bigger picture, and is appreciated.
I have been living with Raynauds for 50 years now. I’m so lucky it is a mild case so I have never lost any skin. The number one rule is keep your torso warm. Number two is control moisture with wicking socks (hiking socks) and full fleece slippers ( I get mine from New Zealand) you might consider silk long underwear under your traditional kimono. Best of luck
Excellent tips, i copied it so he can see it easier. Hopefully he sees it as this knowledge served you well.
@@MaDmanex100 Happy to see it reached him, he is my favorite youtuber thats off the path from gaming. Literally the only other thing I get on here for.
This kind of necrosis (tissue death) is REALLY rare in primary raynauds - that is raynauds without any other associated conditions. This could be a BIG sign that you have an underlying autoimmune condition that needs treating - so your fingers can benefit from that treatment. I hope you have had as many tests as possible for these autoimmune diseases so you can get to the bottom of why the raynauds is so bad. If the hospitals have let you down (I understand medicine in Japan is not as forceful in pursuing diagnoses) then if there are private clinics that are faster and more invested in people's health, use them. I have an autoimmune condition myself so I understand how hard it can be to get them diagnosed and treated, but you really need to explore this avenue if you haven't already.
A sneaky one is caused by wheat, and its presentation can even be a red flag before other autoimmune diseases show up in tests. Besides celiac, some people have an autoimmune reaction the Amylase-Tripsin Inhibitors, found in the same grains. But it does not show up on tests. It's often brushed off as "gluten intolerance" if you bring it up to people, so it's very difficult to get it taken seriously or get others to consider they may have it. Thing's a f***ng b***ch to deal with, but it isn't deadly. Can cause permanent damage to organs and joints if you don't cut out wheat completely or do it in time, but for the most part it will heal, and won't put your life at risk in the way celiac does. But it absolutely can cause his symptoms, I started having it in my toes. I always have Raynaud's in my feet and hands, because of a different autoimmune condition, but it was starting to actually completely cut off my toes at one point. I stopped being able to feel my right big toe.
@@ghostratsarah I also had raynaud's for years, that was caused by gluten. It disappeared unexpectedly when on a strict GF diet. Mine was not severe like Shogo's and was only an issue in chilly weather.
This comment should be pinned!
Definitely. It should not be underestimated how even the seemingly small things can cause negative autoimmune responses that can cause much more severe issues. In my experience starting at the very basics of basics, like with diet, saves so many people. Very strict elimination diet with slow reincorporation of other foods to see if those exasperate any symptoms, and doing everything else to minimize inflammation. Even supposedly "healthy" things, that most people can tolerate, can often cause inflammation in certain people which can lead to all sorts of diseases.
Those looks like arterial wounds. My Raynaud's is mild (though I have several other autoimmune diseases). Raynaud's is common in Canada. I wish I could have you assessed here. I really feel our specialists could help you. Medication is necessary when you are chronically ill. We have to manage the side effects. If you are not comfortable with medication, the best thing you can do is follow an anti-inflammatory diet. It's up to you though. I'm very happy the Hyperbaric Oxygen Therapy is working for you. It's a fantastic wound care therapy. Thank you for bringing awareness to this autoimmune condition. Hoping your pain stays manageable and you find a specialist who can help. Chronic pain is awful. I've been dealing with it for 30+ years and it's one of the reasons I had to quit nursing.
OH wow! I didn't know it was common here too! Question: Is yours affected more by altitude or humidity? Do you know what parts of the country are more affected by it?
100% i got it in remission no flare ups for 2 years with low inflamation diet also helped with my eczema and atopic dermatitis.but i have to be really strict otherwise i relapse the moment i eat anything inflammatory.
Another Canadian with Reynaud's here. I discovered by accident that magnesium citrate works wonders for me. My fingers and toes are pink and warm to the touch now, unless I'm exposed to real cold, like outdoors in the Autumn. One capsule a day does the job, and no side effects.
1) no such thing as "autoimmune" diseases. It's gobbledygook for vaxx injury and=or an extremely toxic diet (ex. Lupus). 2) No, the "specialists" will throw toxic "medication" at you, they will never even TRY to find the cause, nor the cure 3) there are plenty of people who, just with the carnivore diet alone, got rid of this very same thing. But in much more severe cases, there are protocols in addition to that that can help. The body can heal most anything :-)
@@zzBaBzz Assuming you aren't a bot but an unwell individual I will reply. A lot of individuals who speak like you are often those who have anxiety, schizoaffective personality disorder or schizophrenia and refuse to take their medication. Please take your medication to treat your paranoia, fear and delusional conspiracy theorist behaviours. Take you medication before you harm yourself or others.
The oxygen room (hyperbaric oxygen) is used by medical professionals for non-healing wounds and in my experience works MIRACLES. Takes a lots of visits though
As someone with raynauds, I wish you the best of luck finding a way to manage it. I've had it undiagnosed until recently for years. It's an unpleasant, to put it very mildly, condition, and I hope eventually we can have more effective treatment for it. And it's nice you're sharing your situation as I know so few people open to even mentioning the condition. Especially as I'm trying to figure out how I'm going to live with it for a few decades as I'm only in my 20s.
My mom had this before she passed away. She spent years and traveled all over the world seeking treatment. She never really found relief. Hopefully you can go get some help. keep you spirit high.
I had never heard of this before. As someone that works in IT for a living and paints for a hobby, not being able to use my fingers is a truly a horrifying thought... I'm so sorry you're going through this. All the luck to you, Shogo. I hope you recover.
Shogo, I lost a fingertip to Reynaud's, which is what led to my diagnosis. I've found Norphedipine/amlodipine to be a GREAT help. Fingertip damage WILL grow back over time, but I haven't had a knuckle sore or anything that won't heal in years. The only down side is that in the summer, you might have swollen feet. I only take meds during the winter because of this. My Reynauds is actually caused by an autoimmune disorder, and I have lung damage, so I've been told I may have to do the pressure chamber treatments in the future. Without a medicine to resolve it, I really suggest taking a VERY hot bath every night, and making sure you're COMPLETELY warm when you sleep, which will help the damage from the cold day to heal at night. As a few other people mentioned, raising your core temperature when you get that cold/stiff zombie feeling in your fingers (and they turn white or purple) will really help. That said, I know you want to leave Japan in the future, so maybe aim for somewhere where it doesn't get very cold. That will be the biggest help if you can't get a medication to control the symptoms while you're in Japan.
Amlodopine in low dose has helped me as well. It has been a game changer. I can even do some outdoor sports in winter without extreme pain.
Yeah we were always taught calcium channel blockers like nifedipine I believe
Raynaud’s Syndrome IS an actual autoimmune disorder, not caused by one. Autoimmune disorders are rarely found alone, there are usually several and the causes are still up for debate. Some insist that there is a genetic component that gets triggered, while others say that they can be caused by years of stress, with no familial history of these disorders. I’m proof of the latter.
We Vietnamese university KZhead team shall continue to pray for Shogo's health & family 🙏🙏 Thank you for sharing Japanese culture always 🌹
Of course! We hope he gets super well! 🥰
For a sec I thought u said we will pray for shogo's death💀💀
@@BotanRice let's continue to pray hard for Shogo 🙏🙏
@@unknownentity6275 Shogo is not our enemies, why would we do that? 🤔🤔
Thank you for sharing, Shogo. As a fellow tea ceremony student it made me realize I have been taking my hands for granted. I will host my guests with your spirit in mind. You are a strong samurai Shogo. I will pray for your recovery 🍵🙏🏻
Niacin is just another name for vitamin B3, which you should be able to get in Japan.
I'm not at all familiar with the health service in Japan, but in Canada it's common for the elderly to require additional oxygen due to some common chronic illnesses, and we can get portable oxygen tanks for travel out of the house, and an oxygen concentrator for at home. If these are available in Japan for a reasonable price, they may be cheaper than the oxygen room since they don't require a special room, but you will probably want to discuss it with your doctor in case there are negative effects.
I am sorry the medicine they gave you caused so many problems, but I am glad you have attempted other things. My mother suffers from psoriatic arthritis which has caused deformation in her fingers and actual bone loss. I have seen her struggling to use her hands and do the things she wishes to do. I pray that things get better and you find further relief. I am rooting for you.
Doing Autophagy or Fasting for 3 to be a bit more empirical since Autophagy is the process the body undergoes when it does not has calorie intake for certain periods of time,anyea it can help in Arthritis since it is a Immune System Disease..
check for hidden food allergies.
Hope your mother and shogi do well in their health.
@@charaznable2859 Shogo, Not Shogi. he is no Game XD. I'm Baffled that the the Red Comet Made such Mistake...
@@bernhardvonbarret1729 this new autotranslate is not red thus meaning its 3x slower
The Mayo Clinic is the best of the best. If you can go to the website and request an appointment. You might have to request a zoom appointment. If you can’t travel don’t give up talk to the hospital liaison for help with international patients.
I have Reynauds syndrome in conjunction with SLE. I had NO idea it could get like this though. I’m so sorry you’re going through that and I wish you can find a treatment that works for you! Best of luck
Only thing I fear to loose more than fingers are eyes, I wish you well and to recover as fast as possible
Keep fighting the illness! As a martial artist for almost 50 years, my diagnosis with MS 24 years ago was a blow. I was begin to train in Iado and was doing well with the kata that begin in seiza. Since then, my legs have progressively gotten worse, as is the nature of the disease. Therefore, getting in and out of seize is not happening! I still train daily at my dojo, but my movements are limited. But, it is better than letting the condition own me!
I've heard of hyperbaric chambers but only in relation to treatment for decompression illness. After watching your video (yes, it's very informative) I looked it up and it's an excellent treatment for wounds or gangrene. I'm so happy you found ways to feel better and improve your quality of life. Bless you, Shogo.
XD, I read Hyperbolic Chamber and Imagine Shogo Training to beat Someone XD. Kinda like Goku...
In the 90s they used it for a lot of illnesses. My mother had treatments for her Multiple Sclerosis and still talks about how it was one of the most helpful therapies, but for some reason it seems like the excitement behind hyperbaric therapy died off in the early 2000s? My mom was unable to find a new facility or any Dr that would prescribe it.
@@HannaBenanaIn my country (Italy) they've always been very underrated. There are only 65 of them all over the country and some are available only in summer, for divers. I don't know why, though...
Michael Jackson used to have an oxygen chamber.
The way you handle yourself despite your condition is really inspiring and really respectable
L-arginine 4000mg daily. It's a vasodilator and totally safe. I take it working out. It's just an amino acid and found in different foods.
I would like Shogo to go to Sao Paulo, Brazil, to analyze the difference between the Japanese Culture there and main land Japan. it is said that São Paulo has the largest Japanese community outside Japan. Also the weather is warmer there I think it would help him to recover
on that note san fransisco has a huge japanese population as well as hawaii and are both some warm places
Dont send him to brazil He’s not going fo brazil 😭
@@tikimillie if he goes to brazil hes getting berraded 💀💀(im half brazilian)
@@accie. Did you just call San Francisco a "warm place"? "The coldest winter I ever spent was a summer in San Francisco." -- Mark Twain
@@HansLemurson ... Do you have any idea how long it's been since Mark Twain said that and how much the climate has changed. Yes, it's absolutely hot there. San Francisco is cooler than a lot of California, but it's still warm.
Niacin, a type of Vitamin B commonly found in peanuts naturally, helps with blood flow A LOT...it's actually recommended for treating erectile dysfunction as well because of its effectiveness. Blackberries and cayenne peppers also help in a similar way. I have heart issues so I have cayenne pepper on almost everything I eat now. The "Oxygen Room" you're using is ALSO a VERY effective treatment for MANY things. It's called a "hyperbaric chamber" and many celebrities and wealthy people own personal units and spend a lot of time in them because they are KNOWN to help with MANY issues and sicknesses and are rumored to even prolong life and youth.
Niacin really helped me with my cholesterol levels.
@@davidsonwaas5745 thanks
Useful information--thank you!
small thing, but in english, a cure is something that can be done to permanently remove a condition. the word you are looking for is treatment, which is something that can be done repeatedly to alleviate a condition (can be medicine or an exercise)
I'd never heard of this condition until now. I really hope you find the right doctor who listens and prescribes something that actually helps you. Prayer and best wishes for you!
When my mom was sick in the hospital (diabetes) they had her go to the oxygen room to recover after a surgery. And the oxygen room did wonders for her. It's like she was healing much much faster and was able to recover and come home sooner. That was over 10 years ago. I believe this will be a key component for your recovery.
Much love and respect for being transparent about something you weren’t sure how people were going to react. You deserve proper treatment and attention and I’m sorry it has been difficult.
I feel so terrible for you Shogo. I can only imagine how this effects your life everyday, as well as Harumi and children. I hope you will be able to find help for your condition and get better. Take care
Don’t give up! I have severe eczema so I completely understand the dryness situation. Great to see you have a 3 step plan for new methods! Keep moving foreword!
I have pretty bad eczema too. How do you treat it?
i have eczama too, what do you do to treat it ?
Hey everyone, I have eczema as well and I’ve found a really amazing cream that helps a lot, it’s called A-derma Exomega Control. No corticosteroids or fragrance and it helps with the itching and keeps the skin moisturised. You should also make sure your diet or cosmetics aren’t making the eczema worse.
You're so strong, Shogo.
Raynaud's Disease is a bothering sickness. I once had a staff who always have band aids on her fingers and I asked her why. She said her fingers are always have wounds, without her doing anything. Found out it was Raynaud's disease. I have no news about her now. I hope she gets better and you as well.
Living with chronic illness really is a full-time job. Whether you "win" or "lose" against your sickness, you're still a valuable person Shogo! We support you!
I’ve commented on your Raynauds on other videos. While I don’t have it yet (and hope not too) I have lupus. One in three people with lupus have Raynauds. Some are diagnosed with Raynauds *before* they are diagnosed with Raynauds. Also I was undiagnosed with lupus for a several years. My advice, inasmuch as doctors, is to leave them as soon as you feel they are inadequate. Go find new ones. Don’t even think twice about it.
Thanks so much for sharing! If you ever need to take a break from video making, please let us know how we can support your channel in the meantime. We're gonna stay just as determined as you!
Thank you for the update. I am glad you found some things that seem to be working for you. Please make sure, you keep your doctors informed of anything you take. Niacin while usually harmless can cause liver damage. And you never know how ingredients might interact with each other. 🙇🏻♀
I take niacin is there a way to avoid liver damage?
@@caileighgouthro1365 As far as I know, drink plenty of water and allow time between doses to let your kidneys and liver get it out of your system.
I have a very mild case of reynauds, i wasn't even aware it could get this bad. i hope youre able to find the treatment you need and can get back to your way of living
I'm happy you're sharing an illness that is impacted by temperature. I am very sensitive to temperatures as well (so called cold-allergy and skin rashes on my neck from wearing too hot clothes on this particular spot, aka turtle neck outfits and scarfs). Your story helps me as well, especially on my journey of finding the cause to my heat rashes... Nice to know temperature does not only influence me 😅
I am in no way a doctor, but my girlfriend has the same issue, a short walk on too cold a day would give her a painful rash. A friend of hers having the same issue suggested taking over the counter allergy medicine daily, she takes claritin daily now ( since it's non-drowsy ) and hasn't had the problem for a long time. We even got to enjoy some walks in the snow.
I have a very mild case of Raynaud's, usually only causing mild discomfort. The worst I ever had it took me off my feet for several days, as my feet were in incredible pain. So I can't even begin to imagine what it's like having a more extreme case like yours. wish you the best!
Shogo, love and prayers, mate 🙏 Hoping you find relief and treatment that works.
I too have reynauds syndrome that has been passed down to me. Thankfully I live in Florida where the temperature never drops below 32 degrees and is regularly 80 degrees. I hope you get better soon!!!
You have the right attitude, so you will find the answers you need to get better. All my best wishes for a healthy 2023 Shogo San!
If niacin is working for you, definitely try to eat more things with folic acid/folate in them, like green leafy vegetables, eggs, and foods that have been fortified with it. The folic acid/folate will help you to absorb more of the niacin. Also, a friend of mine has this disease and he found that reducing the amount of caffeine he took (so, reducing how much tea, coffee and chocolate, etc. that he consumes) helped him a lot.
I have Reynaud's syndrome too! I think that's why this video was recommended to me. It effects my toes, which also have had those spots of rotting tissue like your hands. I have been taking amlodipine, and thankfully it's worked well for me the past few years. It does make me dizzy, so I have to take it before bed, and be sure to stand up slowly if I need to be up during the night. I also have to manage the cold by wearing extra layers during the winter. I hope you're able to find relief through the cures you're trying!
Maybe heading to somewhere warm during winter (since you did mention you want to move overseas) would be a workaround too!
My mom has suffered from this since I was a kid and I've started suffering it to in recent years. It really does suck. The way it limits your ability to use your hands can just make you feel so helpless and like you can't take care of yourself sometimes. Sometimes I need help in the kitchen because some of the ingredients that need prepped are to cold for me to handle without pain. I hope the niacin continues to help and it reminded me i need to pick some up for this year. It's starting to get cold were I live and we just had a cold front. Best whishes on continuing to find ways to manage and improve your condition.
Sorry to hear about that Shogo. I hope your health gets much better!
The modified versions of your craft do not detract from it’s beauty for it’s an expression of the human condition. You have so much strength, so much grace and kindness in sharing. I hope this makes sense.
Great job finding natural remedies. Having a disease isnt easy & can understand having pain
I would be interested on a video detailing your struggles with the Japanese health system or just on the system in general. It sounds like it's somewhat simular to our system in the US but also very different.
I myself was diagnosed with Raynaud's about three years ago, and though mine is more mild compared to yours, it's unbelievably uncomfortable and even painful. Even touching ice can trigger an episode. I want to study abroad in Japan, but one of my biggest concerns was the cold weather. I truly hope you can find the treatment you need, and I feel your pain. Much luck to you. 頑張ってね！！
Stay strong Shogo and beat that disease
I have a vascular condition in my right leg as a result of a bad accident. It is not easy, but I try to find ways to work around it. My heart goes out to you. Sending you much ALOHA.
My the bodhisattvas bless you and hopefully u get better ☺️
As a fellow sufferer, you have my explict condolences. I seen you are thinking of moving. They say moving to somewhere that doesn't experience cold winter months is the best thing we can do. For me that would be somewhere like Florida/Texas. I don't know much about Japan's weather patterns, but I'd suggest moving as close the equator as possible (which is an option I'm sure you've already weighed). I hope your condition gets better, and I hope we can both one day be rid of this disease. 🤞
I would recommend California and Nevada too. Politics in the US is changing. It may not be safe for landed immigrants in Texas or Florida.
I don't have this condition, but I do get cold triggered hives. I'm from Texas originally, and I never even knew I had this condition because it flared up so rarely that I never even made the connection until I moved to Kansas, where the winters are colder for school and had to walk to classes. When I go home for winter break, it goes away, so for my issue a warmer climate does help, though I'm hesitant to make any statements about other conditions.
@@DembaiVT as a Floridian I can assure you that he would be be perfectly safe. Frankly people are moving to FL/TX more than ever to seek out a better standard of living. CA is a beautiful state but to say their local government is troubled is an understatement.
Australia (but north of victoria) has a very mild winter)
@@ryand.3858 Depends on where you live really, some places in Florida are dangerous and Texas does have a higher homicide rate, but overall as long as you do your research all those states are fine
That's interesting you are taking a holistic approach to improve your condition. Wishing you the best in maintaining your health
I’ve been on a carnivore/animal based diet for 4 years. I am thriving as well as my family. I’ve seen many reports of the carnivore diet reversing many autoimmune diseases including raynaud’s. I hope someone in need sees this and gives it some research. Processed foods and seed oils have changed our health in disastrous ways 🥩💪🤙
Dear Shogo keep fighting! Hope your health keeps improving with these new treatments ❤❤❤❤
Speedy recovery 🙏
As for Niacin flushing, you do best to take essential fatty acids with it, because if you don't, you will in time get a tolerance to Niacin, and have to increase the dose to get the flush. If you take time-released Niacin, depending on the dose, you may get little flushes at intervals throught the day. I don't know whether you want this or not. As a bonus, Niacin will make sure you keep your sense of humor. I take it for that if nothing else.
Keep fighting shogo
A friend posted a link the other day on FB about this, and I realized it actually had a name!!! Thankfully mine isn't that bad, but it's still annoying. Also nice to know it's a legitimate medical condition and I'm not just a wimp like I was called in High School. I hope things get better!
I have Raynauds on my fingers, which caused me to loose the tip of one of my fingers. Very painful and horrible. I really hope that you get some relief and comfort soon.
Thankfully because my boss has raynauds too, work bought me a radiator for under my office desk and I'm allowed to plug my heated gloves into the computer, wear thermals and non uniform cardigans at work, even with the normal heating on. My boss had a scare a couple of months ago where she almost lost her index finger due to what was considered a normal flare up. Wishing your hands great improvements for the new year Shogo!
I’m so sorry that you have to deal with Raynaud Syndrome. Prayers of Healing and Restoration to full health.
I have a connective tissue disorder and I'm trying to get on top of management. I wish you well on your journey and thank you for your videos and sharing your health journey, you're certainly not alone 💜
I wish you the best of luck! I was mortified to hear about the medicine making things worse for you, but very happy to hear that you found something that helps. Very surprised to hear that the doctors seem to not be interested in helping you, I wonder what that's about.
Scottish girl here with Raynauds ❄️ It was -5°c last night, and the cost of living crisis means I haven’t had heating since last winter. I’m terrified of the coming winter, especially now I have seen the damage raynauds can do. I am SO grateful for these tips. That took over 20 minutes to type 😅 My fingers are totally frozen
omg girl hang in there
cost of living crisis is no joke (experiencing the same in the us)
I'm very thankful that I only get pain from heat rather than necrosis from cold. Your determination is inspiring.
Keep fighting! Your informational videos and vlogs are amazing I enjoy watching them. I hope you continue to fight this Illness.
Buona fortuna caro Shogo, I hope your fingers get better soon! Thank you for uploading an update about your health condition for your overseas friends
I remember when I was a teen the knuckles on my index and middle fingers got suuuper calloused to the point they were open wounds and almost semi-rotting . I'm so glad that cleared up years ago, but I still have some stiffness and numbness in my knuckles. Praying someone can improve this for you, Shogo!
I have it to, as does my mother. Here are some tips, I'm sure u probably already know them since u have had it for years but... Things you can do to help Raynaud's keep your home warm. wear warm clothes during cold weather, especially on your hands and feet. exercise regularly - this helps improve circulation. try breathing exercises or yoga to help you relax. Here are some "don't's" do not smoke - improve your circulation by stopping smoking do not have too much caffeine (found in tea, coffee, cola and chocolate) - it may trigger the symptoms of Raynaud's eat a healthy, balanced diet.
Shogo, thank you so much for doing this, I appreciate you being so open and honest about your disease and trials and tribulations. I feel sometimes people are either too embarrassed or private in their daily life-struggles to share them with others, being open about things I think really does help as it allows people to support you and other to appreciate what they are taking for granted in life. P. S. You probably already know this but just as a reminder in English the verb we usually use for medicine is "to take" I know in Japanese people usually use the same verb as "to drink" but in English it's different. e.g. Ever since I've been taking this medicine, or I have been taking this medicine for 3 weeks now
I am so so sorry Shogo! For what ever its worth, I’ll pray 🙏🏻 for you… wishing you all the very best!
Let me remind you as a Christian that the Bible does say that the sincere, energetic prayer of a virtuous person has great power and great effect.
I hope you these treatments work out for you. If they don’t there is always room here is Arizona USA! It never gets cold here!
As a sufferer of an autoimmune disease, I sympathize with you. “It’s all in your head.” Come back when you’re dying.” I rejoiced when I found a doctor who takes me seriously.
Keep fighting homie hope you recover and stay strong
Praying for your health my friend
Lots of hugs darling, stay strong...love from Kenya 🇰🇪
I’ve seen some comments basically saying stuff like “better treatment can help you,” so I hope you can get those treatments and they help, you have very entertaining and informative content
Best of luck with your struggle Shogo!!!
Going to the Dentist = 👏Oral health is very connected to overall health and specifically heart health. Bacteria that occurs in the mouth can cross the bloodstream and affect the valves of the heart. I'm not sure if you have wound care nurses/specialists (e.g. Healthcare providers who work with people with certain autoimmune conditions or diabetes who are prone to slow-healing wounds) in Japan but it might be helpful to learn how to properly dress these kinds of wounds to prevent infection
I work as a nurse in Sweden with Kōryū background. Trust me; it is more common than you think and you can battle it and do well! Thank you for the amazing videos!
Perth Western Australia would be a great place to try for you. Warm almost the entire year, great healthcare, kind people who are interested in Japan.
I wish you all the positive vibes to cope with this crap disease. Thank you for shining a light on this,
Ganbare Shogo san! The comment section is very supportive, I'm glad to see. The onsen also sounds like such a fantastic treatment, too. Not every place that has hot springs harnesses them for such a pleasant soak. I hope it's also relaxing for you, I read stress is another trigger and Youtubing can be a stressful job.
I definitely agree with Niacin, as from a medical point of view it should help with the underlying issues of your condition. That said, please get regular (at least annual) checkups on your liver as that is one of the adverse side effects of long term usage. Limiting your use of alcohol and paracetamol can help too.
i dont have this specific illness, but i do have eczema flare so bad my whole skin is scarred now. you can definitely still see my scars on my whole body eventhough more than a year already passed. wish you the best in getting healthy again:)
Hi Shogo, I'm sorry to hear what you're going through. The hyperbaric oxygen treatment (your oxygen room) is probably your best bet when all other treatments have failed. However, it can be cost-prohibitive if you have to pay upwards of $100 a week, considering the fact that your disease is likely to be chronic in nature. Try looking into portable hyperbaric oxygen chambers that can be installed in your home. You may have to foot a much larger bill initially, but every treatment session thereafter is free and you can do it in the comfort of your own home. We have this service availble where I live (New Zealand). Other than a small maintenance fee, the portable chamber offers you an economical way of accessing this treatment. Hope this helps.
This is what I said too. Get one of the sleeping bags that athletes use to recover from injuries, and combine it with some melatonin. New studies are showing that it’s a cell restorative Chemical and not a sleep aid like we thought it was.
If you are thinking of moving somewhere warmer to help with your condition I definitely recommend the Philippines! It’s near enough to visit home when you want and the Philippines would definitely be into learning more about Japanese culture.
I know a person who lived there for 3 years and was treated very poorly because she was white but that was also 30 years ago.
As a filipino, no please dont recommend Shogo here. Not that we have problems with foreigners, but the environment and medical facilities here may not help Shogo at all. Wiah you all the best Shogo!
PinoyLand doesn’t have the best medical care.
@@orionfernandes4587as painful and shameful as it is, what you said is true.
@@Pokemongod934 It would have better medical care if it were still under Spanish rule.
My condolences to you and I hope you can find peace while enduring something that serious
Hi Shogo, Wishing you the best with your treatments and best wishes for you and your family.
Wish you all the best Shogo!
Awesome to see you sharing how you are trying to fight Raynaud’s. I hope the winter is not too harsh on your body! Stay warm and take care of yourself first! We will be here!
As someone who has a longterm disease too, I really admire your optimism and how you're staying so strong through all of this ❤
I was told I have Raynaud's and I find my natural body temperature has been low for decades, 97.3 is my normal, and a hot shower is really important to bump my core temp up. The oxygen room I have heard of in context of gymnasts trying to improve the recovery speed of their muscles. Not for first time high level performers, but for those that have already been to the Olympics and have a lot of wear and tear and are trying to heal some of that damage. I hope your treatments give you some much needed relief!
We love you shogo I’m always praying for u