Down to the Bones - Living with FOP (Trailer)

2024 ж. 29 Ақп.

7 169 Рет қаралды

Sarah Fischer lives with an incurable genetic defect called FOP. Her body replaces injured muscles with bone rather than tissue. Bruises or injections at the dentist trigger ossifications and cause those affected to stiffen over the course of their lives. What is it like to live with this rare disease? What can be done about it? How far has medical research progressed with the development of a drug? And what would Sarah Fischer wish for if she had one wish?

Пікірлер

Ich wünsche Sarah und ihren Eltern alles Liebe und ganz viel Kraft. ❤
@strixaluco59032 ай бұрын
Für was steht FOP?
@marlenmuller2 ай бұрын
- Hallo, das ist die Abkürzung für Fibrodysplasia Ossificans Progressiva. Werde ich noch in der Beschreibung vermerken. Vielen Dank für die Frage.
  @MichaelScheyer2 ай бұрын
Das muss doch nicht sein ,das man ein Video einstellt.
@TinaKoler-ch5jlАй бұрын
- Hallo Tina Köhler, wie soll ich das verstehen? Sie finden das nicht gut, wenn man auf KZhead Videos veröffentlicht?
  @MichaelScheyerАй бұрын