PLEASE DISREGARD THE FIRST FEW SECONDS OF THIS VIDEO! I was planning on uploading another video first and the two videos got mixed up. This video was very hard for me to film so I appreciate each of you who stayed with me throughout the whole video. I hope this also brought those who don't know as much about this disorder more knowledge.
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Thank you so much for all the love on this video! I never thought so many people would want to reach out to me! I promise I will take the time (when I have the time) to reply to all your comments. I appreciate it!!
Hi. I have a language disorder called Auditory Processing Disorder.
As a mom with two boys (9 & 7) with MERLD, this video was so incredibly encouraging. Thank you so much for putting yourself out there and for giving us parents a view from the other side. You're amazing and so very brave!
Thank you so much for watching and all the best to you and your boys!
I hope you are handling it well.
@@lukerosenkaimer5647 Auditory Processing Disorder (APD) is not a language disorder at all.
Thank you. My daughter was diagnosed with a language disorder at age 4. She is now 7 years and has received regular, intensive language therapy. It's hard finding adults who also have a similar disorder, so its been a god send finding your video. You speak very beautifully and eloquently x
Marina Grant Hi Marina, my daughter is 4 too with the same disorder, how is your daughter now?
I’m 27. I’m just now discovering MERLD and realizing it explains so many of the things I struggled with in school and struggle with now. I’ve never met someone who has a similar speech pattern to me but I sound very similar to you - frequent pausing to process, forgetting words, etc. I’ve often felt the same way. Sometimes it’s easy to speak and other times it’s hard to stammer out half of a sentence. People frequently grew impatient with me or cut off my thoughts because they thought I was done talking as a kid and a teen. I had difficulty keeping friendships because of it. I always assumed it was because I wasn’t smart or it was my “ADHD brain” not cooperating. I’m starting to see that there might be more to it than that, and that it’s not because I’m less than. Thanks for sharing. 💕
It’s always refreshing to find someone going through something you do. It’s absolutely not because you’re less than or not as smart, you may just process information differently. I try to tell myself that it just makes me more unique. :) Hoping you continue to move forward.
This video makes me feel like I'm not alone people don't understand how difficult this order is to struggle with it as an adult; it is more challenging to deal with.
I feel you. I hope you're doing okay!!
I always knew something was wrong with me but I wasn't diagnosed with mixed receptive expressive language disorder until I was almost 32. I struggled in school and never understood why I couldn't keep up. I wish there was a magic switch to turn it off. I don't always like coming across to people that I am slow. Along with this, I also have a phonological disorder where I can't talk on a phone or understand language in crowded places so I lipread. All of these things have created a deficiency in me socially so I like being alone. It's always hard to go to the grocery store because I have to be around people. I felt like I was the only person in the world with this until I came across your video. Thank you for sharing.
@Amanda Cartwright - I believe that my 13 year old son is having similar difficulties to th ones you described. Have you sought any treatment for what you have been going through? What has worked the best for you?All the doctors have told us is that he has autism and requires speech therapy with no real explanation of what's actually going on.
@@michaelbranch6105 I have unfortunately came up against the same thing...no real explanation of what to do or how to treat. At the age of 40 now, I have lots of issues with relationships (family, friends, etc.). The communication gets in the way. I tried a speech language pathologist, however she was more concerned with making sure my weekly schedule at school was up to date. Not sure what that had to do with anything. My verbal communication is worse than my written communication. Thankfully, that has helped me write some books and publish them on Amazon. Https://amn.to/3qFoVdu. It's frustrating that that seems to be the only thing I can do to communicate well. I wish the best for your son. I am sorry i do not have better news for you. Finding a good speech language pathologist is key. They are few and far between to find. This is a hidden disability that is hard for others to understand for sure.
@@2SurvivalHomesteadTeachingFarm thanks for sharing!!! My son also does much better with written communication over verbal. I can tell at times he would rather end a verbal conversation as well as written than stay in it because of the difficulties that are associated with him holding a conversation. This causes limited interaction with family and he doesn't have any friends. He seems happy now but I think it may bother him at some point in the future. I'm sorry to hear that the speech language pathologist wasn't able to help you out. I'm hoping to find some help for my son. If you don't mind me asking... We're you diagnosed with language disorder? How did you manage it? What are some things you wished your parents would have done differently? What did they do correctly? I see you express yourself very well in written communication where I feel that my son also lacks just not as much as he does with verbal communication. Any information would be so greatly appreciated.
@@michaelbranch6105 I wish so much my parents had did something about my difficulties growing up. They would always say I wasn't trying hard enough when in fact I really was. In elementary school, I was taken out of the regular classroom with an assistant teacher who taught 4 or 5 of us in a smaller setting. I liked this and it did help me but my parents wouldn't let that continue after the 5th grade. When I first went to college I had to take remedial classes. That was frustrating to me to be in an English class where all my classmates were foreign and English wasn't their first language. Not only could I not understand them, but for me to have to be regarded as that bad in English was not good mentally for me. I took other remedial classes such as math and science too. After that experience, I went to be tested myself and they misdiagnosed me as ADD. When I was continually struggling in college, I was tested again and was properly diagnosed with MERLD. (Mixed expressive receptive language disorders). Fortunately I was able to hold down a relationship and now am married. He understands my struggles and is patient with me. Patience is key along with support. I've been told I exibit sign of brain aphasia also. My worst issues lies with receptive language. If it wasnt for the daily support I have reviewed from my husband, I wouldn't have had the drive to push through the conversations of 'you aren't smart enough to go to college' or 'why waste your money. You will flunk out anyways'. My parents still to this day think I am intentionally being slow. I think the best think for your son is to be very patient when he is explaining things. Test his ability to come up with words such as "what is another word for idea". It's things like this that make me have to think but benefits me by keeping that part of my brain working. Also, I find it very frustrating for people to talk over me. I might be slow at getting to the right word so patience is always preferred. Maybe your son could benefit from that? In school, double time on tests was helpful for me and one on one time with the instructors. Reading one question might take me awhile to figure out what it is asking so double time on tests might also benefit your son. Depression and anxiety is a major factor also to be aware of. Being around people who talks over me or is rude when I'm just trying to find the right word is difficult and can bring on anxiety. This makes me want to avoid people. The depression comes with isolation. For your son, maybe small groups is best. Also, I have found that doing physical things in groups helps me express better such as playing a sport or instrument. I hope these things are helpful. I am happy to answer any other questions you have. If my parents had gotten me help as a child, I think my life as an adult could have been easier and more beneficial. I'm happy to help with anyone who needs advice. My experiences could help others.
I just got to read this comment. My apologies. Thank YOU for sharing as well! I am humbled that you feel grateful for my video. I completely understand feeling alone and wanting to just turn off your difficulties. I know this was a few years ago, but I hope you are doing better now. Please feel free to dm as I would love to help out anyway I could if you are still struggling.
My 20 month old was diagnosed today with this diagnosis. Thank you so much for sharing. I know God is working beautifully in you and in my daughter. His promise stands, she will sing and worship Him for the rest of her life. May God bless you and the many people that come across your video.
I want to thank everybody for the positive feedback on this video! I really appreciate it. It'll be much easier filming my next video for sure.
Thank you for posting this. When I was a kid in the 80s I went through the exact same thing, but back then this sort of thing wasn’t really known or discussed, so I don’t have a formal diagnosis. I still have it but not as badly, but it does kick in severely from time to time. But I’m grateful that you posted this because it makes me feel less alone about it. Thank you.
My daughter has mixed expressive & receptive language disorder along with Autism & I want to thank you for sharing your experience. It helps parents like me to understand more about it & about ways we can help our children. It’s great to see how well you are doing & gives me hope for the future!
I speak exactly like you do. My friends thought I was weird and my colleagues always look at me in a different way. There is only one person who gets and understand me. I sometimes start a sentence and not be able to finish it. And I used to get annoyed. Thank you very much.
Honestly thought it was very normal. But isn’t always..
Finally I found a video someone actually talks about the same learning disability I have!
Your story is pretty similar some of my experience events, I can't understand peoples jokes if its complex jokes most jokes actually its almost i didn't get it cause its similar like a inside joke or something I've never heard it before but actually the reason why behind it was cause its my language disorder.. i couldn't laugh with everyone because i couldn't take in as a joke .. Similar story like that I have similar issues like in the work field ... I can not take in orders very well Information just does not work well for me so i'm also effected in working as well as the education system :/ I would like to say I'm in University though, I am trying everyday trying in a relationship who tries to accept me with the issue around it "You never listen to me!" sorta problem but other then that.. It was a friends communication issue on msn but i never really had a problem face to face.. So i think I have severe issues with it some other places.. More in complex advanced speaking is my problem. So defiantly the educational system is my problem taking information in.. Does everyone else here with language disorder have spelling and reading and grammar issues, maths issues as well? :O Basically dyscalculia, dyslexia with the added Language disorder ;o I thought having the language disorder was an extra package with other learning disabilities i really don't know my language disorder definition i guess. Thanx for the video MissBiss! I'm planning to make videos about myself being in university with my learning disabilities very inspiring to finally see a video my disability don't feel alone anymore ^_^
Well I'm glad you like it! Thank you for the nice comment. :)
Math is my worse subject actually! It's almost like it's a bit too much to take in at once at times, as if the brain gets overwhelmed. You're welcome, and thank you for being so sweet. Those of us with learning disabilities need to come together and support each other. I always felt that talking to other people with the same issues I have was a big help. So in that case, please feel free to dm me if you want to talk. :)
MissBiss oh my gosh yes! it's so hard being in Uni I feel alone with my learning disability I almost lose my emotive in some ways getting no tips with how to get better with studying I swear I have more disabilities combined with others ADD i probably have cause my sister has that dyscalculia (maths disorder) like you MissBiss and me have and is linked dyslexia to my slow understanding with my language disorder ... I totally agree we should kelab cause we need to start our type of learning disability community together honestly I wanna be on KZhead somehow another and talk about being in University trying to be an uni student with this disability most of all it's my confidence the disability is just a challenge but my low confidence is my barrier not believing in myself. That's why I think there needs to be community for us cause I was so beaten up in my younger life and I am emotional towards it, it's still fresh in me those emotions I want to know more people's stories similar experiences so we don't have to go alone with this problem anymore. 😊👌✊👏🙆
It’s reassuring 😅
Thank you so much for this video. My son was diagnosed at 3 and is now 5. We have been working with so many therapists. You rock and keep fighting the good fight!!!
I can totally understand the feeling of frustration when you can't figure out the words to use to express your thoughts. Not sure if I have this but I just started seeing a therapist about anxiety and I'll have to mention this to her because I can relate to almost everything you said, except for the memory part because I can't remember anything haha. You're doing an amazing job and I hope the best for you. Thanks for sharing this!!
I completely understand you!!! This is the story of my life!! It seems like I didn't listen to people or disregard whatever they say because I can hear EXACTLY what is being said it just never registered to me as language or something like that? I don't know how to explain it either. When I do register as language I always think the person meant something else. U are perfect! Thank u for sharing
Thanks for this video. We suspect that my husband who is 40 has this along with ADHD that has been diagnosed and is being treated. It's great to have your videos as a resource.
This video is very helpful to my family and a loved one. You are brave for putting yourself out there to help many people. I could understand you very well and I thank you for sharing your intimate experiences with this diagnosis.
My daughter Aubrey also has MERLD. She is the little Asian Girl on another KZhead Video. She is now 15 and still processes differently. She also has a unique memory ability. Thank you so much for sharing your story. This is very helpful and you are a brave young women.
Eric my son sounds similar to your daughter what treatment have you found that works the best for your daughter?
My nephew was diagnosed very recently with this. He's 5. He's my 1st nephew and I love the kid to the moon and back as if he was my own. I wanna understand what this is and how I can be helpful.
Thank you for posting this video. My 5 year old son was diagnosed with this recently and I am trying to understand every aspect of it. You have given me much inspiration.
This is very eye opening and thank you for sharing your story. I'm 22 and I've ran through these issues basically all my life to the point where I'm sucked dry with my self esteem and I'm losing hope. Its extremely difficult to express thoughts into words and even think of words to say. Giving orders can be hard because I tend I make so many errors before I get it right. Thank you for making this video. By the way you're beautiful :)
VIN Thank you! :) it definitely takes a lot of fighting and hard work. I've had not only this but other issues. I wasn't diagnosed until I was about 15 years old, so I understand the difficulties of going through it so long without knowing what to do. What helped me the most was working with a speech therapist. Other than that, practicing is huge. I'm 22 now as well and I've come a long way. I know you can too. If you need anything go ahead and dm me! Oh and thank you for the nice comment! :)
Thank you for this video. My son is 11 and has MERLD and it’s great to have a video of show him of someone else with the same thing!!
This is awesome to see someone older with the same language disorder that my child has. Not that you have struggled but it gives me hope for my son. (I hope that makes sense.) You're amazing!!!!!!
Thank you for sharing this. My 4-year-old boy is being treating for the same condition. It's really nice to hear about how someone has dealt with this. It's pretty scary for us parents but you seem to do a good job at coping with it and I hope we can help our son do that too.
My son who is in the profile picture has this disorder. He is now 8yrs old. I am so happy we found your page. Very encouraging.
Hey there! Thank you for sharing. I have always had speech problems and finally get diagnosed at the tender age of 30 (yeah, a bit late LOL) with expressive language disorder, although I feel like I have a little bit of a hard time receptive-wise, too, but for me, maybe more to do with my ADHD symptoms. When I was a kid, people used to say I was so shy and quiet, but the reason why was because I was terrified to speak for fear that what I said wouldn't be what I MEANT to say. Nowadays, I push through it but still have the fear anytime someone asks me a question or tries to talk to me about anything that I'm going to make a fool of myself. I subscribed to your channel and I'm looking forward to watching more of your videos :).
Thanks so much for the comment and thank you for subscribing! I hope you can get your disorder under control. Sending positive vibes to you!
I have a fear of the same thing. I haven't been diagnosed, but this is potentially why I am so "shy" around people. I am always afraid of making a fool out of myself because I can't say exactly what I mean at the moment. Thank for your comment!
this is me
paterson90 I really feel that way too. I understand HOW HARD it can be. You are not alone
You are incredibly inspiring! I know my 9 year old son has this disorder. We will br getting him diagnosed soon. It has been so difficult and frustrating for him. He has been in special ed since basically 2yrs old. He is just now realizing that something is wrong. My wife and i were heartbroken the other night when he asked us, "when will his voice change", and" how long was he a baby?" We suspect he is now starting to hear things from other children at school. He is a great student, but comprehension is difficult and expressing himself is just as hard. Im not even sure he can comprehend his issues? I would live to show him this video but im not sure if it will confuse/upset him. Im amazed at how fluent you are in your speech!
I'm very grateful that you shared this video, because it shows that I'm not the only that has MERLD. Growing up, I've always knew that I was different from most of the other kids, but I couldn't quite point my finger on it. I'm the kind of person that takes multiple times just to intake what's being said in a textbook and I feel like no matter how much I try to prepare for a TED Talk or have a conversation, I stumble on words every now and then. I love making friendships, but compare that to someone that doesn't have MERLD, it's a lot harder to do, and it really does suck. I thought it was my Autism bc I was diagnosed with it. That was when I saw on my SLP report that I was diagnosed with MERLD at age 5 (I'm 23 now), I decided to search for answers, especially this video where I found someone that talked and facially expressed in a similar manner as I do, and described a lot of the issues that accurately describe myself when it comes to expressing and intaking language. Honestly, I wish we MERLD-ites had more support. MERLD is something that I will live and die with for the rest of my life because it's incurable and I don't think there's anything wrong with that now that society is becoming more aware of developmental disorders, but it seems like once you become an adult, you no longer have access to Speech Therapists that you had from K-12, but despite the help they provide, I've always felt like they focus way too much on the autism part than the MERLD part. Perhaps it's because of how significantly rare you'll get MERLD compared to autism. On top of that, a significant amount (I'd say half of many the articles I read) of the resources on MERLD online are targeted towards parents that kids with MERLD. So for adults like me, I'd say that I'm pretty much on my own.
Yes. I literally agree with/understand everything you mentioned in this comment! Access to speech therapists when you’re an adult is nearly impossible it’s ridiculous. They basically don’t exist where I’m at. There’s hardly even psychiatrists here let alone speech therapists. The whole stigma behind illnesses that can’t be cured is mind-blowing to me. It’s just another way you happen to be born…like anything else…brain’s just wired a bit differently. So many people fail to understand or even try to understand these illnesses and what they do and don’t mean for those of us with them. Thank you for your comment! I’m so happy you’re grateful for my video!
Thank you soo much for sharing your story young lady! My three year old son has been diagnosed with this disorder & I am desperate to hear from older individuals that have lived with it to get an idea of what life will be like for him. You are very brave for sharing & I thank you. Glad you are doing soo much better after speech therapy.
Brittany Zerkle Thank you so much for that comment! That is exactly why I told this story; in hopes of helping someone else. Speech therapy definitely does wonders. Best wishes for your son!
I have felt so misunderstood for years. I'm so grateful for your vulnerability. I have expression and auditory processing disability and it helps to know that I'm not alone in this. It would be awesome to have a friend that gets it!
Allison Cowart Well feel free to dm me if you ever want to talk.
Great video! My 12 year old is just now wanting to be more verbally social. She's been diagnosed at age 10 and has an IEP and goes to speech therapy every week and I can see improvement in her eye contact and sense of humor. Not many friends if any and not for long. She likes to be around people to hear them talk ..but not really join in. I think she will make the right kind of friends when she does because she does a lot of listening. I think you are an awesome 😎 young lady for creating that video. Keep up the awareness of MERLD.
Thank you! I was definitely like that when I was younger but nowadays it's not as difficult. I'd like to think it gets easier especially after speech therapy. I wish your daughter well, and thanks for watching and posting such a sweet comment! :)
I know this was five years ago.. but I just want to thank you for sharing this with the world.. I was just given test results today that my four-year-old son is being diagnosed with mixed receptive expressive language disorder as well... along with two other disorders. I was trying to research to find out what this means for my son and came across your beautiful video.. you’ve helped me understand this disorder better than anything that I just read online.. you have given me hope and a day full of tears. I’m so sorry you had to struggle when people didn’t understand. I now know, thanks to you, how help to help my son better along with speech therapy. I can now know how his brain works more.. that to me is the biggest gift! Thank you so much! More videos on this would help me tremendously!
Thank you so much! I truly appreciate your comment and it humbles me to know that this video could help you and your son out. This video is older, but I still check the comments! Thanks again! :)
@MissBiss You are absolutely beautiful, inside and out! Your story was very informative and inspiring, as my son whom is 4, was diagnosed with “severe expressive and receptive language delay” just yesterday. You have given me hope that he will get better at understanding and expressing himself as time goes on, with the right help and effort we all put in. Thank you for sharing your story. Xoxoxo
infinite hey how is your son doing my daughter has the same problem she is 6yrs now
I’m so proud of you and you’re an inspiration and you talk very well and are doing great with expressing yourself! Thank you for sharing with the world!
Jasmine Q I appreciate it! Thank you for watching! :)
MissBiss you’re most welcome,you’re lovely ! Keep it up!
Thank you for making this video. I have a 10 year old son. He was diagnosed with ADHD and mild autism about 3 years ago. He just started speech therapy in June this year. Seeing your video has really enlightened me. My son seems to have the same struggles. I never knew about this disorder. I will be doing more research on this. Your bravery in making this video and seeing how far you have come gives me hope that my son will overcome his difficulties as well. Thank you again! ❤️
K Parra Thank you so much!! I’m glad this video could help in some way. I hope your son is doing well. :) Thank you for watching!
I'm in my mid to late 20s and I never understood what was wrong with me. As a 9 year old I was diagnosed with autism spectrum disorder but I genuinely never connected the dots because I could understand social situations, sarcasm, jokes, I didn't have most of the symptoms of ASD. I have a visual impairment (astigmatism+strabismus) and I feel I also have language disorder, both of which have made it seem like I had autism, but I don't. I even thought I had dyslexia at some point, because I had a very hard time with reading comprehension, even though I was one of the first in my class to learn how to read. Everything you said is just so on point. Even the amazing memory. That is so me. I feel this has sadly blocked a lot of opportunities in my life and it has delayed my full potential. I hate that. Thank you for this video! It makes me understand even more that I'm not alone.
Thank You ! so much I understand this condition when you explained, the doctor and speech therapist tried to explain this condition but watching your video really helped!
You’re welcome, and thank you!
I personally have something similar such as SLD and it's what you've explained for the majority. I too have suffered all my life with this and with other issues I do not plan to share. I know how hard it is for you as with test questions you'll need to re-read lots of times, and things you cannot understand. You aren't the only person with this, just know that for sure :)
Hi! I know you made this video 2 years ago but I just started to do my own research. My son is about to turn 5 but I've noticed a speech delay since he was very little. He was checked by early intervention services at 2 but only to be told that he was fine and it was only a matter of time for him to talk. As I said, doing my own research I found this topic (language disorder)and looking deep I was able to recognize that every single symptom matched. Now I'm working hard with school and his pediatrician to get him professionally diagnosed in order for him to be treated. I want to thank you for making this video, you are very brave. I wish you the best and also have a new subscriber. ❤
Thank you!! I'm glad you found some form of closure for your son. Wishing you and him the best!
Thanks for the educative video. My 4 year old son has been diagnosed with this. I cry every day, wondering if he can ever express himself. Seeing you gives me so much hope. He is receiving speech therapy too. You are an inspiration to me. Thanks, and you very beautiful
Thank you! It feels wonderful that my little video can do that for others; I really appreciate it. Your son will overcome this; he is strong. I wish only positive things for your son...thank you for watching and thank you for the sweet compliment.
I just want to say thank you so much for posting. My daughter has the same language disorder is 7 yrs old and has been in speech since she is 2 yr. You did an amazing job explaining it. I feel hopeful seeing that in adulthood you don't feel it so challenging. 😊 thank you so much.
My daughter was just diagnosed. It was a relief finally getting the diagnosis so we can focus our efforts to getting her the help and therapy she needs so we can help her as successful as she can be.
Thank you so much for your beautiful video and explanation. I am working with someone with this disorder and she sent me your video to help me understand her. You are such a lovely soul. You communicate from your heart!
Thank you for the sweet comment! I truly appreciate it. That is wonderful that a client of yours got some help out of my video. I wish her well.
And blessings to you too. I know your message really helped her. I am an acting coach and she takes acting to help her learn to communicate. Thank you for sharing yourself with others. It makes a difference.
Thank you very much!
What a great video! As a mom with a special needs child and a speech therapist, Thank You for sharing this with us!
Thank you so very much! My daughter is 5 1/2 newly diagnosed- much love to you girl - this has helped me understand MERLD better
I'm so happy this helped and best wishes to you and your daughter!
thank you so much for making this. my 8 year old was just diagnosed, hopefully now I can help him more. than you for sharing, you rock.
Thank you, I'm glad this could help you out. Hoping your son can get a handle on his disorder; sending positivity your way. :)
Thanks for sharing your story! I was also diagnosed with this. I find it that a lot of people sometimes miss my message so sometimes so I find myself repeating myself hoping that I make sense to the person I’m talking to. Usually it takes a few tries but I get it eventually! I find it really hard to find words and put together a decent sentence without losing or forgetting a certain word. I feel more effected by the receptive part of this condition. I find it hard to sit around multiple people at a table and understand each individual person. Most of the time I feel lost and it can feel isolating. I’ve had incidents where my teachers embarrassed me (probably not intentionally but rather out of frustration because I could not follow directions of keep up. Worst part is that it would happen in front of everybody all the time.
Language disordered people unite!!
Woah. I so feel this. I feel I need to “lie” to people to full express my ideas or where I’m coming from. I take things to the extreme. I will say things like “I love Jesus Christ so much I’m an atheist” or I’ll try to imperially describe “flat earth” by describing how we knew it wasn’t flat for tens of thousands of years via trigonometry using right angles and being still perfect. Another example is when I tell people I feel belittled, they think the belittlement comes from my expression or theirs. The belittlement comes from the body. But I like see belittlement as an outside action (or speech itself) as the actual thing that is being belittled. How do you coup with this…?
Thanks for showing your disability. You are a lot more brave than I am. I also have a language retrieval disability, and I am so embarrassed with it I hardly talk to anybody.
I just want to say thank you so much for making this video! My daughter is 6, and I always kinda felt she was behind other kids but figured it was because she didn’t have much interaction with peers. Last year she entered kindergarten. That’s when her teacher noticed that she has issues with expressive and receptive speech. She was put into speech therapy immediately. This year, she is repeating kindergarten because she obviously was struggling socially and academically. She’s doing much better so far, and will start speech therapy again in a couple weeks. If there is any advice, words of encouragement, you could send my way, I’d really appreciate it. She is just like you by the way, her memory is incredible! She beats adults at memory games and can recall things that happened when she was 2 years old. I really really really needed to hear and see someone older who has this same condition because lately I’ve been very scared for her future. Thank you so much for sharing!!!
Hi Liz! I just came across this video and was reading through the comments and wanted to reach out to you to see how your daughter was doing? My 2yr old was recently diagnosed with this disorder and like you two years ago, I'm struggling on how to cope with this and am anxious on what the future holds for her! If you could reach back out to me I would greatly appreciate it!
@@saracox5535 hi! My daughter was actually diagnosed with adhd, but she did have these issues. With speech therapy she was able to overcome it, so I’m not sure if it’s the same. But my best advice is therapy therapy therapy! Feel free to message me back with questions on here or on another platform. You’re definitely not alone and your daughter will be just fine.❤️
@@lizaster1922 thank you for getting back with me! She is in private speech therapy 2x a week and just started speech therapy through our local ISD school but unfortunately thanks to Covid the speech therapy through the school is now on zoom.. I've noticed improvements thus far and I'm so grateful for her therapists and try really hard to make sure I'm doing what I need to at home for her too! I just pray she can overcome this too! Was she a late talker? I would love to talk more, do you have a FB?
Thankyou so much for sharing, I have had the same struggle for many years undiagnosed, currently under investigation to see what support is available after 31 years. Would it be possible you could do a video to share what you have found helps you on a daily basis to get you through, general living, tips or advise you might have? I would very very much appreciate anything you are able to offer that has helped you in your life 🙂.
I am so sorry that I just saw this comment! I'm always here to talk, and that is a great video idea; I WILL be doing that. Please be on the lookout for it if you happen to see my late reply.
Semantic Pragmatic disorder was my diagnosis & I totally get where you’re coming from. 👍🏼👍🏼
Thank you for sharing Biss. I was diagnosed with expressive receptive language dissorder in year 3 and i still find it hard till this day and probably will for the rest of my life but thats ok. Its nice to know their are other people out there with the same disability
P.s im 28 now ha
Thanks for sharing. :) We’re close in age (I’m about 26) and I wasn’t diagnosed till I was 13. It’s always good to know about other people dealing with the same things you do.
You are amazing, as some one around yiur age I understand, I have the same disorder, I was dionosed when I was 6 and spent 13years in school in a lot of stress, hurt, bullying, non stop study. Your not alone.
Caitlin Swift my son haves the same disorder and he is 6 years old I'm just so worry for him and his future. I just wanted to know how you doing with this disorder after all this year's
My twin 7 year old daughters we're just diagnosed with this by the Kennedy Krieger Institute. Thank you for posting this video it was very informative 😊
I suffer with this problem every day. But I thought that this only happenes to me. Thank you very very much for this video.
Thanks you - this was really helpful and informative
Thank you for sharing!!
3:28 I can tolerate if someone is in A1 to B1 level, if it's B2 to C2 level and speaks fast, I'd have to write it down. Unless it's a topic that I really like that could get me a leg up in a conversation. I was oblivious to my difficult experiences not until I was diagnosed with AuADHD at 29 and 35. I beginning to understand my condition. Thank you Alyssa for sharing.
I'm 53 and have endured challenges all my life. It's been a series of being put in uncomfortable situations, struggling socially, struggling with work of all types. While I always had a sense of not being normal and struggling in areas that seems to come naturally for most everyone else, it's taken me many years to get a better understanding of what I'm specifically struggling with. Then I spent many years asking for help, looking for answers. Meanwhile I feel alone in this and am tired of the struggle (though I have found ways to hide for long stretches). Just did a casual online consult and it was suggested that I may have language disorder. After some research, I am not completely convinced but I can certainly identify with some of this. I will look more into this for sure. Appreciate, hearing from others!
Shancu I had a professional “test” me and said I had Aspergers. I get why she came to that conclusion but after doing I my own research this seems like a bit of a stretch.
@@DeeNdunya1 I'm looking at some different symptom lists right now and it seems different than when I looked at these in the past/has a different flavor. Can't recall exactly what made me dismissive in past but I'm rethinking this. Aspergers may still be in play even if it's borderline... Though this in itself doesn't really explain my struggles... I'll Check out Attwood... Thanks!
Thank you for this, my girlfriend's daughter has receptive learning disorder and you have aided my understanding. 😁
Exactly what I'm aiming to do; you're very welcome and thank YOU for watching!
Hey! I have the same language disorder as you and I also have a intellectual disability. So my memory is really bad, social skills are hard for me too, and also reading comp is hard for me. I'm still in speech thearpy and I'm 15.
Thank you for sharing. My son just got diagnosed with this disorder a month before his 3rd birthday and I'm trying to find all the research I can on it.
You are welcome!
I'm sorry to hear about your little one's diagnosis. On the other hand, it's great that he was diagnosed at a young age. I highly recommend Montessori language baskets to help him. These helped a lot with my daughter who is now 10. I opted not to enroll her in school since I knew they would not be able to provide the support she needed at the time. There are lots of free resources online. Helpful Garden Montessori has been gracious to offer lots of free language files (Living Montessori Now also has a lot of resources to help as well). Basically, you download the files (you can preview them first), print, cut and use the cards to help create your language baskets it; if you do a search for "Toobs miniature objects", you'll find a variety of Toobs and you can use these objects to help your son make sense of language. Try to make baskets that match his interests. I'd love to share more of what I have done to help my little one. The main thing to understand is that most people with this diagnosis think in pictures; they use pictures to interpret words. If you can graphically represent what you want him to understand, he will eventually get it. I have learned so much and I'm still learning.MERLDs is also an excellent facebook group. I can also share how I helped my little one learn to read and phonetically as well as using the whole-language approach. Please reply back and I'll share more. Meet the Sight Words is an excellent resource help learn sight words, etc. They have some free vids on youtube and you may be able to rent the tapes from the library. I just bought ours on Amazon.
Nia Marie my little girl is 4 and she has been diagnosed since the age of 2 and I cry almost everyday because I don't want her to struggle when she gets older because they say it's autism no one wants that for a child and then it's like what happens when I get older and something happens to me who's going to care and protect her I think everyday is she going to make it in life I mean she talks but she needs more words she's very social but she needs more she will be starting kindergarten in July and I'm worried about but she had had speech since she was 2 she's getting better but I want her to be great this is very depressing to me and sometimes I don't want to wake up in the mornings because of it but then I think who's going to take care of my Zelda
Hi Alyssa loving your hair. stay beautiful x
It's so brave of you to be on KZhead despite the limitations you face (: Take care, lovely xx
Thank you!
Thank you so much for your video and sharing your story. My daughter was diagnosed when she first entered high school. She is now in college but still struggles. She too had issues early on with friends which made her feel isolated. Sharing your story helps people with this disorder know they are not alone (I will be sending this to her ;) ) I do have a question for you. She has been set up with IEP's since grade 2, but never really had speech therapy. She is now 20. In your honest opinion because you have done this, would speech therapy be helpful and beneficial at this later stage?
Yes! Speech therapy is always helpful. I was diagnosed at around 13. For me, speech therapy really helped me to be more comfortable with myself and confident in what I'm saying. If she thinks she could possibly benefit from it and wants to go through with it, I'd say go for it!
before i was diagnosed i had speech therapy for learning sounds. is this the same thing?
Nechama Kugler yes it is!
omg, this is exactly what I've been suffering with for over 10 years of my life. Thank you so much for allowing me to self diagnose it. I always thought it was a dyslexia thing.
+BJ22PIANO You're welcome. :)
I’ve very late, but about 2 weeks ago I went through my files and found an attachment of my mild-moderate diagnosis. I read it and afterwards thought “so is that why I take one year longer to understand things!?” - sadly yes I’m currently in 8th grade and I was diagnosed in kindergarten. I’m struggling the most in English, since my vocabulary builds up very slowly (regardless if I read up to 5 books per day). We’re studying “The Strange Case of Dr Jekyll and Mr Hyde” - the text is so annoyingly descriptive I don’t even want to read it!! Not to mention, last Friday during my counselling session, I told my counsel or I was struggling a lot in English and she notified the staff about it. Ever since then, there is now a program where every Wednesday, in the library, you can get help with your English assessments/homework 😀 along with a “word of the day” - a word you should use throughout the day, to *expand* your vocabulary. I mean I found that quite ‘offensive’ (lol) - just letting you know, I am not dumb, just impaired !!
@@beanhead7632 That’s wonderful that you found something helpful for you! Yes it’s true; brains like ours just process information differently. :) But as mentioned, my memorization skills are top notch. There’s certain things like that that remind me that I’m still smart, my brain just works differently.
Hey I can’t believe this! It’s taken me until 45 years old but I also thought it was dyslexia. Always wondered why other dyslexic people don’t speak like me. Now I’ve finally found people who speak slowly like me. I wish I know about this decades ago. I think my life would have been very different. Thanks for the post and the comments.
Well done
+Amanda Foxall
You are inspirational. Great video explaining the disorder. Did you have speech delay as a child?
Yes, I definitely did looking back. Though i wasn't diagnosed until I was 13, and by then my speech issues were pretty serious.
My son is 3 years and was diagnosed with this delay at 2 years 7 months. We are still trying to get therapy for him. However we are trying what we can at home. There is nothing more we want but to hear our little one use the words he knows functionally.
thankyou for doing this video, my daughter has been struggling and we are trying to get the right support for her she is 7 years next month, we have a report from the eductaional psychologist and speech and language therapist detailing similar issue that you have discussed in your video. Im interested to know what line of work your in and how you have used you specific qualities with memory to yoour adventage :-)
Wishing all the best for your daughter! If you keep her moving forward she should absolutely thrive with speech therapy as needed! I’m in retail right now but I’ll be finishing my Masters soon in counseling with a Bachelors in psychology and will hopefully be able to help people out who have the issues that I’ve dealt with myself. :)
You seem like a loving and sensitive person. Have you thought of developing yourself with arts? And Did specialists commented something on autism or is it only language processing disorder? I am having some difficulties when hearing people speak and me expressing myself. I like arts because it can be the softest activity for my mind.
Thanks for the video. Editing is your friend.
Lol yeah I used to read a paragraph from a book at least three to five times until I could understand it. It was frustrating
Shit, I have this. I find it so rare that I thought the doctors or I made it up. Glad to know I’m not alone.
You are an inspiration my son is eleven years old and he has had this issue since he was five. I have such a hard time with him and anger but knowing the difficulties he is going through is so scary. If you have any guidance for me to help him out the best I can I would be so greatful.
Theresa Weber The best advice I can give is to be patient with him. It’ll help you both in the long run. Best wishes to you. If you want to talk anymore, feel free to dm me.
Thank you for this. My 4 year old just got diagnosed with this.
I have mixed receptive expressive language disorder. Are there any support groups, treatments or therapies out there I can try? Like a website or a specific type of therapy?
Mixed expressive receptive language disorder that's a mouthful no pun intended. First it's barely noticeable, and I think you express yourself very well. Second screw anybody that makes you feel bad for something like that, they are not worth having in your life. It has obviously helped make you a unique and amazing person so your MERLD is actually a good thing. Now I think I understand better why you make these videos, and you should be proud of them. I bet those videos you said you took down weren't bad you were probably being too hard on yourself. You are much stronger than you think.
+DOYLECLEVERLOBE1 Thanks for the kind words! I appreciate it. I've come to live with these things as I now realize I am stronger because of them.
Looks like it's still kinda hard to talk about. Kids can be so cruel. Did you hear back about the job yet?
DOYLECLEVERLOBE1 Yep. Didn't get it. But I moved on.
Sorry, it's their loss. Onto bigger and better things.
DOYLECLEVERLOBE1 Exactly.
Hi Missbliss, I am creating a webinar presentation about atypical development of communication (as in those who develop slower or differently). I would like to be able to link to your video in my presentation to go along side the heading 'The final myth - they will grow out of it eventually'. I have shown your video to early child hood teachers before to help them understand the importance of referring children who had language difficulties to a speech and language therapist.
Thank you for sharing! My son has this & its hard for him to explain to me what he's dealing with. Any suggestions for parents to do at home for their child that may have helped you?
I just saw this comment!! My biggest suggestion would be to be patient with him. He is trying and processing information, it just takes a bit more time. He may also benefit from writing out an explanation instead of trying to explain out loud. That was always easier for me than trying to voice something that was concerning for me, as that just made it harder. I know this is super late so my apologies, but I hope you still find this helpful!
I've been like that all my life I'm 64 now and just now finding this out. I'm lacking in understanding and comprehension. I hear what people saying but can't read between the lines. whatever people say is all I know beating around the bush I don't understand but if you speak directly what's on your mind then yes I understand you. my memory is weak after 10 seconds whatever you told me is gone. it is hard for me to express myself because I don't know what to say to people without sounding childish, immature. I think my brain did not fully mature as a kid so I'm afraid to communicate with people they quickly notice something odd about me. So I keep a low profile. all I know is cartoons and TV shows and janitorial work at 64 years old. I was born this way and people would laugh at me thinking I'm silly or funny but to me I was doing my Best to communicate seriously. having a mind of a 15 year old is not fun . I live a Sad and lonely life. my girlfriend is 40 but her mind is age of 15 too we both suffer from language disorder
You talked your heart out and it made me cry.... I want to talk to you about something, my age is 19, I can't express myself verbally at all that what I want to say, I can't share my feelings, I can't convey them even to my mother but I can easily write them on book or copy, It almost every time makes me cry when I try to express myself, I lose control of myself, I don't know what I'm saying because of which I have lost many of my childhood friends because of lots of misunderstandings, I don't know if I also have this disorder or not because my parents haven't taken my to any docter concerning my issue, they think that I just like to play victim to cry all the time etc but I really don't know what is wrong with me? I really need help that's why I decided to talk my heart out to you about it
Also one more thing to add, I have difficulty in having eye contacts with ppl,staying at places where large no. of ppl are present and are staring at you also I can't take directions properly as well, there was an incident with me in grade 8 when I was the monitor of class, our school principal called me to his office and asked me to tell the name of books that we were studying, at first 2-3 min. I remained silent, thinking of what he said, he again said the some words to me, don't know what and I again remained silent, after which He said if you have hearing problem then come stand close to my table and then listen, I went near to his table and he asked the same question but I still couldn't understand it quite well, after which he yelled at me saying that I THINK I'VE MADE A MISTAKE OF MAKING YOU THE CLASS REP., this made me cry for weeks, there are also many incidents like that but I think this was the most embarssing one of my life yet.
How are you doing now?
@@loverofdancing6428 hey Im fine now, turned out tht im autistic thts why i had soo many problems regarding verbal expression, social and everything else🤦♂️😂
@@areejkhalid904 Am I so glad they were able to figure it out!!
I have Language Disorder
I've had so many difficulties with management at many jobs... they would get aggravated and express to me how very annoying it is with repeating things to me and they are not thorough with teaching and explaining... they would just verbally through shit at me and talk while walking away quickly 😒 my receptive disorder has had a negative impact on my job and no one has much patience and compassion.... I'm very depressed and worried about jobs and careers in the future because every boss has been rude
No need to answer if you don’t feel comfortable, but have you had speech therapy of any kind or other kinds of therapy? I’ve dealt with what you’re explaining in school quite a bit even into college and I’d be willing to send some advice as best as I can.
@@BissTheBatCat only when I was a child
Update: I have created the discord server. If you want to join, here's the link :) The link: discord.gg/UtKGstDuGK You are so brave putting this out in the world, it really put light on things... I have this same disorder and I've never heard someone describe the same problems that I have... I'm thinking about making a Discord group for this since we're really the only ones that can understand each other having the same disability. If anyone wants to join, let me know. We can answer each other's questions to learn more about it because I know that I have many questions about this that are left unanswered...
I'd be down for something like that. Finding people with MERLD is like finding a needle in a haystack.
I have this I was diagnosed as a toddler, I always new I had a learning disability but I didn’t know the specifics I’m 25 and I just Went through my Ieps and found I had this boy do thing’s finally make sense 😮
I finally found a video of someone who has the same thing that i have. I am 47 and was just diagnosed with merld. My 16 year old daughter has merld too.
Me !!!!! Made me cry bc I was diagnosed in the 5 th grade but it never got easy I had to go through trial and error . It sucks!!! Life would’ve been so much easier but oh well
Thank you so much for sharing your perspective. Language disorders are hard to explain, but you did that extremely well. Language disorders are also often not recongnised, so your video helps that also. You may not be aware but there is an international effort to sort out the confusing terminology and the agreed term is now 'Developmental Language Disorder.' There are some videos here: kzhead.info/sun/p7Vmo5Rqf4mClWg/bejne.html
Anyone who has this and would like to talk to me about this i'd really appreciate it. I'm new to this and would like coping stragedies because right now i don't have any accomodations for school and i'm really struggling.
Thank you for sharing I have a job
Thanks for sharing your story. Our daughter also has MERLD. She is 8 now and in 2nd grade. I hope you don't mind me asking. What can we do as her parents to help her especially with building up her self-confidence? She is in speech in school and outpatient.
Brent D Hello and thank you so much for watching. I can definitely say that one of the best things my parents ever did for me was encourage me to be more independent and be myself, but to not be afraid to ask for help when I needed it. Your daughter can’t forget that this isn’t her fault and it is ALWAYS okay to ask for help. I know it gets very difficult to express yourself dealing with these issues, and just showing your daughter that she can and will overcome this means so much. She is strong...that word is so important...I wish the best for your daughter. Thank you for sharing. :)
i used to ask for help for everything a teacher said but i stopped because my class was really mad and i wasted all their time. What can i do to help me now? Record class? Ask for notes? What do i need to tell my teachers so they know how to help me. Apparently they know i have it but they aren't doing anything. I'm having trouble especially i biology. Feedback and what you do to combt this in a regular classroom is extremely appreciated. i have merld and add and i am a very slow processer. What are my next steps.
Please my more videos about merld.
Does kids with this diagnose have memory problems too?
i was assaulted on the left side of my head with a hammer when i was 9 years old consecutively i lost my memory i also came down with other cognitive problems ---on top of that i also suffered years and years of abuse and torture ------------ today i can function and interact with ppl only when i smoke weed without it : i dont understand the intention of others via their words i can not name different behaviors ---my sense of self becomes weird like i feel my sense of self is mixed up with my past abusers i get flooded with past stuff which i dont even remember --the reality becomes dim meaningless disorganized i don't see how others create reality via their words and speech and how they achieve their goals i feel confused and misunderstand every thing --how comes no one on the face of this universe has a similar problem like me ?would nacNAC (N-acetylcysteine) help me ?plz tell me what could help
Thank you for being brave enough to share...I’m so sorry that happened to you. I can’t imagine how hard that could be at times. I think speech therapy could really help you. Regular old mental health therapy can always be helpful but I like to find things I enjoy that make me happy and forget about the hardships for a moment. For example, I draw and it helps me tremendously. I would definitely say though that I believe speech therapy would help you with some of your issues you have. I wish you the best. Please don’t be afraid to message me if you’d like to talk further. :) Thank you for sharing this.
did you have issues as a toddler, as well? My 2-year old was diagnosed with this and I am worried about his future.
Do you find that your inner thoughts are more visual or emotional? I find this to be the case with me and I think I have some sort of expressive issue. I also find music (sounds) especially moving in a way I really can’t describe.
Very visual thoughts for me! I am a very emotional person and I feel things very deeply. I’ve since been able to teach myself to use that to my advantage versus it letting me down. I also completely understand what you’re saying about music.
I have mixed receptive-expressive language disorder as well ^^
Thank you for watching and sharing.
My daughter has language disorder with dyslexia. It is very difficult for young people as they sometimes come across as delayed or immature. Very difficult.
I’m late commenting, I was diagnosed with a receptive language disorder from a young age. I am now 26. Finding work can be difficult.
I understand, I’m 28 now. Keep looking! It took me a long time to find the job I’ve been at for a while. I went through about five until I found one I was comfortable with where my colleagues are understanding. I completely understand your frustration.
@@BissTheBatCatif you don't mind me asking, how do you get through interviews with MERLD? I find it hard to come up with what I'm going to say in the moment and I usually miss key details as to what I meant to say. I've done 5 or 6 no experience job interviews and gotten no offers (with 15-20ish applications). Thinking I might just continue to focus more on college and volunteer for now
I have the same exact disorder. I’m also on the autism spectrum
I have a language disorder too