What Does Dementia Feel Like - 2
2022 ж. 17 Мам.
9 295 Рет қаралды
Following our continued commitment to check in and discuss how dementia feels like, here is the second installment. Please subscribe
Following our continued commitment to check in and discuss how dementia feels like, here is the second installment. Please subscribe
You guys are a blessing, thankyou for your experience and knowledge. ❤
My husband shocked me several years back when he actually told me he was having trouble with memory. He actually told me to take over bills. Also gave up driving when he got lost. And then suggested we sell our home and make all thing easier for us. We did all Of that. I was grateful. We now are at a place where he needs much more help. He loved me and thought of me early on. I just want to love and care for him now. Many of these sites are so helpful. Bless you both
So helpful thank you so much.
Thank you …I had a Aunt who passed of Alzheimer’s Disease & a mom with Vascular dementia but passed of Pancreatic Cancer at age 86 4 years ago. I miss them both & now have a salute to every caregiver and dementia patient a 🫡 from my heart ♥️ thoughts & prayers
Ted and Cristy, thank you so much for sharing your journey on both sides. I love your talks. As the caregiver I always wonder what it is like from the otherside and having your videos, Ted, have really helped dramatically. Thank you and I hope to see more of both your journey.
Thanks for your comment, it means a lot. Please share and of course please subscribe.
Thank you because .my sister is going through this and she have slowed down takes her a while to do things now ❤
Part of the problem with chores is ability to concentrate.
Another way of looking at the “loss” of many things (tasks, cooking, etc) is that he has become more singularly focused. It’s more difficult to keep many balls in the air. I think it’s so awesome that he has created some new areas of focus (like this channel) that is relevant now.
Thank you so much, your tight it it is so easy to focus on the things I have lost, but the channel and my pod case and book would never have happened without it.
Love you guys
I’ve been praying for help, and I thank both of you. This is better than I even hoped for, and I am grateful for this answer to prayer. I subscribed, also went to your website which is very helpful. I don’t feel alone in this so much now. God bless both of you.
Thank you, if you need more dialogue you can reach me at ted@wanderinlite.com we schedule a follow up I am a trained Stephens Minister so I’m good at listening too. God bless I will add you to my prayer list.
Blessings and prayers
When I worked for an airline ,,, we regularly saw older folks having to leave our high altitude location, prematurely, for multiple reasons to get back to their sea level homes. Please think about this if you are older or have parents and have any heart or other conditions. Just stay aware.
Oh this helps me so much. This sounds like what has been going on with my husband but he will not go to the dr to be checked and things have changed drastically. And getting worse. Thank you.
Thank you so much for doing this. It's very lnformative. You both are super. 😇
Thanks so much for this video. I have seen many relatives with dementia and have tried to empathise with them but didn't understand the more everyday and intricate parts of the condition. With the planing activities I can definitely empathise as it sounds similar to me on a bad day, I have chronic conditions but never really thought how that could be similar to some dementia symptoms. It's amazing how open and honest you both are and able to step back and see how you deal with situations. Thanks again.
My heart goes out to the both of you.
We are so appreciative of all the information you guys shared in your video. My Husband Hank has Lewy Body Dementia and I can relate to your information. Please continue to share your story for others to learn from. Thanks so much!
Thank you, and God bless you and your husband, we’ll keep posting as long as we can
Thank you so much, this really helps
I’ve been observing the videos from 11 months ago until now and I can see the progression of this disease I can see it in his eyes, a bit more withdrawn…his response has slowed down.
It would be very helpful if at the beginning of your talk you would state the day and date. I'm watching you on KZhead and I'd like to be able to follow the chronology of your progress. Otherwise, it's confusing to keep track of what happened first and what happened later. Thanx. I'm really enjoying these talks.
Thanks thats a good idea, I’ll do my best to order them as well.
TY Ted and Christie. ❤
You are right sir; men just tune out!
I will keep you in my thoughts. Big hugs to both of you.
Thanks so much for sharing your experience. It means so much for me as a caregiver. I recently come across your channel and subscribe. Eager to see all your videos. God bless you both.
Thanks please subscribe
Thank you for this video 🌻 best wishes
Thank you, thank you from the bottom of my heart. I would love the recording volume to be slightly higher so that I don't miss a thing! ❤
Thanks I can make adjustments
God Bless you both. 🙏🏼
Thank you for your sharing. Very helpful.
Thank you for sharing! My husband does not have dementia and yet does not respond to let me know he has heard me say something to him. He does this very often.
Thanks!
I wonder if as a person feels themselves slipping away regarding who they are in their essence that they might cling to whatever seems to be the most important or whatever still gives them a sense of pleasure and other things may seem like “chores” or unpleasant. At one time doing these chores gave a positive sense of accomplishment, responsibilities that mature adults accept and even enjoy. If there is a sense of losing yourself and the sense that there’s a finite amount of energy then the hierarchy of what’s important is going to shift and shuffle and the person may feel the need to turn their attention to things that help them still feel grounded in who they are. They may be grasping onto things that help to give themselves meaning. Maybe it feels like sliding down a slippery hill trying to grasp onto whatever might stop or slow down the descent. Having to stop to take out the trash might seem like a lot to ask.
You know the person we talk to the most is of course yourself. I know I’m not who I was from the beginning, See my new video about how I was diagnosed with LBD yes the person that was me is slowly slipping away, but I try to replace that person with someone who has a positive attitude and a purpose , and someone that my caregiver want to live with.
Great video. You seem to have a very good working relationship.
Happy Resurrection Day! Thank you!
Thank you, I talked to my husband about what he wants me to do for him. If after 1or 2 days he hasn’t done it, I just do It because he forgets. He will ask me for help when he needs it and that helps me cause I know what he can and can’t do, so if he is digressing I ll be able to tell quickly. I like hearing from both sides, the caregiver and care receiver.
Thank you, Linda so well put it’s important to be helpful but not too helpful, you are doing a great job of letting your husband continue to take charge of what he can, which can help you and can help him keep it up.
Yes I feel like I'm always playing caught up 😒
Lewy Body Dementia Talks - I think you will have a lot more Subscribers too. Ted - if you are able to, please think of the emotional effect on your wife & make your wife your priority. You need to first want to help her - all other after that.
Thanks I believe I do… I know we’re in this together, both of us are a member of Teepa Snows support team.
Thank you both. Ted, I think your doing really good. You stay positive and praise the LORD through all of this. Your videos have really helped me as care giver for my good friend who has Vascular Dementia. GOD bless you and Christy.
Thank you so much... please be sure to subscribe.
@@Tador50715 subscribed!!😊
if your husband doesn't answer you, that doesn't mean he has dementia - good point! ... interesting video, thank you!
I think you ought to call your Videos - What Does Lewy Body Dementia Feel Like. A lot of people wanting to learn of Lewy Body Dementia, do not click on ordinary Dementia videos. Dementia & Lewy Body Dementia are different, I think better you define Lewy Body Dementia as a part of your video Title, a lot of suffering people perhaps need to hear of your thoughts. A video channel each of you & your viewers might like to watch - A Charming Abode. Life of a Lewy Body Dementia sufferer told by his wife.
Thanks
I have 6 children and my grandad has dementia he only has me very hard time very hard to no what to.say to.him 😢
What is your normal diet? I’ve been doing research on this disease and diet.
We eat a normal diet no processed foods, cooking fir scratch and no junk food. Both Christy and I are what would be called foodies and excellent cooks, and enjoy entertaining. Hope that helps
My husband sleeps for a long time now. He does get up at Noon most days. What is that about???
Sleeping a lot is part of dementia, it can be tied to depression, or during the day there is a saying that a person with dementia just “hits the wall”. Hitting the wall has been my experience, I get totally exhausted around one or two in the afternoon. Some people don’t give into it and go to bed early and sleep for long periods of time. I choose to take a nap and then I’m good for the rest of the evening. this helps Christy and I stay on a common schedule
Yes, I have noticed my husband Bruce has lost the ability to Initiate A lot of things, projects, or a chore, go on a walk, his Cognitive An executive functions Or lacking quite a bit he doesn't do the bills Not good with scheduling Initiating making the phone calls. He use to read a lot now he hardly reads for fun anymore. He was diagnosed in September 2022 And it's February 2023 now. How rapidly does this Disease Lewy body dementia progress? He's 61
Each person is unique, if, for no other reason, it depends upon. When did the diagnosis is given in the persons stage of Lewy body dementia. Traditionally, Lewy body will slowly in the beginning, which is why its many time misdiagnosed them ramps up rapidly at the end, Lewy body dementia also comes with many problems with body functions. For me, it’s balance pain in my legs and fingers and hands sudden cramps that caused me to lay out that have migrated into Parkinson’s disease. I wish I could give you a better answer, but the importance is to have a loving caregiver loved one relationship.
May I ask what were your very first symptoms you noticed? I will be 58 this fall but last summer I started having memory issues, like familiar names or losing track of time or remembering to shower. I had a Pet Scan which was clear but I've been told by a professional therapist and an MD that you can still have a form of dementia and it not show on a scan. I do have Parkinson's and am not sure if it's brain fog or dementia
Hi Tory, You might want to ask your doctor about Parkinson’s Dementia.
Do hope you mama get to get some more help and some more answers to your concerns. Best wishes form 5he UK
@@debbiesittard7979 Hey Debbie, I have Lewy Body Dementia. That was a tough nut to crack! But at least I now know and can just move on in my life for whatever time is left
@@toryberch the medicines used to treat your condition are showing remarkable improvements in trial studies. Live your life each day with purpose. None of us are guaranteed tomorrow. Blessings.
My father has dementia and I am an only child. I need all the help I can get. Thank you.
I was in the same boat with my mom. It was very difficult having no siblings. Luckily, my daughter and husband were a big help. I hope the best for you and your dad.
How has this illness affected your libido?
It can go either way for some people with Dementia. For me the medication for my other issues had more of a negative affect than anything